Jump to content

shayesmom

Advanced Members
 View Profile  See their activity

  • Posts

    463

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by shayesmom

  1. shayesmom
    When I went to our PCP with the information I had gathered and asked him directly about the possibility of the vaccines triggering this disorder, he was very honest about it and said the probabilities were high. He also went as far as to tell me that vaccines are an issue he has personally struggled with for the past 15 years. He is definitely against any...
  2. shayesmom
    Yes that is scary. Especially in light of the fact that two immunologists have now told me that in young children, the vaccines can be the "trigger" needed to activate Celiac's. My dd developed a new food intolerance after almost every vaccine she got. I finally confronted her doctor about this (armed with some medical studies) and he admitted that in...
  3. shayesmom
    Hi Minnie! I am glad to see that you found this board for further help in determining if celiac's might be the culprit behind your son's issues. The people here are amazing! I think that you need to go with your "gut" instinct on this. If you would be more comfortable with an official diagnosis, then you should pursue those routes first. However, you...
  4. shayesmom
    The hash brown casserole is most likely not gluten-free. All restaurants use canned beef stock and most commercial stock has wheat flour in it. Then there's the issue of certain seasonings containing gluten as well as dairy. However, I can impart some good news. You can easily make the hashbrown casserole at home. Their recipe is in a book called Top...
  5. shayesmom
    Night-waking is a sign that there may be another food allergy or intolerance going on....usually dairy or soy. My dd is almost 3 and if she has the slightest amount of dairy, she will wake up during the night or have trouble napping. The best way to check is to pull out dairy for at least 3-4 days to see if there is a difference. If there is, eliminate...
  6. shayesmom
    There is an alternative to the NSAIDS called Serralone™ (serratiapeptidase). It is a protoelytic enzyme made from silkworms that breaks down fibrin in the system and helping to reduce inflammation. I haven't seen any mention of glutens in it as it states it has NO fillers. It is being used more extensively in Europe and Asia but is available in the U.S...
  7. shayesmom
    As far as Celiac's goes, I am relatively "new" to this with dd and I being gluten-free for just over a year (no official celiac disease diagnosis on either of us though dd has symptoms). However, I have LOTS to say about food allergies and nutrition in general as that is something I deal A LOT with! There are several foods which could be contributing...
  8. shayesmom
    There is some really interesting research being done on raw milk products and how many people with documented milk allergies are doing fine with raw milk. Also interesting is the fact that The Lancet has several studies on its site which show raw milk as preventing asthma and allergies as well as offering other health benefits. Raw milk was even used to...
  9. shayesmom
    The "scientific" rationale behind this is that they do the biopsy to prove there is Celiac's and then do another one to confirm that there is healing (thereby confirming a diagnosis you've already been given). Personally, I think that this is unnecessary. You don't have to undergo another biopsy to prove you are better when you KNOW that you are already...
  10. shayesmom
    I don't know about disease and casein intolerance. However, there is plenty of info out there linking most conventional dairy to disease.....heart disease, osteoporosis and cancer to name a few. Anyway, there is speculation on whether or not casein intolerance is as pronounced when using raw milk. Apparently, casein is changed during normal commercial...
  11. shayesmom
    I had read about this a little while back and had seen something about Cytolog which supposedly can help with Celiac's. But Cytolog is more of an infopeptide and studies aren't too far along. The company is claiming a pretty high success rate within 6 weeks with Celiac patients. Hmmmm......I am still skeptical. It costs about $20 per bottle. I did speak...
  12. shayesmom
    Dh and I will be taking Shaye to Disney World for her very first time and I have heard that they are excellent about catering to special dietary needs. I wondered if anyone here had some suggestions or pointers for us to maximize our time in Orlando and truly take advantage of eating out gluten-free. Any advice or tips would be greatly appreciated!!
  13. shayesmom
