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Sara789

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sara789

  1. Sara789
    Medical Celiac Centers: UCLA Digestive Diseases Celiac Disease Program (Los Angeles, CA): Open Original Shared Link Mayo Clinic (Phoenix/Scottsdale, AZ; Jacksonville, FL; Rochester, MN): Open Original Shared Link Beth Israel Deaconess Celiac Center (Boston, MA): Open Original Shared Link University of Cicago Celiac Disease Center (Chicago...
  2. Sara789
    @TexasJen - I'm so glad you got a diagnosis, but I'm sorry your GI hasn't helped you more than "see you in 1 year." My GI was terrible, despite being listed as a "Celiac GI Specialist" on the Celiac Foundation website. She just stared at me when I asked questions and told me erroneously incorrect information about celiac (incorrect according to the 5 books...
  3. Sara789
    @ironictruth - Thank you for the information! I think this can help a lot of us who are interested in finding medical professionals knowledgeable about celiac disease and the myriad of complications that can be associated with it. Good luck with your visits. I hope you find the answers you need to feel better. I tried to find a place that already had...
  4. Sara789
    PLEASE HELP. I'm not getting the care I need locally and am planning a trip to a celiac center. 1.) What celiac center did you go to (Mayo Clinic, Univ of Chicago Medicine Celiac Disease Center, Beth Israel Deaconess Celiac Center, etc)? 2.) Why did you pick that celiac center over the others? 3.) Are there any doctors you recommend...
  5. Sara789
    @cyclinglady- Thanks.
  6. Sara789
    Hi Rebeccalee, It's so frustrating to be dismissed by the people who are supposed to be helping us. I'm sorry. I haven't been gluten-free as long as you, but I'm dealing with this too. I went to a very basic diet when I was diagnosed but foods that were fine are now giving me trouble. Fruit and sweet potatoes to be specific. There's a hydrogen...
  7. Sara789
    Will being on a SIBO diet mess with a future hydrogen breath test?
  8. Sara789
    Hi hiddenbutterfly, Welcome! Have you been tested for anything? Have you seen a doctor about this? If not, my suggestion is to keep eating gluten and get the celiac blood panel and upper endoscopy biopsy (if needed). Finding out what medical problems you might have is important, sometimes imperative, to getting the right treatment. I...
  9. Sara789
    Tax Deductions for Celiac Disease Certain expenses for being on a gluten-free diet can be paid for through a Health Savings Account (HSA) or Flexible Spending Account (FSA), or can be itemized on a Form 1040, Schedule A for your taxes. Some expenses include the difference between gluten-free foods and the same product that is not labeled as gluten...
  10. Sara789
    Hi Mandy, Welcome and I'm sorry you're having such a hard time of it. I felt completely dumped/abandoned/etc by the health care professionals I went to for help. This forum has been so helpful. It's still hard, but the people here share their experiences and knowledge to help others. Keep advocating for yourself and learn as much as possible...
  11. Sara789
    I'd also be interested in WHERE people buy things: Online, local grocery store, etc?
  12. Sara789
    UPDATE I'm 0 for 3. Order #1 from Amazon Vendor: Website lists no wheat. Received product that listed it was manufactured in a facility that also manufactures wheat. Took a while, but vendor refunded my money and didn't ask for me to return the product. (Thought maybe it was an old batch I got with an outdated label) Order #2 from Amazon directly...
  13. Sara789
    @Ennis_TX - Thanks! I'll have to try something else. I ordered the product and got another one that listed it was manufactured in a facility that also manufactures wheat.
  14. Sara789
    UPDATE I was contacted by the vendor by email stating that I could return the product for a full refund, but I would have to pay for the return shipping. I emailed them stating that the product they sent me was different than the product advertised on the website and included screen shots and pictures of the product. I also stated that I had celiac disease...
  15. Sara789
    @Poodle<3 - I'm sorry about the trouble with your family and your symptoms getting worse after going gluten-free. My symptoms got extremely worse after going gluten-free: brain fog and brain issues that felt like I had suffered a concussion, burning bone and joint pain, etc. It was strange. After about 1 month on the GFD, I finally started to feel better...
  16. Sara789
    Today (1/30/17) I called OraLabs (1-800-290-0577; oralabs.com) and asked their customer service rep if their lip balm was gluten-free, and if their manufacturing facilities may have any cross-contamination issues. The rep quickly responded, 'Good news for you! All OraLabs products are made with gluten-free ingredients, are gluten-free, and are manufactured...
  17. Sara789
    On Jan 22nd, 2017 I called Neutrogena/Johnson & Johnson Customer service about their product Neutrogena Norwegian Formula Hand Cream Fragrance Free The customer service representative said that there are no gluten ingredients in the product. She also said that there is only 1 plant that makes this product, which is in the USA (she did not have...
  18. Sara789
    On Jan 22nd, 2017 I called Neutrogena/Johnson & Johnson Customer service about their product Neutrogena Ultra Sheer Dry-Touch Sunscreen 100+ The customer service representative said that there are no gluten ingredients in the product. She also said that there is only 1 plant that makes this product, which is in Los Angeles, CA, and that they...
  19. Sara789
    @Jmg - I'm so sorry you got glutened. Not knowing the source drives me crazy, so I feel your pain and frustration. I do what GRinDC suggests and go back to basics and reintroduce items one by one. I also keep a food journal to track my progress. It's a pain, but it's come in handy figuring things out and dealing with intolerances. I hope your "friends" leave...
  20. Sara789
    @cyclinglady - Thanks for the information. I'll have to check out the links. Different answers for the same questions make being gluten-free so challenging. I cannot take ibuprofen or aspirin due to a sensitive stomach. Tylenol isn't the best pain reliever, especially when I'm experiencing inflammation pain, but it's the best I can do. My pre-diagnosis...
  21. Sara789
    Thanks icelandgirl & Ennis_TX. Hopefully more people will respond. @icelandgirl - Congratulations on your 3 year GFD anniversary! It's good for me to read the different responses. I was really upset (and still am) about getting glutened after 1 month. I was finally starting to feel better and get some energy. I'm also upset because it was in...
  22. Sara789
    I'm not a trained medical professional, so take this with a grain of salt. It looks like you have some nice normal coloring: the light pink bubblegum color. Inflammation would be the red color. It looks like you have some radial red streaking and red blotches. If he will send your your original pictures, then you can see how much pink/red coloring...
  23. Sara789
    It's hard to figure out. I'm hoping some of my intolerance will go away after my body heals. I miss nuts and cow dairy. I was recently diagnosed and cannot have cow dairy, but goat cheese and goat milk yogurt aren't a problem. I can't eat nuts or nut butters, but beans are fine. Nuts and beans are both harder foods to digest, but beans don't bother...
  24. Sara789
    CONGRATULATIONS! Sending a big, imaginary gluten-free cake your way!
  25. Sara789
    I called Tylenol/Johnson & Johnson today (1/23/17). Customer Service told me that only Tylenol 8 hr Arthritis is gluten-free. She also told me that they are launching a new product that is also gluten free: Tylenol Extra Strength Rapid Release Liquid Gel Caps. She said the new gel caps aren't available in all areas yet, but will be available nationwide...
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