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cstark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cstark

  1. What people have describing is seems to be happening my left leg. It's almost a pulsating buzz and it varies in severity. It is such a weird feeling. This has been fairly recent. Like maybe three to four weeks.
  2. This detox program I am on is all natural stuff. The "they" I speak of is an office called "Center for Healing and Wholeness". The staff at this office take healing through homeopathic remedies and each staff member is certified in their specific fields. There was even a nurse practitioner who was certified in Healing Touch. The nurse is who I heard of...
  3. EMK, I am with you that my neurological symptoms flare up and become more susceptible every two weeks. It becomes rather monotonous and frustrating because then everybody knows that time of month for me. I try to hide the symptoms, but sometimes they just say "HI!". Pbbbt! In addition to going to gluten free as this was found to be a HUGE trigger...
  4. I am sorry to hear that the muscle twitching and cramps have increased. It's hard when you see symptoms either persist or increase after going gluten-free. Your body is adjusting to the change. Someone in this forum stated it's a form of detoxification, and it's going to take time. The results to be seen are going to be more long term rather than short...
  5. So, now they have found a metal toxicity in my body along with needing to be gluten free. For the toxicity, I am now taking supplements after and between meals. This a good thing because it prompts me to actually eat 3 meals a day and in a timely manner and not just a grab on the go item whenever. The down side is remembering to take the silly things....
  6. It's tough and scary when you find you have to go gluten-free for health reasons and not just a fad. That first episode hit hard and fast leaving me in a whirlwind of dust. I was in survival mode for quite some time. The doctors all kept telling me "You are fine. All tests came back normal". HAH!! As a last straw, my mom asked if I would be willing...
  7. I'm not able to do much dairy, so I use almond milk as part of my breakfast. You can use it as a substitute for cow's milk for pretty much anything.
  8. Don't think there's much of a chance living in North Dakota to meet an Indian.
  9. Kenlove, Are you familiar with the different doshas? If so, what does it mean having a high dosha?
  10. Never even thought about passing out or about to pass out being in the myriad of symptoms of Glutenized. Before the first episode last year to this date, there were a couple of times I was about ready to ditch it. Got that "fuzzy" feeling, not really hearing anything, and tunnel vision. One of the times, I was up in the choir loft during church. Wasn...
  11. I am starting to train again for a 5k run in April. So we'll see.
  12. They wanted me to, but back then didn't see a need as I was not having any digestive issues going on. Even you advise to go on a gluten challenge for the biopsy, I am not going to do it because of the severe reactions I have due to the gluten. Eating gluten will send my symptoms into hyperdrive for the entire time, and I am sorry I cannot and will not risk...
  13. Is anyone familiar with ayurvedic diets? Would like some input. Thanks.
  14. It could very well that you are catching a bug making your body more susceptible to whatever your body is reacting to. First of all, hang in there. It will get better. Secondly, because you have been gluten free for a while, your body may have gotten a smidgen of gluten and is kicking it out as fast as possible. For me, it was over the weekend. I...
  15. It will be a year from tomorrow exactly.
  16. Is anyone finding it difficult to return to activities they once enjoyed before the gluten attacks?
  17. It will get better. The body is just getting started on a healing and detoxing process both at the same time. The body has been used to coping with the gluten your system, so it will take a while for symptoms to improve. It is a long term process. The longer you go gluten-free, the more and more you will feel better and the more good days you'll have...
  18. (I read in a recent post of stress being a major factor in the onslaught of symptoms. Due to this not being the general topic of that post, I am creating one on stressors as part of the beginning symptoms.) I guess I didn't realize how much stress actually played in the first signs of showing gluten intolerance. The year before I was showing symptoms...
  19. Okay, everybody. Here's the thing. I have been brain wave tested, neuro-tested, thyroid tested, and ALL the doctors said everything is "normal". Whatever that is now. One thing I now know is that I have a brain. YIPPEE!
  20. Your body has been used to ingesting and has been coping with the gluten in its systems. DON'T PANIC because your body is doing it for you. Seriously now, the medical field has a technological term defining when a system is used to working a certain way/routine. When that is either disrupted or changed, it could take a while for the body adjust to...
  21. Just don't give up. Good luck and best wishes to you. Let me know how it's going for you. Been there, done this. It ain't fun.
  22. Over the past month or so, I have been have a fuzzy feeling in my left ear canal. The best I can describe is it feels like there is a bug in my ear, but when ear is checked, no bug but the fuzzy stays. Any ideas? Or is this one of those strange neurological symptoms from gluten? Please don't tell me you need to get ti checked out, because all the doctors...
  23. First of all, welcome to the forum! it's good to have you here. Secondly, I can really relate to the fatigue portion. it really hadn't affected me until everything hit the ceiling medically for me. I was constantly tired all the time, and waking feeling rested in the morning. Prone to depression and anxiety, definitely. It drove me nuts for those...
  24. I was not officially diagnosed with narcolepsy when I was younger and still haven't. However, even in my junior high and high school years and on through my college years staying awake was always a struggle for me. maybe the gluten was a factor back in junior high and just didn't realize it. There were times in church and other times I would just BAM...
  25. It's great to hear from you, Nightsky. Glad to also hear of your steady progress. Living gluten free is definitely a learning process, and even the baby steps are times to celebrate. Wish you all the luck in the world as you continue to heal for the glutenization.
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