    To be honest, I do not know if there is a connection to rice and zonulin production. I ran across the info on it a couple of weeks ago and have not had time to look beyond 10-15 articles. All that turned up was glutens increase the zonulin production. I would imagine that in the individuals who produce extremely high levels of zonulin that there would...
  14. shayesmom
    Yes. There is a link between Celiac's and food allergies. New research is suggesting that it involves a human protein called zonulin. Grains that have glutens in them increase the amounts of zonulin produced in the body. In celiacs and diabetics, zonulin levels are shown to be about 35x higher than "normal" levels. Zonulin acts as a gatekeeper between...
  15. shayesmom
    I think that the choice really is yours to make as far as testing goes. Do you need a formal diagnosis to motivate you to go completely gluten-free? It can be tough battling the urge to blow this off as a temporary intolerance or perhaps as something else entirely. My dd also tested negative on the blood panel, but like you, I had taken her off of most...
  16. shayesmom
    Yes, it can easily be frozen. I slice up the cake into individual servings, wrap them in sandwich bags and then freeze in either some freezer-safe tupperware or in foodsaver bags so that Shaye can have desserts for other occasions. I have also made gluten-free cupcakes and done the same. It keeps just fine in the freezer if wrapped properly. I do this...
  17. shayesmom
    Belinda, I am so sorry to hear of what you and your dd are going through. It is so scary and heart-rending when all of a sudden, the symptoms suddenly have a cause and you feel terrible for not having made the connection earlier (as well as angry that the doctors also didn't see it in time to save your child a lot of pain). I don't know what...
  18. shayesmom
    LOL!! Normally I would agree but I did find a way to use a glass stand for Shaye's gluten-free cake that completely separated AND elevated her cake away from the lower tier of regular cake. The stand (I believe it was intended as a covered cake stand or possibly even a cheese dish) had a glass lid on it that also kept her cake quite safe from the cake below...
  19. shayesmom
    There is mention of NAET and TBM (Total Body Modification) on Dr. Mercola's website. Open Original Shared Link. At some point, I also found the physical explanation for why these therapies appear to work. But in any case, momonamission, I definitely understand why you've chosen the path that you have. My dd did not go in for the skin prick test, just...
  20. shayesmom
    I think what she meant was that her child is not only affected by celiac's, but also has a severe allergy to corn and rice (among other things I am sure). I could be misinterpreting though. But I do know several people who are gluten intolerant as well as have severe allergies to many other foods. One of my best friends has been gluten-free for over 1...
  21. shayesmom
    Yes. I also managed to figure it out before the pedis or the GI doc did (although I did get a shove in the right direction from an acupressurist who teaches at a school for alternative medicine). Prior to pulling glutens we were put through a battery of tests for all sorts of disorders (cystic fibrosis was one) and had all sorts of blood work and panels...
  22. shayesmom
    So you know, Cherrybrook Kitchen makes an awesome Gluten-free Casein-free cake mix and frosting that would be safe for your little guy to have and tastes like regular cake. It is considerably more expensive but for once a year is well worth it. If you have a lot of people coming over for cake, you could make two separate cakes or make a tiered cake with...
  23. shayesmom
    Well, all said and done, the complete program can run about $800-900. For some without severe food allergies, it could be much less. Follow up appointments were suggested to me at once every three years. Really, it's not like you HAVE to do it. And if you don't see some results within the first four sessions, there really would be no point in continuing...
  24. shayesmom
    Thanks for the reply. It did make sense too . What made me interested in doing the NAET was a series of coincidental conversations that I had with parents of children who had food allergies and were helped by NAET as well as cranio-sacral massage therapy. One in particular struck me as the parent was a heart specialist at the Cleveland Clinic whose son...
  25. shayesmom
    Actually, I believe that you can either take a digestive enzyme or if in a pinch, eat some raw pineapple or papaya as they contain pretty powerful protoelytic enzymes (Bromelain/papain). Aging does affect enzyme levels and I have read that Celiac's is also a disorder which presents lowered enzyme levels. As for probiotics, it is an awesome supplement...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.