
StClair
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Everything posted by StClair
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ARCHIVED Test Results--Confused
StClair replied to StClair's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't know what I would do without you guys! Thanks for the replies. Even though my doctor has not responded, I feel much reassured now, thanks to you. I'm not scheduled for the hydrogen breath testing for another month, but I guess I can wait until then to get an official word on these test results. Hoping of course to be feeling better by then, at... -
ARCHIVED Test Results--Confused
StClair posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Five weeks post-diagnosis and my doctor ran some tests. No h pylori, thank goodness, but according to my online chart two blood tests came out with concerning results. I've asked for clarification, but no response yet. My Vitamin B-12 is abnormally high, 1222, and my Alanine Aminotransferase is 33. The maximum numbers for this one are controversial, according... -
Everyone else has said the important things so well that I will only add a couple of things, as a fellow newly-diagnosed celiac. It has been about a month now, and I think I'm just now starting to get a little feel of how to handle the diet and precautions. Great advice to stick to whole foods, which I have tried to do. I look upon packaged gluten-free...
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I'm just starting Source Naturals Essential Enzymes and will check in after a few days to report results.
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ARCHIVED How Strict Do I Need To Be With My Diet?
StClair replied to von's topic in Coping with Celiac Disease
I am extremely careful. Just this evening I had made myself a nice split pea soup, and my brother helpfully stirred it with a wooden spoon that I thought may have stirred a pot of pasta in the distant past. No split pea soup for me! I take no chances, because I don't want to have to guess about where my symptoms are coming from, and I have enough problems... -
ARCHIVED Quinoa Oh No-a Should Have Said Whoa To That Quinoa
StClair replied to chasbari's topic in Coping with Celiac Disease
This is so timely for me to read! I've been improving rapidly, one month diagnosed and gluten free and starting to feel like my old self. Yesterday I had a small drive, three hours round trip, so I had a huge helping of nutritious quinoa for breakfast. By the time I arrived at my destination I wasn't feeling so well. The #%&$ heartburn was back,... -
ARCHIVED Headaches
StClair replied to blahblah's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm three weeks out from diagnosis, and my headaches have improved dramatically. One of my familiar headache triggers over the last 25 years has been vigorous exercise in heat. If I avoid that, I avoid a lot of headaches, so I really understand about the walking. I will not eat out at a restaurant at all at this point and don't know if I ever will again... -
ARCHIVED Celiac And Gerd
StClair replied to StClair's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Good point on the soy. I'll try to dispense with it and see. Thanks. -
This is a huge problem for me to figure out . At this time, I don't know what I'm going to do, but I'm grateful to get the facts here. I will research different types of feed and be sure about wearing the mask for now. Thanks.
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ARCHIVED Another Pots And Pans Question
StClair replied to dania's topic in Coping with Celiac Disease
I see that many are using separate sponges on their separate pots and pans. I have not done this (reasoning that it all rinses off), and now I'm concerned that I could be taking on extremely small amounts of gluten. Is there a consensus about separate sponges? -
ARCHIVED I Want To Tell You All Thank You
StClair replied to MycasMommy's topic in Coping with Celiac Disease
This board has been a HUGE help to me too, and I'm so grateful. I'm really touched by the generosity of those who have come a long way in the journey and come back to help those of us who are just starting. Even though I don't post every day, I too come to visit every day. You guys are the best! Thank you again for being there for us newbies. -
ARCHIVED Celiac And Gerd
StClair posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am now three weeks post-gluten and enjoying some real improvements in my health. The migraines have almost disappeared, and the bloating is 90% better as long as I avoid sugar and dairy. Anxiety is also noticeably improved. What has not changed as quickly is the acid reflux pain that initially got me started on the road to the celiac diagnosis. I realize... -
ARCHIVED Celiac Disease And Mental Disorientation And/or Vertigo?
