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shayesmom

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Everything posted by shayesmom

  1. shayesmom
    The white flecks on the fingernails is usually a sign of zinc deficiency. I believe that's one of the more common mineral deficiencies associated with Celiac. A zinc deficiency can contribute to a lot of different problems (info from: Open Original Shared Link. The structure and function of cell membranes are also affected by zinc. Loss of zinc from...
  2. shayesmom
    I would definitely try the gluten-free diet before things get any worse. Especially in light of the fact that both you and your mother have gluten intolerance. Are you maintaining a gluten-free diet currently? Is he still being breastfed (it would seem difficult if he's in the hospital)? As a precaution, I'd also look at avoiding all the other major allergens...
  3. shayesmom
    It sounds like your dd most likely does have a gluten and dairy intolerance. You may want to wait on more tests but you may also have to do an elimination diet at some point for definitive answers. The tests can only take you so far.....whereas an elimination diet can give you definite results within as little as a couple of days. The question is....are...
  4. shayesmom
    Hi Mary, Like you, I have a child who was not thriving and symptoms kept bringing me back to Celiac Disease as a potential culprit. We actually underwent several tests to try to diagnose it but all came back negative. And like you, I put my dd on the diet ASAP because I wasn't interested in a formal diagnosis as much as I needed for my dd to get better...
  5. shayesmom
    It's a pleasure to be able to offer any information to someone new to the diet. When I started down this path with my dd, I was completely alone. I would have given a right arm to have known about this site and have been able to talk with individuals who were in the same boat. Now, I get to "pay it forward". lol!! It's a nice change! As for the...
  6. shayesmom
    When I say that the tests are unreliable in children under 5, I mean that BOTH the biopsy and the bloodwork are unreliable. There is a huge amount of specificity involved in order to diagnose Celiac via these methods. Hence, it can take YEARS for an individual to accumulate enough damage to show up on either the blood tests or the biopsy. The fact that...
  7. shayesmom
    My dd tested negative on her Celiac panel and she had all of the symptoms you have described. I voluntarily put her on the gluten-free diet (as well as eliminated dairy, soy, eggs, food colorings, artificial sweeteners). Dd is THRIVING on this diet. If your ds' panel came back positive, then he should be on the gluten-free diet. The pedi is not doing...
  8. shayesmom
    Vance's is okay. We also like Pacific brand rice milk, coconut milk, hazelnut and even almond milk as well. We do not do soy milk however as soy can cause the same intestinal damage as gluten does in some people (and I suspect dd is one of those people). As with everything else, it takes a while to get used to differences in flavor and texture. Rice...
  9. shayesmom
    I think that when it comes to dealing with food issues, many of us feel like we're "on our own" and so it's understandable that the thought of working with your pedi on this didn't cross your mind. lol!! But I think that your pedi is a good one and he should be able to offer support and backing should you endeavor to give this a try. He's well aware of...
  10. shayesmom
    This sounds so much like my dd (even to the exact weight!). We also experienced difficulty in feeding our dd. That has finally gotten better (as in dd actually now raids the cabinets and refrigerator). But I can say that it took a LONG time for dd to begin trusting food again. For too long, she associated food with pain and that is a hard barrier...
  11. shayesmom
    Nevadan, that was eloquently put and I couldn't agree with you more. Although testing may bring some "definite" answers to the table, in some cases it can confuse the issue (like when you get negative Celiac panels and then positive results to the diet). The ultimate problem comes between the time spent testing and the time it takes to do an elimination...
  12. shayesmom
    I agree with a previous poster that the pancreas should be checked out. It can cause all of these symptoms and your doctor needs to pay special attention there as it is hard to see on scans due to its location. Please do not let any doctor blow this off! The symptoms you are describing can be the sign of something very serious and not just symptoms of...
