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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, Thank YOU so much for keeping an open mind and for validating the Autoimmune Paleo diet! I've a degree in Microbiology, and have taken as many nutrition classes as were available at my university. The connection between what happens on a cellular level within our bodies and essential nutrients from our diet is intricately woven... -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
@Scott Adams, The information (the majority of alcoholics are Celiac or have gluten sensitivity) came from a National Institute of Health study. Unfortunately, I cannot remember from which study, as I've read hundreds. I don't mind retracting the statement until I can find the study. However, I've found this study which shows alcohol consumption... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@newtonfree, The Paleo Approach by Dr. Sarah Ballantyne has information about a vegetarian version of the AIP diet. -
Falling off the wagon and losing control of my diet
knitty kitty replied to JohnAdam's topic in Coping with Celiac Disease
@NNowak, Please reconsider your laissez faire course of inaction. As someone who is experiencing osteoporosis, the long term effects start when one is young. The majority of calcium in your bones is laid down in childhood, but especially during adolescence and young adulthood. After that, if one doesn't absorb sufficient calcium from the daily... -
Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
@Jacki Espo, I'm glad you found a diet that works for you. I want to clarify this is the AutoImmune Paleo Diet. It is different from an anti-inflammatory diet, although both are beneficial. Remember to provide your body with the eight essential B vitamins. When we cut out bread and such stuff, we cut out the vitamins added by the manufacturers... -
It highlights the impaired judgment of vitamin deficiencies that can occur in Celiac Disease.
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- capitol riot
- carol kicinski
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Has anyone here had perianal DH?
knitty kitty replied to newtonfree's topic in Dermatitis Herpetiformis
Hi, @newtonfree, I followed the Autoimmune Paleo Protocol diet which excludes all grains, pseudo grains, ancient grains, legumes and pulses. These are full of difficult to digest plant lectins. By removing these irritating lectins, the gastrointestinal tract can heal faster and easier. Those undigested plant lectins can promote Small Intestinal... -
Welcome to the forum, @Elizabeth M Blair, I found the book, The Paleo Approach, by Dr. Sarah Ballantyne, a Celiac herself, very helpful. This diet has been shown to promote healing in the gastrointestinal tract. The Autoimmune Paleo Protocol Diet (AIP diet) is designed to remove inflammatory plant lectins, and other problematic foods thus reducing...
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Ice cream.
knitty kitty replied to Elizabeth M Blair's topic in Gluten-Free Foods, Products, Shopping & Medications
Welcome to the forum,@Elizabeth M Blair! I found the book, The Paleo Approach, by Dr. Sarah Ballantyne, a Celiac herself, very helpful. This diet has been shown to promote healing in the gastrointestinal tract, by removing irritating plant Lectins and dairy. Dairy can cause the same inflammation as gluten. Mucosal reactivity to cow's milk... -
So glad you are trying Thiamine and B Complex! Remember when we go gluten free, we lose a source of vitamins. Vitamins are added to bread and gluteny stuff to replace the vitamins destroyed in processing and manufacturing. Vitamins added to bread and gluteny stuff are cheap and shelf-stable (not in forms our bodies can easily utilize). So, it's...
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Pick up a B Complex with all eight B vitamins and additional Thiamine Hydrochloride and or Benfotiamine. And Vitamin D 3 which will help down regulate inflammation. And magnesium glycinate to make enzymes with Thiamine. Nightshades promote leaky gut syndrome which can lead to inflammation in joints.
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@B.J., Thiamine Hydrochloride and Benfotiamine is available over the counter and online. Doctors can also give thiamine hydrochloride in an IV. Since you may have electrolyte imbalance due to the water pill, you may want your doctor to give an IV under medical supervision. Magnesium and potassium help Thiamine work properly. Thiamine is...
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Get the appointment. Eat gluten four or five days prior to bring out the rash. Or... Foods high in iodine (eggs, dairy, crustaceans) can stimulate DH flares, too. Or... Get a genetic test to look for Celiac genes. Genes don't change, and you don't have to consume gluten beforehand. -
@B.J., Welcome to the forum! Celiac Disease can cause vitamin and mineral deficiencies because Celiac Disease results in malabsorption of nutrients. Unfortunately, many doctors are not well versed in vitamin and mineral deficiencies. They're trained to prescribe pharmaceuticals. Thiamine Vitamin B 1 helps with edema in the extremities...
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@B.J., Thiamine deficiency can cause edema of the extremities. It happened to me. Thiamine Deficiency in a Nondrinker and Secondary Pulmonary Edema after Thiamine Replenishment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7028406/
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Celiac disease and Hashimotos
knitty kitty replied to Raquel2021's topic in Coping with Celiac Disease
@Raquel2021, Well, not anymore. Thiamine is needed for the thyroid to function properly, too. Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients https://pubmed.ncbi.nlm.nih.gov/37278003/ And... https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/ -
@MisSkky, Welcome to the forum! Yes, your body is definitely not getting the essential nutrients it needs! My Dermatitis Herpetiformis rash and other skin problems resolved with Niacin Vitamin B3. My Gerd and poor digestion improved with Niacin, too. I lost sixty pounds in a month, and had nausea, vomiting, gastrointestinal distress, explosive...
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Celiac, NCGS, or allergy?
knitty kitty replied to Emmy208's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emmy208, Yes, it is very possible for you to have developed Celiac Disease recently. An infection often precipitates CeD. Did you get the genetic test done? Genes don't change and you don't have to eat gluten for the test. Did you talk to your doctor about supplementing with Benfotiamine, a form of thiamine shown to promote healing... -
Be aware blood levels do not accurately reflect the level of vitamins being stored and utilized inside cells and tissues. The vitamins inside cells can be depleted while blood levels show "normal" levels. These are confiscated to keep the brain and heart supplied, while other organs do without. Blood levels can reflect how much of the vitamin you've...
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Cardiac arrhythmia can be a symptom of Thiamine deficiency. IBS symptoms overlap with Gastrointestinal Beriberi in Thiamine deficiency. Benfotiamine, a form of Thiamine, has been studied and shown to promote healing in the gastrointestinal tract. Thiamine is one of eight water soluble B Complex vitamins. We need all eight to live and heal...
- 17 comments
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NCGS Hives?
knitty kitty replied to cluelesslycontaminated's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@cluelesslycontaminated, Sounds like DH to me. Symptoms often can occur days after gluten (or iodine) exposure as antibodies build up in the skin. Have you compared your photos with those in the DH photo bank? Niacin (the flushing form) can help with skin issues like DH. B12 and Vitamin C help clear histamine. Have... -
@Phyllis Stempinski, Welcome to the forum! Yes, do follow up with your internist and nutritionist. Checking for nutritional deficiencies is part of proper follow up care for Celiac people. It's unusual to be deficient in just one vitamin. Usually Celiacs have poor absorption of the eight essential B vitamins and minerals like magnesium and...
- 17 comments
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Celiac, NCGS, or allergy?
knitty kitty replied to Emmy208's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Emmy208, NCGS is not genetic. NCGS doesn't run in families. Celiac Disease is genetic and runs in families. Do get the genetic test! Do get your Vitamin D level checked. Low Vitamin D level can affect your thyroid, as can low B 12 level. You can have Vitamin B 12 deficiency symptoms before your blood levels show an outright deficiency... -
Welcome, @Oregon Country Girl! Cattle fed grain are usually in a feed lot with lots of other cattle. Crowded conditions can raise stress levels in the animals causing a release of histamine. Same with grain fed chickens, they're probably couped up. Grass fed, pasture, is much better for animals. They are more relaxed, less stress, less histamine...