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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @RDLiberty, The lymph nodes are part of the immune system which helps us fight off pathogens like viruses and bacteria and other antigens like pollen and gluten. Nodes can swell during these times. Release of histamine by mast cells is part of the immune response to fight antigens. Histamine release can affect the thyroid. Thyroid hormones can...
  2. knitty kitty
    @Kojacs mum, I'm glad you went to see the doctor and are feeling a bit better. Wernicke's Encephalopathy is the altered brain function psychosis which is a symptom of Thiamine deficiency. An Erythrocyte Transketolase test for Thiamine deficiency while at the doctor's would have been helpful. If only to rule it out. The Erythrocyte Transketolase...
  3. knitty kitty
    While healing and histamine levels remain high, you may develop sensitivity to other foods.
  4. knitty kitty
    I found the Autoimmune Protocol Diet very helpful. The book The Paleo Approach by Dr. Sarah Ballantyne explains how to decrease inflammation and promote healing in the intestines by changing one's diet. It's more restrictive than the low Fodmaps diet, but it works better. I felt better within three weeks on the AIP diet while I had been miserable...
  5. knitty kitty
    https://www.hopkinsmedicine.org/health/conditions-and-diseases/immunoglobulin-a-deficiency
  6. knitty kitty
    https://www.medicalnewstoday.com/articles/how-long-are-your-intestines#comparison
  7. knitty kitty
    Apply your heart to understanding and your ears to words of knowledge. ...Proverbs "Prejudice is the emotional commitment to ignorance" - Nathan Rutstein. The concept has been around a long time and used by many people. Hiding in Plain Sight: Modern Thiamine Deficiency https://pubmed.ncbi.nlm.nih.gov/34685573/ And... Thiamine...
  8. knitty kitty
    I did not attribute it to anyone. I thought "we are not meant to chat", quoting you.
  9. knitty kitty
    @Kojacs mum, I believe you. Sphincter muscles like the anus need Thiamine and magnesium to relax and open. You said you are feeling weak so you're not getting around much. Feeling that weak is a symptom of Thiamine deficiency that signals to me you need to seek medical attention soon. Ask your doctor for an IV of Thiamine and glucose...
  10. knitty kitty
    There is no wealth like knowledge, No poverty like ignorance. Goodbye!
  11. knitty kitty
    @Kojacs mum, Welcome to the forum! I understand what you are talking about! Same thing happened to me! I got really sick and was repeatedly told it was all in my head. It wasn't. I had undiagnosed Celiac Disease, which causes malabsorption of essential vitamins and minerals. My doctor had prescribed medications to treat symptoms of undiagnosed...
  12. knitty kitty
    @frankenstein, Constipation is a symptom of Celiac Disease. Some of us have the classic diarrhea, some have constipation, some have both. Constipation and diarrhea both can happen in thiamine deficiency, too. Gastroparesis where it feels like nothing is moving can happen in Celiac. Gastroparesis is also a symptom of Thiamine deficiency...
  13. knitty kitty
    @frankenstein, Aside from "My gut is absolute hell", you haven't described your symptoms. What exactly ARE your symptoms?
  14. knitty kitty
    Gastrointestinal Beriberi does occur. It's not rare. Doctors have been under diagnosing it. High Calorie Malnutrition does occur. A person can eat plenty of calories, but not sufficient vitamins needed to process them into energy. You asked for advice from people familiar with Celiac Disease. We are familiar with Celiac Disease and testing...
  15. knitty kitty
    @frankenstein, I agree with your dietician. Iron deficiency anemia can affect your antibody production. Was your iron levels still low at the time of the second test? You said you were limiting the amount of gluten due to the low Fodmap diet, so not eating enough gluten prior to the tests can give false negatives. Has your Vitamin D level...
  16. knitty kitty
    @newtonfree, No offense taken. I want our readers to know oral Thiamine is rarely associated with major complications. It's interesting to note that while Niacin may raise blood sugar levels and may figure in developing diabetes, Thiamine is known to improve fasting blood sugar levels and may prevent diabetes. Most diabetics are deficient in...
  17. knitty kitty
    Thiamine intake is related to migraines. High dose Thiamine has been shown to lower the occurrence of migraines. I used to get chronic migraines with light sensitivity, nausea, and vomiting. Since taking high dose Thiamine, I rarely get them anymore. References: Dietary intake of thiamine and riboflavin in relation to severe headache or...
  18. knitty kitty
    Please provide references for these statements. https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/#h19 https://ods.od.nih.gov/factsheets/Niacin-HealthProfessional/
  19. knitty kitty
    Nsaids cause villi blunting and damage to the intestine, but it does not affect the antibodies from what I can find. However.... PPI's can cause serionegative results for Celiac Disease. PPI's can cause false negatives. People who take PPI's are more prone to develop Celiac Disease later. References... The Impact of Acid Suppression Medications...
  20. knitty kitty
    Blood tests for vitamin levels are not accurate. They reflect how much of a vitamin has been consumed in the previous twenty-four hours. Vitamin supplements should be discontinued six to eight weeks prior to blood tests, otherwise the unabsorbed supplements in the bloodstream be measured. Blood tests of vitamins do not reflect how well the vitamins...
  21. knitty kitty
    But there is evidence that Nsaids by themselves cause intestinal damage. "NSAID use has been shown to cause duodenal histopathology nearly identical to what is found in early celiac disease." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5587842/ Many of our members are not diagnosed with Celiac Disease until later ages. Many may have been...
  22. knitty kitty
    @newtonfree, When I read this article, I understood that the scientists sifted through Celiacs that had been on a gluten free diet, separating the ones that had healed intestines from the ones that didn't. The scientists then looked at what the Celiacs that hadn't healed had in common. The use of Nsaids, PPIs, and SSRIs was what the unhealed Celiacs...
  23. knitty kitty
    @Emma R., It IS a vitamin deficiency! It's Thiamine B 1 deficiency. Thiamine deficiency occurs more often in the summer because sunlight (ultraviolet light) is stressful to the body. More thiamine is required when we're under physical or emotional stress. Symptoms of Thiamine deficiency include nausea, and digestive upsets, and fatigue. ...
  24. knitty kitty
    @newtonfree, But what about this article? Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/28220520/ "Villus atrophy was associated with use of proton-pump inhibitors (PPI'S), non-steroidal anti-inflammatory drugs (NSAIDs), and selective serotonin reuptake...
  25. knitty kitty
    @Nick Cheruka Thiamine insufficiency has been linked to cardiovascular problems... Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10502219/ "In this large cohort study, it was observed that higher vitamin B1 intake was associated with...
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