Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,401

  • Joined

  • Last visited

  • Days Won

    507

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    At that age her immune system may not respond the same way as an adult's would so that might explain the negative for the tTG-IGA. We see this pretty commonly on the forum. It was good that the physician ordered more than just the tTG-IGA. Many physicians will only order that one and so, many are missed who actually do have celiac disease. What are her...
  2. trents
    First, how old is your daughter? Second, had she already started a gluten-free diet or had she significantly cut back on gluten intake before the blood draw? By the way, welcome to the forum, Ceumom!
  3. trents
    Investigate what vitamins and minerals that SRI use depletes and supplement.
  4. trents
    You probably need vitamin supplementation with B-complex, B12, D3 and magnesium (mag glycinate or citrate, not mag oxide). Make sure they are gluten free. This might help as well. Most people who believe they are eating gluten free are missing some sources of gluten through CC (cross contamination) or just ignorance of the myriad of places it is hidden in...
  5. trents
    Lucy, your best bet would be to request a host home that is gluten free. There is a chance there would be such a family available as hosts. But other than that, you are asking for trouble and if you get sick from being glutened the host home would feel some combination of guilt and insult. And you would be a drag on the party. Welcome to the forum, by the...
  6. trents
    Be careful with nuts. They are often processed on the same machines with gluten containing items so there can be CC. It may only apply to the more sensitive celiacs, however.
  7. trents
    The tTG-IGA is the most popular single test for celiac disease ordered by physicians and, unfortunately and many times the only one. The tTG-IGA combines good specificity for celiac disease and good sensitivity and it is relatively economical. But for whatever reason, according to one study I read, it misses about 20% of those who do have celiac disease from...
  8. trents
    Welcome to the forum, Cookie07! The red ones are positive for celiac disease. You don't have to have all the tests be positive in order for it to point to celiac disease. That's why your doctor ordered several different kinds of tests. What one misses, others may catch. By the way, you weren't already on a gluten free or a reduced gluten diet were you...
  9. trents
    I could be wrong but I don't think hemochromatosis can be caused by celiac disease. It has it's own genetic base.
  10. trents
    The problem with this theory is that it does not acknowledge that damage to various body systems can be going on even when there seem to be no classic symptoms. I was one of those. Gluten was causing me elevated liver enzymes for 13 years before I got my celiac diagnosis and by that time my villi were severely worn down and I had a lot of bone density loss...
  11. trents
    Unless you have a dairy intolerance or an intolerance to some other ingredient in that brand of ice cream, I would assume it is safe for you.
  12. trents
    Welcome to the forum, Jamima! That's a new one for me. Never heard of salycilate intolerance before. Did a little research on it and salycilate is found in many common foods. Sounds like you might need to avoid prepared gluten free foods and focus on cereal grains, meat and dairy and making your own stuff. Eating out affords the biggest single risk for...
  13. trents
    Welcome to the forum, BJO! If you would like your sister to see your posts, the best way would be for her to join this forum like you did. Get back to who? It seems like you are replying to someone but we can't see that person's post.
  14. trents
    It's overwhelming at first but over time it becomes the new norm. The biggest adjustments have to do with the social limitations. These two articles might help you get off on the right foot: Many people who claim to be eating gluten free are actually eating lower gluten because they have eliminated major sources of gluten but are not giving attention...
  15. trents
    Constipation is very common in children with celiac disease. The other thing you might consider, especially if the biopsy is negative, is genetic testing to see if he has the genetic potential for celiac disease. Please keep us posted.
  16. trents
    Welcome to the forum, SarahMW! It is an established fact that antibody testing is not reliable for children that young. Their immune systems are very immature and just do not respond the same as an adult's would. With children we also have the testing anomaly where the biopsy is negative but the antibodies are positive. Just wanted to mention that so...
  17. trents
    Do some research on the best formulations of B12, the ones that are assimilated the best. Not all B12 supplements are created equal: https://perniciousanemia.org/b12/forms/
  18. trents
    Wow! That is a great find. Actually, by 55%. I think Scott and Jefferson should do an article on this.
  19. trents
    Both the genetic marker and the symptoms are circumstantial evidence that you have celiac disease. If you want to find out for certain there would be no alternative but to go back on gluten. There is a blood anibody test for celiac disease and there is a test involving an endsocopy with a biopsy of the small bowel lining. Both require have been consuming...
  20. trents
    Sepsis? That is the body's extreme response to an infection that has gotten into the blood and gone systemic. What was the source of this infection? I assume it was a GI infection of some kind?
  21. trents
    The Mayo clinic guidelines for a pretest gluten challenge is two slices of wheat bread (or the gluten equivalent) daily for 6-8 weeks leading up to the blood antibody test and for two weeks leading up to an endoscopy/biopsy. So, maybe you should push for the latter. If the scheduling puts it way out there. Start the gluten challenge two weeks before the date...
  22. trents
    Mathew, I think the cold sweats comes with vomiting caused by anything, not just gluten. I think that is natural.
  23. trents
    Your concern is a valid one. You should either go back to consuming gluten for 6-8 weeks before being tested or push ahead with the assumption that you wither have celaic disease or NCGS (Non Celiac Gluten Sensitivity).
  24. trents
    Your high total IGA levels is the thing that stands out to me. It does sound like you need to avoid gluten for one reason or another but there could be other things going on that need attention as well. Have you had a CBC and a CMP recently? https://labs.selfdecode.com/blog/high-iga/
  25. trents
    You mention itching. Do you get a rash with pimples when you eat cookies or other wheat-based products? The itching could be a wheat allergy rather than celiac disease which is an autoimmune disorder.
×
×
  • Create New...