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sdlane

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Everything posted by sdlane

  1. sdlane
    By inflammation marker, do you mean the C-reactive protein CRP test? Mine dropped from 17 to 10 when I went gluten-free. Acute inflammation is 5. I demanded a referral to an allergist because I'm super gluten-free strict, but I was still feeling terrible. Turns out I'm allergic to almost everything but wheat. Go figure. A severe reaction to peanuts...
  2. sdlane
    I appreciate the input...thank you! Never head of the pumpkins seed powder...gives me something to google while waiting for my doctor to grace me with his presence. He's always about 2 hours late for my annual appointments. lol Have you seen CeliAct before? They stink and are hard to swallow, but I thought it might be worth a try. It seems to have almost...
  3. sdlane
    I have been gluten-free for 13 months since my Celiac diagnosis via blood test & endoscopy...like freakishly good about things. I'm a changed my makeup & hair products, google-the-crap-out-ofeverything-before-I-eat-it kind of compliant gal. Anyhow, I had Graves Disease and had my 7" long dead thyroid removed in 2010. I also have gastritis that was...
  4. sdlane

    ARCHIVED Advice

    sdlane replied to Mortiis's topic in Traveling with Celiac Disease

    I was in Zambia, Zimbabwe, Botswana & South Africa this summer, with very few problems. I brought a ton of Kind bars, Justin's peanut butter packets and Costco beef jerky just in case! I get the Kind Bars and Justin's on Amazon Prime. Africans eat a lot of meat (try the Kudu, it's awesome!) and veggies. Stay away from sauces. I don't recommend eating...
  5. sdlane
    Not sure where you're located, but I've had great success with the protein style burger at In-n-Out (with ketchup and mustard instead of the secret sauce) and fries. You MUST tell them he's a Celiac, so it's made with fresh gloves in a different part of the kitchen. Fries are usually safe as they don't have any other products in the fryer that contain gluten...
  6. sdlane
    These fools yell at me when I eat my safe gluten-free food in the Club Lounge, where nothing is labeled safe to eat. The only gluten-free thing they certify is their Bloody Mary mix. I kid you not! lol. Anyhow, I quote Section 3 of the ADA, but to no avail. I am going to write a nice letter and send it to the Chicage headquarters with my concerns. Case...
  7. sdlane
    Thanks for the replies! I changed from Synthroid to Tirocint for my thyroid meds because Synthroid's filler has gluten. My Cytomel was ok. Today I found some raspberry flavored sublinguals for the B12 and drops for the D3. The gal at the health food store said the drops could be put on my skin to be absorbed that way. Healing commence! lol
  8. sdlane
    I am recently diagnosed and just got my labs back ahead of my first post-diagnosis appointment in two weeks. I'm deficient in B12, D, magnesium, zinc, and more....the only thing that's ok is my calcium, which is funny because I had several parathyroids removed when I had my thyroid out five years ago. Anyhow, my question is this. I can take all the supplements...
  9. sdlane
    So I ended up with plenty of antibodies. Got my labs back this week. Thanks for your replies. The GI I see at University of California, San Francisco also ordered a colonoscopy. That was fun..not! Maybe that was to rule out Crohn's? Regardless, it's official.
  10. sdlane
    I agree with Runner.....DO NOT STOP EATING GLUTEN. In fact, eat more. Sounds like a primary care physician told you all this? Demand a referral to a Gastroenterologist and get that endoscopy....but have it done a few months after you've started eating gluten again. Knowing or not knowing is truly a life or death decision. I had 12 biopsies and was diagnosed...
  11. sdlane
    I had an endoscopy last month which show be to be a Marsh 3a category. I'm gorging on gluten until the end of the month to make sure I'm fully glutenated (is that really a word?? lol) so the antibodies are heavily present and I don't get a false positive. In terms of moving forward, I will obviously cut out the gluten once I'm done with my challenge. ...
  12. sdlane
    When I feel I'm about ready to let loose on some idiot at work, I go to a quiet place for 10 minutes and do a meditation with my Headspace app...basically just guided breathing exercises. I downloaded it from the iTunes store onto my iPhone. I also listen to it with my sleep mask on at night when my mind is racing too much to go to sleep. I'm always out...
  13. sdlane
    Me again...a lot of doctors don't know much about, or like, Cytomel. Make sure your doctor adjusts your thyroid meds based on your symptoms, not just your labs being "in range." Range means nothing when you feel like crap. I keep my T4 high and my T3 in the middle...that's when I feel the best and not all lethargic, with symptoms as you were describing...
  14. sdlane
    Hi Tiger, Yes, your thyroid meds may contain gluten in the filler, not the actual medicinal component itself. Pre-Celiac diagnosis, I took Synthroid 225mg and Cytomel 25mg. The Synthroid brand name does contain gluten in the filler, whereas the Cytomel does not. The filler is the actual white (or colored) substance that you would call the "pill...
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