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Latest Celiac Disease News & Research:
Everything posted by shayesmom
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ARCHIVED Thought I Was A Little More Prepared Than This...
shayesmom replied to jitters's topic in Parents, Friends and Loved Ones of Celiacs
My dd is gluten, dairy, soy and egg-free. We also severely restrict food colorings as there is a random reaction associated with them....but we haven't pinpointed which one. There are a lot of good milk substitutes out there. We don't rely on just one kind, but rather, rotate them. For milk we use any of the following: rice milk, hemp milk, almond... -
ARCHIVED How Far Does One Go With Possible Cross Contaimination?
shayesmom replied to janelyb's topic in Parents, Friends and Loved Ones of Celiacs
I would definitely agree with the other posters here that cross-contamination is something to be avoided...PERIOD. If your son's rash is worse and his belly went down...then bloated again....he is either getting glutened or you've got multiple food intolerances at work. Considering all that you've posted, my bet would be cross contamination. This... -
Thanks for the updated information and link. I do understand that different substances affect humans and animals differently. However, there's plenty of information of deadly toxicity attributed to aminopterin in cancer patients. And although acetaminophen is generally "safe"....if a human takes too much, it can lead to acute liver failure. We've been...
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Not to be sarcastic here....but does anyone else here wonder about the rationale behind using this chemical for cancer treatment? Considering the effect on animals....is anyone wondering why we're no closer to winning the "war" on cancer? Aminopterin was used in the past for cancer treatment and was so toxic that it was eventually pulled as an anti...
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ARCHIVED Gluten Free Candy Egg Hunt
shayesmom replied to sillyactsue's topic in Parents, Friends and Loved Ones of Celiacs
I do think that you should ask Frank prior to advertising that there's a gluten-free section to the Easter Egg hunt. Hawkfire is correct in the fact that we live in a litigious society. Frank should have the choice of whether or not he's going to advertise this decision...much less take on the added responsibility/liability. If you'd like, you could always... -
ARCHIVED Gluten Free Candy Egg Hunt
shayesmom replied to sillyactsue's topic in Parents, Friends and Loved Ones of Celiacs
I think it's a great thing that Frank has offered to do this. I wish that there were more people out there who empathize and actually DO something to include everyone. As for peanut allergies, diabetics and other allergies and the potential for lawsuits.....there's always the chance that someone will ruin things for the entire bunch. Just look... -
ARCHIVED Results In....
shayesmom replied to Disney323's topic in Parents, Friends and Loved Ones of Celiacs
Celiac Disease genes (as recognized in U.S.) HLA-DQ2 HLA-DQ8 (Celiac genes recognized in other countries but not in U.S.) HLA-DQ9 HLA-DR3 HLA-B8 HLA-DQ7 Gluten sensitivity genes HLA-DQ1 HLA-DQ3 HLA-DQ5 HLA-DQ6 -
ARCHIVED Results In....
shayesmom replied to Disney323's topic in Parents, Friends and Loved Ones of Celiacs
The biopsy can only rule Celiac IN, it can never rule it OUT. No matter what the results are, I would also follow up with an elimination diet in conjunction with keeping a food journal. It truly is the most accurate way of figuring out food issues. Also, there are plenty of people out there who are gluten-sensitive and yet will never test positive... -
ARCHIVED Just Found Out My 3 Yr Old Has Celiac. I Need Advice!
shayesmom replied to JennyC's topic in Parents, Friends and Loved Ones of Celiacs
If the ingredients say tuna, water, salt....it's okay. But some companies add vegetable broth to their tuna which isn't always okay. It's a bit like looking for chicken or vegetable broth to purchase for soups. Only a few brands are gluten-free. So if a non-gluten-free broth is used in the tuna, it's contaminated. There are a few restaurants that... -
ARCHIVED Just Found Out My 3 Yr Old Has Celiac. I Need Advice!
shayesmom replied to JennyC's topic in Parents, Friends and Loved Ones of Celiacs
It's very important that celiacs stay on a 100% gluten-free diet. NO trace amounts of gluten are okay....there's enough risk for exposure with accidental glutenings. There are celiacs who don't show symptoms to certain gluten ingredients (like spelt bread, malt, etc.). Just because you aren't observing a reaction does not mean that the intestines... -
ARCHIVED Need Foods With Protein!
