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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Let's cut to the chase. You have celiac disease. It has been confirmed both by antibody positives and by biopsy positives at different times and your symptoms scream celiac disease. You are in denial and you need to buck up and commit to gluten free eating. By the way, depression is one of the established symptoms of celiac disease, likely due to vitamin...
  2. trents
    All of these symptoms are classic for celiac disease. How many biopsies have you had done? Your chronology is confusing. Please clarify.
  3. trents
    This is what I was referring to, Scott. Yes, the initital scope and biopsy was apparently positive but a subsequent one was not. Now, I'm assuming a biopsy was also done at this time but OP doesn't actually say that. Was this positive only a reference to visual observation during scoping?
  4. trents
    Welcome to the forum, Titnic! There are some other medical conditions (most of them are autoimmune disorders) that can cause elevated "celiac" antibodies. To me, what points to the cause of the elevated antibodies being due to something else is the fact that your biopsy was negative. Besides depression, are you experiencing any other medical issues or...
  5. trents
    How often would you say you get antibody testing done? Do you pay for this out of pocket or does your health insurance cover it? Many people on this forum have trouble convincing their physician to even do an initial celiac antibody test, much less on a repeated basis. But I certainly would agree with your major premise of the wide range of sensitivity to...
  6. trents
    I believe you should start feeling better within a few weeks of abstinence from gluten if gluten is the problem or at least part of the problem. But if you don't feel any better, I would go back on gluten and get restested after two months for antibodies. The timing of your testing with regard to gluten abstinence was out of phase since the initial antibody...
  7. trents
    Gene tests are the least predictive of all the tests that can be run for celiac disease. About 40% of the population have one or more of the genes that so far have been linked to celiac disease but only 1% or so of the population actually develop celiac disease. And which tTG do you speak of? tTG-IGA or tTG-IGG?
  8. trents
    It's economics 101. Gene tests are expensive and health insurance companies would not go for that on a routine basis. Besides, a positive tTG-IGA can be caused by only a few, relatively unusual conditions other than celiac disease. Having a positive tTG-IGA essentially equates to having one or more celiac genes. Besides that, research is turning up new genes...
  9. trents
    herminia, they must have done an endocopy (upper GI scoping) at the same time they did the colonoscopy. Celiac disease damages the lining of the small bowel, an area that cannot be reached by a colonoscopy. To scope and biopsy the small bowel they must go down through the mouth, esophagus, and stomach into the small bowel. But we are glad with you that you...
  10. trents
    Olfy75, Forum members have only a short time window to edit their posts. This is an anti spam provision. Spammers will "test the waters" with what may look like a legitimate initial post and if it is approved they will go back later and edit so as to add in a nefarious link.
  11. trents
    Welcome to the forum, Mathew! I suspect you have something else going on in addition to your celiac disease but it will be hard to tell unless you can eliminate the regular CC. If I do the math you are getting CC'd about every 6 weeks and your body may not be recovering fully in between episodes of CC. At any rate, I would involve a physician in this...
  12. trents
    Welcome to the forum, Figuringitoutsm! What makes you think you have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease? NCGS is 10x more common than celiac disease but they share many of the same symptoms and your catalog of symptoms matches either very well. You really can't know until you are tested. There are two types of testing to...
  13. trents
    MLA1996, before you go on a gluten-free diet, realize that doing so will sabotage any subsequent testing, such as an endoscopy with biopsy or additional antibody testing. But, beginning a gluten-free diet to test the waters is certainly a reasonable option if you plan on foregoing additional testing. If, however, you would like to have more testing done and...
  14. trents
    Of course, there is the "in between" of reversing ataxia which means in severe, long term cases, it will not be completely reversed but there can be improvement from a gluten-free diet.
  15. trents
    It's definitely a strong positive. A colonoscopy cannot be used to diagnose celiac disease. It doesn't go up far enough to reach the small bowel area affected by celiac disease. Ataxia can be reversed but not always. Depends on how much nervous system damage was done and how long it was subjected to the toxic effects of gluten on the nervous system...
  16. trents
    Yes, you could have NCGS and most of the symptoms you list are neurological in nature. celiac disease and NCGS share many of the same symptoms. Neurological problems are one of the main and well-known symptoms of NCGS. Mucous in your stool is a common symptom of celiac disease, however, indicating damage to the small bowel villi or possibly malabsorption...
  17. trents
    Basically, they ran two celiac antibody tests on your blood and one was negative (tTG-IGA) but the other was positive (anti gliadin IGA). But without reference ranges (where is the negative vs. postitive cutoff) we can't comment on whether or not it was a strong positive. Do you have the reference range used by that lab? There is no standard for reference...
  18. trents
    My favorite gluten-free bread is made by Franz but it may only be available in certain western states in the USA. Toasting gluten-free bread can remove some of the excessive moisture and heaviness.
  19. trents
    "Our results are that in a real-life scenario, a group of celiac disease patients on long-term gluten intake showed no significant clinical symptoms or small bowel damage, thus suggesting that a degree of tolerance towards gluten consumption can be reached." Can be reached or can be maintained? After three years of mostly gluten free eating my villi...
  20. trents
    It's just logical. DH is the epidermal expression of celiac disease. No gluten, no inflammation and so no antibodies.
  21. trents
    https://ask.usda.gov/s/article/Is-corn-a-grain-or-a-vegetable "Corn can be considered either a grain or a vegetable, based on when it is harvested."
  22. trents
    I believe rice is grown in flooded fields so it is not likely gown in the same environment as wheat.
  23. trents
    Just be aware that having been on the gluten-free diet now for over a month you cannot be tested and expect valid results. For valid testing you would need to be eating regular amounts of gluten and that is true for both the blood antibody tests and for the endoscopy/biopsy. If you want additional testing in the future you would need to go back to eating...
  24. trents
    Welcome to the forum, Vishakha! That is indeed an unusual trend. I cannot remember having seen the situation you describe where the tTG-IGA was that high and then returning to normal without the intervention of a gluten free diet. My only thought would be that somehow your pregnancy reset your immune system so that you are in celiac remission. But I...
  25. trents
    Fructose is one of the sugars.
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