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Latest Celiac Disease News & Research:
Everything posted by murphy203
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	  ARCHIVED Push For Diagnosis Or Just Wait?murphy203 replied to KenzMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Great to hear that she is doing better!!
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	  ARCHIVED Haha...its Just ..sinking In! :dmurphy203 replied to MycasMommy's topic in Related Issues & Disorders Congratulations!! You know from experience that the first trimester is the worst for fatigue, so permit yourself to rest as much as you can!
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	  ARCHIVED Is There A Good Hamburger Bun Out There?murphy203 replied to murphy203's topic in Gluten-Free Foods, Products, Shopping & Medications I finally found Caynon Foccaccia at Whole Foods and it was DELICIOUS!! I can't explain how much I enjoyed dipping it into some olive oil and herbs after lo these many weeks gluten-free.
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	  ARCHIVED Low Ferritinmurphy203 replied to whitefairy30's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I was actually diagnosed because of my anemia. For comparisons, my ferretin was 3. I've had good luck with Vitron C, bringing my iron levels up to a more acceptable level of anemia -- ha! But I am moving in the right direction with the gluten-free diet and supplements. I hope you find a solution, because anemia is underrated in terms of how miserable it...
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	  ARCHIVED Prep For Endoscopy And Colonoscopy For 5 Yr Oldmurphy203 replied to Jackyvh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms It doesn't start until the afternoon, at least in my case, which started with MoM BEFORE the rest. Poor kid... best wishes to you both.
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	This is very good advice... And I am another person with Hashi (30 years) and Celiac (30 days).
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	I struggle with believing I have it, too, despite all of the evidence to the contrary -- how weird are we?? LOL Vent away, and maybe consider finding a professional to talk to if you don't start feeling better emotionally, it can really help, in my experience.
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	Help! I woke up this morning with a rash of dense tiny bumps throughout my mouth. I don't want to make everything in my ife about celiac disease, but could this be from accidental gluten contamination? If so, is there anything specific I should do? So weird!
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	  ARCHIVED Who To Trust (Gastro Or Immuno)murphy203 replied to Brit1612's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Yes, I completely agree!! And I suspect an immunologist might know more about an autoimmune disease like celiacs than a gastroenterologist.
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	  ARCHIVED New Member. My Daughter Has Celiac Disease?murphy203 replied to Jackyvh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I hope she starts to feel better soon!! The gluten-free diet isn't something I would ever volunteer for, but it is surprisingly manageable i this day and age, and I think its a bit healthier -- mainly because processed food and fast food are less accessible. Wishing you both the best.
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	  ARCHIVED Endoscopy Necessary?murphy203 replied to ginarino's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I wouldn't -- there're newly widely publicized risks with endoscopies because the tubes are hard to sterilize. Its one more procedure you proabably don't need while you deal with the thyroid situation, and the blood tests are very specific. You are the first person to report heartburn and acid reflux as a primary symptom since I've neen here for the past...
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	OMG following up on the gluten-free dinner I made: my husband has had an EXTREME gastro reaction to the gluten-free food I made, symptoms like food poisoning. Five trips the the BR so far. The kids and I are fine. Anyboday experience something like this????
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	lol, some good husband revenge recommendations above, which he probably would deserve if he wasnt so CLUELESS! And some good advice. Tonight I made italian meatballs with gluten-free breadcrumbs, gluten-free pasta, and nobody died -- imagine!!! Barilla gluten-free penne pasta seems to defy the laws of nature and actually tastes normal, especilly smothered...
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	  ARCHIVED Help With Positive Blood Work & Negative Biopsymurphy203 replied to CeliacMommaX2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms CM, my experience with a consult at a specialty center (Hopkins neurology, in my case) is that you need to be referred by another specialist, and once you are there, they move VERY quickly and thoroughly as a team to get you answers. It will restore your faith in the medical community :-)
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	Thanks for the support, guys. I definitely have hit a rough patch, but today is a new day, and its the weekend to boot! Yesterday's salad was actually delicious, and I made a frozen Amy's pizza for myself for dinner -- it was pretty good! I ended up with stomach issues in the middle of the night again -- three times so far, each time after I had a gluten...
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	in my 4th week and seriously struggling. Today I had a salad with chicken when the other peeps in our meeting ordered PIZZA and from a place that offers gluten-free pizza with no gaurantees about preparations. It was tough to not: 1) order a gluten-free pizza and hope for the best 2) eat with the rest and test whether I will actually have symptoms (at ...
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	  ARCHIVED Am I Crazy, Sorry For The Long Post....murphy203 replied to aliciahere's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms What CL said! I started with anemia, too, which led ultimately to a diagnosis of celiac disease. Please do take the anemia seriously -- I didnt, and suffered its symptoms needlessly. A HEAVY dose of iron supplements and a relatively quick diagnosis of the underlying cause have my #s moving in the riht direction. Best wishes in your journey, and is Alzheimers...
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	  ARCHIVED Help With Positive Blood Work & Negative Biopsymurphy203 replied to CeliacMommaX2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I know the ped GIs are not overly plentiful, but you really need a new one!
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	  ARCHIVED Really Bad Gluteningmurphy203 replied to Kfrog's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease I had something similar a few months ago -- horrific vomiting and diarrhea for several days, I suspect it was norovirus. Primary care seems like the right place for you to be going. Good luck!!!
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	  ARCHIVED Gluten Reintroduction Before Doing Cyrex Labs Testsmurphy203 replied to Mixy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Good -- and ditch the piece of bread and have yummy stuff like donuts!!!
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	  ARCHIVED New And Feeling Awfulmurphy203 replied to faiths13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Yes to what celiacandme said --get tested, both for you and your children, because this condition is passed along to our kids (and parents, LOL).
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	  ARCHIVED Gluten Reintroduction Before Doing Cyrex Labs Testsmurphy203 replied to Mixy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms So Mixy, it sounds like you need conclusive diagnosis at this point, which I can completely understand -- going gluten-free is a big burden from my persepective three weeks in. The realities of going really gluten-free shouldnt be dismissed or minimized -- it IS tough to turn away from donuts and office treats, and to order "special" foods when you are out...
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	  ARCHIVED Beer Can Chuckenmurphy203 replied to murphy203's topic in Gluten-Free Recipes & Cooking Tips And by Chucken, I mean chicken. Although I do believe MURPHY (my adorable puppy) is in a smoke enduced euphoria, regardless of your answers :-)
 
        