StClair replied to StClair's topic in Related Issues & Disorders
Minnesota, yes, wasn't it strange? They thought I was having a stroke or a brain tumor, but I kind of knew I wasn't. The whole thing is pretty fascinating, but worries about lurking problems and lingering fatigue do take a bit of a toll at this point. When I get the energy, I'm sure I will be marveling at how so much of my weird health history makes sense... -
ARCHIVED Celiac Disease And Mental Disorientation And/or Vertigo?
StClair replied to StClair's topic in Related Issues & Disorders
Cyclinglady, you are SO lucky to have a gluten-free household. My biggest fears are traces of Raman noodle water adhering invisibly to something and dishwasher sediment, so I wash everything twice, once right before I use it. One son just tested negative, and the other will test in a couple of weeks, so fingers crossed there. Your husband's snoring experience... -
ARCHIVED Celiac Disease And Mental Disorientation And/or Vertigo?
StClair replied to StClair's topic in Related Issues & Disorders
Sounds very similar. It is tempting to think of every little thing now as a celiac symptom! I wouldn't have had this hangnail if I hadn't eating gluten for decades, ha, ha. But it is kind of amazing to think that the migraines, the osteoporosis, the joint pain, the anxiety, all had a common link. Now if I could just get over the fatigue, I'd have enough... -
ARCHIVED Celiac Disease And Mental Disorientation And/or Vertigo?
StClair posted a topic in Related Issues & Disorders
Sorry to ask yet another question! About a year ago, I was in a meeting at work, and suddenly I did not know where I was. In an environment as familiar as my own home, I had to piece together clues, unsuccessfully, to figure it out. I had no idea how to get back to my office, and just started walking, hoping to get there by instinct, which I did. When... -
It's an eye-opener how little research there is, unless I am not looking int the right places. I guess there are not enough of us to justify funding. My curiosity is intense, but I guess I'll have to get used to not understanding certain things. Not the only area of life this is true for, I guess. I'll take the improved heath, though, whether I understand...
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I was diagnosed with celiac disease after a chain of events which started with GERD, food sticking half-way down and an upper endoscopy. When I asked the doctor if the GERD had anything to do with the celiac, she said, "it has everything to do with the celiac." Three weeks guten-free, and it is finally improving. We are all unique, just my recent experience...
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I hope I can ask this clearly. Do migraines, joint problems, osteoporosis, anxiety (I'm newly diagnosed celiac and have all of these), and the like, all come from gut problems, malabsorption, etc? In other words, since gluten causes an autoimmune reaction in the intestines, does it also get into the bloodstream and cause an autoimmune reaction in the brain...
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The issue of feeding horses, in my case twice daily, with a gluten containing feed came up on a previous thread, and several suggested that I start a new topic. The two biggest issues I see are breathing the dust and getting it on my clothes where it can be transported back home to further contaminate anything it might settle on. I'm going to wear gloves...
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ARCHIVED Three Weeks Post-Gluten--Joys And Concerns
StClair replied to StClair's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I feel much better after reading these responses. Thank you! Just today I started B-Complex. Hope it works for me like it worked for you, badcasper. Best of luck to all. -
I was thinking mostly in terms of accidental ingestion of gluten after the system has healed. Believe me, I do not foresee ever knowingly eating it again. Today I realized the horse feed I'm exposed to twice a day has something in it called "wheat middlings." I'm afraid of either breathing the dust or getting it on my clothes and transferring it to food...
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Are there degrees of sensitivity, such that some can tolerate these tiny amounts and some can't? I'm just curious, wondering for the future, after I am healed.
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ARCHIVED Three Weeks Post-Gluten--Joys And Concerns
StClair replied to StClair's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks so much. That is reassuring. Sorry I have to hear it multiple times! As you said you felt at three months, what I am really afraid of is that my long, long undiagnosed celiac has caused something grave, and that my current symptoms belong to that rather than just healing the celiac damage. Hearing your experience, and others, is so helpful, thanks... -
I just wanted to chime in about the fatigue and sleeping. At only three weeks gluten-free, it is a big deal for me too, so I wanted to extend cyber wishes that you feel better really soon. Best of luck to you.