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lonewolf

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Latest Celiac Disease News & Research:

Everything posted by lonewolf

  1. lonewolf
    I know that this isn't what your post is all about, but found this interesting. I had a similar thing happen to me about 3 years ago - was kept in the hospital for testing, even though I knew my heart was fine. When I asked if it could be related to my diet, thyroid problems or something they acted like I was insane. (I already was avoiding wheat, but...
  2. lonewolf
    Good question. I'm wondering if I should take my PCP's recommendation to see a GI. And I was wondering what I would ask if I did go in. The obvious questions for her would be to ask if she is familiar with all the other food intolerances that often go along with Celiac, ask about the medications you're on, discuss your specific symptoms (writing all of...
  3. lonewolf
    I cook almost everything gluten-free, dairy-free, soy-free (and egg-free). Our menu this month has Black bean soup, Curried Chicken (coconut milk instead of yogurt), Roast chicken, tacos, "Porcupine" meatballs, baked potatoes with toppings, Chicken and rice soup (homemade), Chicken Caesar salad, Lentil soup, Tostadas, Spaghetti and meatballs, Hamburgers...
  4. lonewolf
    I've been reading posts here for a couple of months now about all the different types of prepackaged gluten-free flour mixes. I have not bought any because of the cost. I use the Bette Hagman recipe and have really good luck with almost everything, but I'm wondering if the prepackaged mixes would work better for certain recipes. So, for those of you...
  5. lonewolf
    My husband used to work at Wendy's (a long time ago, granted). He says that there's no way it's gluten free. Cross contamination issues. Liz
  6. lonewolf
    Do you mean Rheumatoid Factor or Sed Rate? I thought that the RF was either positive or negative, but the sed rate has a scale. Liz
  7. lonewolf
    I don't know all the science behind the tests, but I do know they are controversial. Another thing I know for sure is that when I had the whole panel done almost 10 years ago it was VERY accurate for me. I had already figured out that wheat and dairy were bothering me, started to suspect soy, but wasn't sure of anything else. I scored high on wheat, gluten...
  8. lonewolf
    How about, "If you eat just a tiny bit of it everyday you'll build up a tolerance for it". My father in law meant well, I'm sure. Liz
  9. lonewolf
    I just realized that my son's bedwetting is back. It just took a 2 day vacation. He has been totally gluten-free - he's even been responsible at school, which is the only place he's gone besides home. I'm happy about his improved attention span in class and my husband has noticed that he seems more calm in the evenings, but I was hoping that the bed-wetting...
  10. lonewolf
    Hmmm, I hadn't thought of this. Maybe a possiblity. He is doing a little better today. His teacher told me after school that he is "a completely different child this week". He didn't complain too much today. Although who could with pancakes for breakfast; a chicken sandwich, pretzels, gluten-free snack bar, etc. for lunch, a huge Nana's cookie for a...
  11. lonewolf
    I remember that my toes were swollen. And I had a problem with one toe on my right foot a couple of years earlier, which they thought was gout at first, a fracture and then "some type of arthritis, possibly". Are you following a restricted (besides gluten) diet now? Liz
  12. lonewolf
    Mine came on slowly at first - aching in my feet, especially after exercise, then aching all the time. Then my shoulders, knees, hips and back. At first it was only bad in the mornings, then it lasted longer. On Easter Sunday 10 years ago I woke up and couldn't get out of bed without help. My feet were so swollen that I couldn't get shoes on and we couldn...
  13. lonewolf
    I really respect each person's right to choose their own treatment, I am not judgemental about that. I do totally understand how painful Psoriatic Arthritis can be. I was basically crippled, we were pricing electric wheelchairs. I could not care for my own children - my mom or mother in law had to come each day for months or my husband would stay home....
  14. lonewolf
    Pelmini is very similar to perogy. You can make it with the same dough. I'm sorry I can't figure out how to post a link, but do a search for Pelmini or perogy and it will come up. Very simple dough.
  15. lonewolf

    ARCHIVED Hiccup

    lonewolf replied to elisabet's topic in Coping with Celiac Disease

    I've also heard that hiccups can be a sign of an acid/alkaline imbalance. I used to have hiccups all the time, and even "hics" once in a while without the whole thing. I started taking a teaspoon of apple cider vinegar in water about 5 times a week and they pretty much went away. I know this sounds weird, but it worked for me. Liz
  16. lonewolf
    I'm glad my "suffering" can be used to help others. My gene test came back negative for Celiac, but I KNOW that I can't handle gluten. So even if his tests don't show anything it would be a good thing to avoid. My kids' pediatrician (regular MD) said that most people would be much healthier if they eliminated what and dairy from their diets, so that's...
  17. lonewolf
    From numerous people, the latest last month from a co-worker. When trying to explain that I can't eat anything with wheat in it, she says, "Can't you just eat white bread?" Another one that I've heard numerous times. "I'd just take some pills like those lactose pills for milk and eat anything you want." And there's always, "Oh come on, can't you just...
  18. lonewolf
    Jenvan-Please encourage your dad to avoid the methotrexate. A wonderful woman at my church, my bible study leader actually, had horrible arthritis about the same time as I did. We laughed because she was "old" (in her 60's) and I was young and we both walked like we were 90. She opted for the methotrexate, I opted for the dietary changes. Maybe it was...
  19. lonewolf
    I was diagnosed with Psoriatic arthritis about 10 years ago. I am also gluten intolerant. You might want to check into the possibility that you have other food intolerances. Also, try to get off the methotrexate. It can mess with your DNA as well as other nasty side-effects. I eliminated wheat/gluten, dairy, eggs, soy, nightshade vegetables, bananas...
  20. lonewolf
    I've been wheat free/mostly gluten free for 10 years, since he was just a baby. He is used to all the gluten-free food, because I make it every day. He is allergic to milk, so he is used to having some restrictions. We already don't go to McDonalds or eat much fast food - our favorite restaurant is the health food store deli. He has surprised me with...
  21. lonewolf
    Don't precook them or add extra water. Just layer them like regular noodles. They'll be plenty moist already. They shouldn't be too hard to work with. Make sure you don't skimp on the xanthan gum, but don't overdo it either. Let me know how it works! I've made the dough into pelmini (ravioli) and boiled noodles with butter, but not lasagne yet. Good...
  22. lonewolf
    Nuts can just be plain hard to digest. As for peanuts and joint pain, they contain something called Arachodonic acid, which can cause or make worse inflammation. Peanuts also contain a lot of mold - even organic ones. They make lots of lists of "foods to never eat". Liz
  23. lonewolf
    My 10 year old son has had many symptoms of Celiac or gluten intolerance. His celiac panel came back negative, but I decided to try him on a gluten-free diet anyway. It's only been 3 days, but I'm seeing some improvements and his teacher commented yesterday that he had a really good day - he has had attention problems. And he hasn't had a bedwetting accident...
  24. lonewolf
    I posted a recipe for homemade pasta/pelmini (russian ravioli) in December. I'm sorry I can't figure out how to link to it. If you do a search for "Homemade pasta" or "Pelmini" you should find it easily. This dough works great for making ravioli, so it should work for lasagne too. I have served it to gluten eating people and they have liked it too. ...
  25. lonewolf
    So, what was the recipe? I'm still, after 10 years, trying to find a decent homemade bread that doesn't have eggs in it. I'm thinking that it's impossible, but I still hope...
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