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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Sometimes this is referred to as "cross reactivity".
  2. trents
    Sounds suspicious to me. I would contact the manufacturer for some clarification and if you have any doubts I would avoid it. We see products that are made from wheat but claim to be gluten free because the gluten supposedly has been (mostly) removed so as to meet the requirements for gluten free but we get numerous reports from posters on this forum who...
  3. trents
    Good information, Sevans10. I had no idea that celiac disease qualified as disability. That might come in handy in a number of other scenarios besides school settings. I've always wondered what provision would be made to accommodate a celiac who, for instance, was incarcerated. Thanks for posting!
  4. trents
    Welcome to the forum, jpell237! Your antibody test scores could definitely have been invalidated by your summer diet. The Mayo Clinic guidelines for an antibody pretest gluten challenge is the daily consumption of 2 slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the blood draw. As to DH, it has a vert distinct appearance...
  5. trents
    Got it! Your rational is sound. This might help you get off to a good start in truly achieving gluten free status:
  6. trents
    Food sensitivity tests are often unreliable because what the test tube shows you are reacting to doesn't often match well with what you actually experience. Plenty of false positives. Realize also that celiac disease is an autoimmune disorder and as such won't show up on allergy tests. It engages an entirely different pathway than allergies. With celiac disease...
  7. trents
    Welcome to the forum, Di Roddis! I assume you are asking about tips for achieving gluten free eating. Here is a primer that might help you get started: Eliminating major sources of gluten is easy but actually eliminating all gluten is much more of a challenge and requires education and constant diligence. One thing that makes it difficult is that...
  8. trents
    Keep us posted.
  9. trents
    Welcome to the forum, Jill74! If you are reacting to gluten and want to get tested for Celiac disease you must continue to consume gluten in order for the testing to be valid. What's more, if your celiac blood antibody testing is positive it is likely you will also be asked to confirm the results through a follow-up procedure involving an endoscopy with...
  10. trents
    I do. Lately, I get a headache about half the days. Mine usually develop it the wee hours of the morning or close to the time when I wake up in the morning. Migraines/headaches are very common in the celiac population. I have penned down some foods that often trigger mine but there are other trigger factors as well for me such as interruption in normal sleep...
  11. trents
    Be aware that you will have needed to be eating regular amounts of gluten for at least two weeks leading up to the endoscopy/biopsy for it to be a valid test for celiac disease. Do you know that specifically they will be taking a biopsy of the small bowel lining when they do the endoscopy? You should not take it for granted that this will be done in conjunction...
  12. trents
    Your symptoms scream celiac disease. Make sure you present your catalog of symptoms to the doctor at the appointment and say, "I strongly suspect I have celiac disease. Would you be willing to order celiac antibody blood testing?" Since you have several classic GI symptoms for celiac disease I think the doctor would be willing to comply.
  13. trents
    Welcome to the forum, bechari! Were you already eating gluten free when you had testing done for celiac disease? And what tests were done?
  14. trents
    The air you breathe probably has gluten in it, that is if you had instruments sensitive enough to detect it.
  15. trents
    Some of the B-vitamins can interfere with sleep for some people when taken too close to bedtime. Best to separate them from beddy bye time as much as possible.
  16. trents
    Welcome to the forum, 1Kathy! I take it you have been diagnosed with both conditions?
  17. trents
    I think the school's response is realistic and appropriate. We can't expect the world to bend around our needs as those with celiac disease/NCGS when we are such a minority of the population.
  18. trents
    Sounds like you have celiac disease. "Gluten sensitive enteropathy" is aka celiac disease. It's doctor speak.
  19. trents
    That's fine but it will be no substitute for you taking responsibility yourself to learn how gluten is hidden in the food supply, reading labels, etc. Your naturopath cannot be with you everytime you buy groceries or eat out. And you need to be aware that food companies can and often do change their forumulations such that what was gluten free at one time...
  20. trents
    Just to give you another option, you might like to know that the Mayo Clinic guidelines for the pre-test "gluten challenge" for those wanting to get a biopsy but have already been eating gluten free is the daily consumption of two slices of wheat bread (or the gluten equivalent) for two weeks leading up to the day of the procedure. So, conceivably, you could...
  21. trents
    So, If you feel like you need confirmation of celiac disease via endoscopy/biopsy then push your doctor for a GI doc referral to pursue that course. Many people find they need that psychologically to stay on track with the gluten-free diet. It's so easy to rationalize it away without confirmation.
  22. trents
    Welcome to the forum, charbam123! It's hard to say much about your antibody test numbers since you did not include the reference ranges for each test. Since each lab uses it's own ranges for negative v. positive we need the range they used. There is no industry standard. All we know is some of them are positive but until we have the ranges we can't say...
  23. trents
    Go easy on the magnesium at first and titrate up until you start to get a laxative effect (think, "milk of magnesia"). Then cut back a little. Mag citrate and mag glycinate are better absorbed than mag oxide but any of them will have a laxative effect if the dosage is too high.
  24. trents
    Well, if the biopsy is inconclusive, and we do get reports on this forum of people with positive antibody tests but negative biopsies (go figure?), you might look into genetic testing for the possession of celiac genes. There are two main ones but more are now under suspicion. But the two main ones are DQ2 and DQ8. I think also now DQ6 has been recently implicated...
  25. trents
    Most likely celiac, yes. I'm not sure about this, but it is possible the positive deamidated gliadin IGG points to NCGS (Non Celiac Gluten Sensitivity) which some experts look at as a possible pre-celiac condition. With either one, however, the antidote is the same and that is total avoidance of gluten for life. They also share a lot of the same symptoms...
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