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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    PN is a common spinoff for celiacs and also for some with NCGS. It may be the result of nutrient deficiencies or some more direct toxic effect of gluten in the nervous system. We don't really know what the connection is in many cases. There is a lot we don't know about the negative impact mechanisms of gluten on our systems if we have intolerance/sensitivity...
  2. trents
    Have you been checked for anemia? You should probably be on a B-complex, Magnesium glycinate, D3 and zinc. Make sure all vitamins and supplements are gluten free.
  3. trents
    Welcome to the forum, Lizi! Have you looked into SIBO or candida infections?
  4. trents
    The EMA test is highly specific for celiac disease but it is an expensive test and is kind of a last resort of many docs. It is normal to not be positive on all celiac blood tests.
  5. trents
    It is a misconception that if you have NCGS instead of celiac disease that you can be more lax about gluten, IMO. And with the ambiguity of your test results to this point, you may never have a clear answer until you go all out on eating gluten free if you intend to do a gluten free trial. Minor amounts of gluten allowed will likely sabotage the experiment...
  6. trents
    All of those symptoms and the low lab values are classic for celiac disease and the malabsorption problems that it creates. You could also trial a gluten free diet for say, three months, and see if your symptoms start to improve.
  7. trents
    Have you checked the ingredients on the package? Many gum products use wheat starch and if you don't see wheat as an ingredient I would assume it would be safe. You could also contact the company and ask relevant questions about gluten in their products.
  8. trents
    HLADQ6 has recently been linked to celiac disease as well.
  9. trents
    Welcome to the forum, monika.m! I would certainly seek a new GI doc who will do a more thorough job of sampling the small bowel lining. We recommend at least 4 samples be taken each from the duodenum and the duodenum bulb. Damage can be patchy. Your positive DGP IgG indicates you may have celiac disease but it is not as specific for celiac disease...
  10. trents
    Hello, Mary Jean! We now know that the antibody tests used to detect celiac disease are more reliable on people of white European descent. They miss 80% of people who actually do have celiac disease who are of black African descent. That racial difference in the testing accuracy may be largely responsible for the original thought that blacks do not get celiac...
  11. trents
    Thanks for the information, Ginny. My wife loves Arby's and it's nice to know that I possibly can eat there wither her. But I would point out that the presence of gluten free menu items in any restaurant not dedicated to gluten free eating does not rule out the possibility of cross contamination in the cooking and handling of the inherently gluten free food...
  12. trents
    In the UK, if the tTG-IGA test score is 10x normal, physicians will commonly declare a celiac diagnosis without the followup endoscopy/biopsy of the small bowel lining. Otherwise, a positive tTG-IGA will likely result in a referral to a GI doc for an endsocopy/biopsy which can take many months where you live.
  13. trents
    Where in the world do you live? Does your medical system allow you to request tests beyond the bare bones testing that is normally done for celiac disease? Some medical systems, such as that in the UK, are very rigid in that sense. The reason I'm asking is that many primary care physicians will only order one diagnostic test for celiac disease, namely, the...
  14. trents
    Welcome to the forum, Moviegeek13! You absolutely can have celiac disease and be overweight. I'm one of them and there are many others in the celiac community who fall into this category. Although it may be true that it is more common to be underweight than overweight in the celiac community, it is a common misconception that if you have celiac disease...
  15. trents
    I don't see how skin to skin contact with a person eating gluten could cause a gluten reaction in another who has gluten intolerance/sensitivity. When gluten is ingested, it is broken down into simpler proteins in the digestion process and is no longer gluten. Certainly, it would not reconstruct itself and show up as gluten on the outside of the skin. I would...
  16. trents
    Suzej1911, welcome to the forum! Most people who have been diagnosed with celiac disease have had gastroscopies, aka, endoscopy. It is the usual, second step, of diagnosis. In the USA it is normally done under conscious sedation so there is no discomfort.
  17. trents
    Prince, you might want to also look into SIBO (Small Intestine Bacterial Overgrowth) and histamine intolerance, both are common collateral conditions associated with celiac disease.
  18. trents
    We have reports frequently on this forum of celiacs being made ill by products made from modified wheat starch that has supposedly been rendered so as to meet the qualifications for marketing it as "gluten free". For example, DiGiornio's Gluten Free Pizza. I suspect it depends on how sensitive to minor amounts of gluten the individual person is. 20ppm is...
  19. trents
    Welcome to the forum, Prince Trent! A couple of thoughts here. You may be going through gluten withdrawal. Gluten has addictive qualities similar to opiates. I also wonder if you have developed an intolerance/sensitivity to one or more non gluten containing foods. This is typical withing the celiac population because of "leaky gut syndrome". It...
  20. trents
    Congrats on your new lifestyle and applying yourself to eat and live healthily! It's paying benefits already.
  21. trents
    We do get reports on this forum of people who get "glutened" from drinking distilled spirits. Theoretically, it should not happen.
  22. trents
    Welcome to the forum, Shealyn! How refreshing it is to have a non celiac requesting information in order to protect a celiac roommate. Usually, we get a lot of posts from the one on the other side of the equation asking advice about how to deal with housemates who are inconsiderate of the celiac's needs to eat safe. It is difficult to give a simple answer...
  23. trents
    Absolutely! And many of them are connected with the nutritional deficiencies I mentioned earlier. Here is a conservative list: https://www.beyondceliac.org/celiac-disease/symptoms/ Many doctors look only for classic GI symptoms when diagnosing celiac disease in their patients. This is why so many of us aren't correctly diagnosed for years. And by that...
  24. trents
    Yes, I think the "way out there" scheduling issues are pretty common everywhere nowadays. Let me offer a partial solution to you. But first I need to explain how celiac disease works so that my explanation will make sense. Celiac disease (or "celiac disease" for short) is not an allergy, as Scott pointed out. It is an autoimmune disease. That means the...
  25. trents
    This whole issue with distilled liquors makes me wonder if some celiacs get a reaction from less than whole gluten protein chains, i.e., fragments of the chain that technically are not gluten. I'm also wondering about this in relation to some other food products that are labeled gluten free but still make a significant number of celiacs ill, like DiGirono...
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