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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I should explain that many doctors are behind the curve when it comes to diagnosing celiac disease. It's better than it was 20 years ago when I was diagnosed but the dearth of knowledge about celiac disease, especially among non GI docs, is still surprising. It took 13 years for me to get diagnosed. By that time, much irreversible damage had been done to...
  2. trents
    My guess would be it was flagged because the tTG-IGA is not reliable for children his age, especially in view of the fact that he has classic symptoms for celiac disease. Other antibody tests could have and should have been run, including total IGA, IGG and DGP antibody tests. Here is a primer for celiac disease antibody testing: https://celiac.org/about...
  3. trents
    Welcome to the forum Sma1220! How old is your son? The tTG-IGA is not reliable for children and sometimes not for teens as the response of an immature immune system is often different. Were any other celiac antibody tests run?
  4. trents
    Have you considered the watery farts could be caused by food intolerances not related to gluten such as dairy?
  5. trents
    Welcome to the forum, Mum2acoeliac! Your son could have very well developed an intolerance to some other food not containing gluten. This is typical for celiacs because of leaky gut syndrome contributing to a dysfunctional immune system with regard to food. Dairy, soy, oats (even gluten free oats) and eggs are among the common culprits but it could be...
  6. trents
    So, if your memory serves you correctly, your tTG-IGA score was 2x the threshold for positive. Probably not what I would call extremely high but solidly positive. But again, don't be surprised if the biopsy is negative. You will have been off gluten for two months by the time you get scoped. The Mayo clinic guideline for resuming gluten after having...
  7. trents
    Yes, grocery prices in general have gone up dramatically in the wake of the pandemic but my observation is that gluten-free groceries price in creases have outstripped mainstream grocery prices.
  8. trents
    We cannot answer that question unless we knew what standard the lab used to differentiate negative from positive. Each lab uses their own scale. Their is no universal standard. So, what was the cutoff between negative and positive and what was your score?
  9. trents
    Welcome to the forum, Jennch! The issue of getting "glutened" from eating bovine flesh from cows having been fed wheat has come up many times on this forum. The answer is there is no risk to the gluten sensitive consumer of the meat. The protein gluten is completely broken down by the cow's digestive process and is not incorporated into the animal's...
  10. trents
    Keep us posted.
  11. trents
    There is no prep needed for the endoscopy/biopsy but if you are having a colonoscopy done as well you will have to do a clean out. That's the only part you will remember.
  12. trents
    NCGS (Non Celiac Gluten Sensitivity) is a possibility but given the fact that you already have other autoimmune disorders, my thinking is it's most likely celiac disease. But at the end of the day it doesn't matter since both require a gluten-free diet. This might be helpful to you in being thorough and consistent in avoiding gluten:
  13. trents
    Good read, DonnaNM. Thanks!
  14. trents
    GFD=Gluten Free Diet You cannot get accurate testing done unless you resume regular consumption of gluten. This is true for both the antibody testing and endoscopy/biopsy. Withdrawal of gluten will allow the villous lining of the small bowel to heal and antibodies will no longer be produced. What you can do, however, is get genetic testing done...
  15. trents
    Yes, you don't have to buy dedicated gluten free prepared foods in order to eat gluten free. Many mainstream foods are naturally gluten free. But it does mean focusing on fresh meats, vegetables and fruits and cooking for yourself. It is the pre-packaged dedicated gluten free foods that make eating more expensive for those with celiac disease and NCGS.
  16. trents
    Ditto to what Scott said.
  17. trents
    The company's answer doesn't make any sense. What would distribution channels have to do with introducing gluten into the product? It's the manufacturing process that counts. Unless you are an ultra sensitive celiac or NCGS person, I would not worry about any gluten being found in simple fruit or fruit juice products.
  18. trents
    The report, at least as you have copied and pasted it, is scrambled as wheatwacked said. But essentially, your celiac panel consisted of three tests: 1. Endomysial IGA (aka, EMA) - negative result 2. TtG-IGA - negative result 3. Total IGA - in normal range. If this one is low, it can skew other antibody tests toward the negative range but it...
  19. trents
    Not a consequence of eating gluten free but it could be a consequence of celiac disease which causes poor absorption of vitamins and minerals.
  20. trents
    Yes, I'm thinking along the same lines as Wheatwacked. Libbybrack, are you taking any vitamins and supplements?
  21. trents
    There is also the option of going all in for eating gluten free now and see if your health improves. If you do improve, you have your answer and you don't need further testing. To continue to eat gluten if it is ruining your health is not worth getting more testing done. You will have to decide for yourself. The link below might be helpful as most people...
  22. trents
    The emergency room doctor gave you advice for the immediate problems he was dealing with but if you continue to eat gluten free you will invalidate the upcomming tests the GI doc will likely do, as I have explained already. If you have only been eating gluten free for a week that is not enough time to expect to feel better. Still, if you possibly can, go...
  23. trents
    Several things: 1. Many celiacs do not experience vomiting and diarrhea. Having definite GI symptoms if you have celiac disease is a common misconception, even within the medical community, I'm afraid. We call them "silent celiacs" if they don't present with GI distress. 2. You should not be starting on a gluten free diet if you will have more testing...
  24. trents
    Celiac disease is not an allergy and it cannot be diagnosed by allergy testing. Celiac disease is an autoimmune disorder. However, it is possible to have an allergy to gluten as it is to any protein substance.
  25. trents
    Welcome to the forum, Sneaker! Have you been officially diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)? The brevity of your post allows me to read it two different ways. Are you saying that your only symptoms are inflammation, weakness and weight loss? Or, are you saying you also have vomiting and diarrhea but it is not...
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