  13. shayesmom
    Yes, my dd had many sleep issues prior to us going gluten-free. Same thing holds true if she's exposed to any dairy or soy. I hope that you will be seeing the specialist very soon. My dd was negtive for Celiac but responded incredibly to the gluten/casein-free diet. Looking back now, I realize the discomfort she must have suffered being glutened constantly...
  14. shayesmom
    You know, I have been considering this for a while now. Part of it does make sense, especially in light of one of the articles posted on this site in reference to a bacterial overgrowth which may play a part in triggering Celiac Disease. The SCD diet is supposed to change the balance of gut flora....especially the prevalence of one which is being associated...
  15. shayesmom
    There are a few "home remedies" that you can try to help with the symptoms. The first being cabbage soup or tea. It is rich in vitamin C (moreso than oranges) and also has a high sulfur content which would be beneficial. Carrots would also be of great help (maybe mix the two in a soup). Beta-carotene/vitamin A is a natural anti-inflammatory for the mucous...
  16. shayesmom
    I think that sometimes parents are the hardest people to convince as they always look at you as the kid who hasn't been around as long as them to be able to know more about ANYTHING. lol!! I hope that I never reach that point but odds are it will happen someday. In some cases, explaining Celiac's as an allergy works. However, with relatives, I...
  17. shayesmom
    You may want to mention a product called Candex to your doctor. It works very well (given time) and can be taken in conjunction with probiotics to "speed things up". We were told about this one from a doctor who worked in nutrition and cancer therapy in China for about 20 years. When we mentioned this supplement to our homeopath, he had never heard of...
  18. shayesmom
    Thank you so much for the updated information. I had received the e-mail from that clinic to watch the news story on Joshua and had even taped the news but it never ran. I had wondered what was going on with it and am saddened that the clinic would take advantage of something like this. Joshua's story should be one of triumph and not focused on fighting...
  19. shayesmom
    My dd does not have ADD but I can honestly tell you that at 15 months of age, I was TERRIFIED that she'd have it as she already exhibited the symptoms. We were never officially diagnosed with Celiac either but rather, had implemented a gluten-free diet just prior to seeing our GI specialist (didn't know we weren't "supposed" to do that). The change in behavior...
  20. shayesmom
    At what point do you trust the answer you're getting??? Hmmm.....perhaps at the point where the answer actually produces positive results and a difference is felt by YOU. I'm sorry, but I truly believe that you need to re-focus and take charge of your health. Perhaps you don't have Celiac and you do have Crohn's. Perhaps you have both, maybe neither...
  21. shayesmom
    Took this info from another web site and have provided references as well. I read many of these studies on PubMed and The Lancet. Yet inevitably, it is assumed by most that my vaccine stance stems from sheer ignorance. I remember posting a large list of medical studies and articles once on a parenting site. The studies were from 2004 and back to the ...
  22. shayesmom
    I would look at taking him off of dairy and soy for now (along with gluten). All three can contribute to similar problems and symptoms and so I'd try to "clear" his system, make him better and then bring the foods back in one at a time to see if there's a connection. With the dairy though.....I know that a lot of people here say that their lactose...
  23. shayesmom
    My sister was just telling me about a woman in her school (alternative medicine) who was a nurse, got fed up with the level of care in the hospital she worked in and decided to switch fields for Eastern Medicine. So at least we aren't the only ones who are fed up with the system and how it is run! I would say give this woman a shot. Do a little bit...
  24. shayesmom
    In a probiotic, I usually look for a refrigerated brand as the potency is higher and thereby more effective in smaller doses. In my dd's case, I also look for a dairy-free version as she has a dairy allergy. One of the more studied and effective probiotic strains is Lactobacillus GG. There is also a lot of research out on acidophilus and bifobifidus. ...
  25. shayesmom
    I find it truly sad that so many people are completely intolerant of a different view in life...especially with something like vaccines. I had one woman on-line tell me "Boy. I SURE am glad that MY kid won't be going to school with YOUR kid". Meanwhile, she is posting every other week about colds, flus, infections, fevers and rashes that her daughter has...
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