shayesmom replied to CantEvenEatRice's topic in Parents, Friends and Loved Ones of Celiacs
Larabars would have plenty of protein. If he can eat pasta, try grinding up cashews and making an "alfredo" sauce with it. I use a bit of chicken broth, garlic, onion, salt, pepper and then add a bit of cornstarch (in rice milk) and stir until I get a gravy. The cashews in it give it the texture of parm cheese as well as a buttery/cheesy taste. Cashews... -
ARCHIVED Preschool Owner With Celiac Child
shayesmom replied to strawberrygm's topic in Parents, Friends and Loved Ones of Celiacs
This issue is VERY difficult to find middle ground on. Should you become an expert? Not necessarily. But you should try to learn enough about it whereas you can keep this child or a future celiac child as safe as you possibly can. If you were dealing with a food allergic child, you'd have to learn enough about an Epi-Pen and potential sources of food... -
ARCHIVED Overaeacting
shayesmom replied to Nikki2003's topic in Parents, Friends and Loved Ones of Celiacs
You can get tapeworms by playing outdoors, eating undercooked meat or through being exposed to a human that has tapeworm (via infected feces on toilet seat and improper hygiene). It's really not that far-fetched....but not incredibly common either. Open Original Shared Link. There are tests that can be run to rule this out. I suppose that you could... -
ARCHIVED My Son Has Given Up Breakfast
shayesmom replied to missy'smom's topic in Parents, Friends and Loved Ones of Celiacs
LOL! Yes, I think we are considering that my dd also has had issues which prompt me to think "ADHD....emphasis on the H as well!". Diet plays a major factor in all of this and food chemicals and colorings seem to rev up my dd as well. It's not something that I enjoy dealing with and I wouldn't knowingly send my dd off to school for someone else... -
ARCHIVED My Son Has Given Up Breakfast
shayesmom replied to missy'smom's topic in Parents, Friends and Loved Ones of Celiacs
Personally, I wouldn't be able to handle only cereal or another grain product for breakfast. It's filling for about an hour, gives me a huge insulin spike and then I crash and am starving afterward. My metabolic type is a mixed protein/carb type. If I eat a bit of both (protein/meat and a carb), I'm satisfied for over 3-4 hours at least! Your son may... -
The raw diet is really something that I would love to get into...but just not ready to commit (first responsibility is feeding the family and I don't think they'd go for it...lol). There's a really good book out on the raw food diet by Carol Alt...'Cooking in the Raw". The foreword is written by Dr. Nicholas Gonzalez, MD. It's absolutely fascinating...
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ARCHIVED Food Allergies
shayesmom replied to TBLKWL's topic in Parents, Friends and Loved Ones of Celiacs
For recipes that are nearly grain-free, you can go to Open Original Shared Link. Also, arrowroot flour is a good option for those with multiple food allergies. Millet, sorghum, quinoa, buckwheat, potato, tapioca, corn and teff may work out as well. I would probably steer clear of flours that are bean-based (such as garbanzo, navy, chickpea, etc.) due... -
ARCHIVED Is Celiac Disease Covered Under Americans With Disablity Act
shayesmom replied to irish's topic in Coping with Celiac Disease
Celiac Disease is covered under Section 504 and Americans with Disability Act. It is considered a hidden disability and is explained a bit here: Open Original Shared Link However, I'm not sure how you would prove that celiac disease would prevent you from working new hours (not saying that it can't be proven...just unsure as to how the law would be applied... -
I suppose this isn't adding much to the topic, but I was actually reading that infants do not produce amylase (the enzyme that helps break down grains) until they get their molars. Once they get their molars, they begin producing amylase (called pytalin?) in their saliva and that it's then "safer" to start grains. I looked this up on wikipedia and found...
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ARCHIVED Need Some Help
shayesmom replied to Nic's topic in Parents, Friends and Loved Ones of Celiacs
Try maximizing the foods on these lists (depending on which ones your son is not allergic/intolerant to). Foods to treat constipation Foods that lubricate the intestines: Alfalfa sprouts, Almond, Apple, Apricot, Banana, Beets, Carrots, Cauliflower, Honey, Okra, Peach, Pear, Pinenut, Prunes (stewed), Seaweed, Sesame oil, Spinach, Walnut Foods that... -
ARCHIVED Advice About Daycare/school
shayesmom replied to gfgypsyqueen's topic in Parents, Friends and Loved Ones of Celiacs
We are struggling with similar issues with our pre-school as well. To be honest, I WISH that they would separate my dd for snacks when the other students are eating gluten foods. It has been a cross-contamination nightmare from the get-go and we've had some pretty extreme reactions....considering that my dd is not eating or touching the items which are... -
ARCHIVED Should She Be Tested?
shayesmom replied to Reader's topic in Parents, Friends and Loved Ones of Celiacs
With a previous positive blood test, positive dietary response and the current problems she is having being off diet....I'd be of the opinion that the test was accurate the first time around. She should be gluten-free. It's really confusing to decipher the "weak" positives, "negative" biopsies and all the jargon being thrown around. But how I've understood... -
ARCHIVED Snack Ideas To Keep In Classroom
shayesmom replied to hapy4dolphins's topic in Parents, Friends and Loved Ones of Celiacs
There are dehydrated veggies that you could provide as well. One of the things that bothers me the most about school menus and snacks is that there is a huge imbalance on the dairy and grain sides of the food pyramid with hardly any attention paid to fruits and vegetables. Fresh apples/oranges could also be kept in the class for several weeks as a snack... -
ARCHIVED A Question For Parents With Dairy Free Families
shayesmom replied to Nic's topic in Parents, Friends and Loved Ones of Celiacs
I think that the best answer to that question is addressed here: Open Original Shared Link In short, a dairy allergy can cause constipation (usually casein, but whey or another milk protein can also be an antagonist). Also, lactose intolerance can actually be caused by a milk allergy. The two can be very difficult to separate. My friend's ds... -
ARCHIVED Would Like More Info...
shayesmom replied to MrsYoung84's topic in Parents, Friends and Loved Ones of Celiacs
I think that the earlier they are diagnosed and that you start the diet....the easier it is in terms of your child adjusting and it not being such a big deal. There are a lot of naturally gluten-free foods that toddlers love. And I have also found that making snacks, meals, etc. is a lot of fun for both my dd and I. Your child can have all the fresh...