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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    What led to my celiac diagnosis was CMP (Complete Metabolic Panel) values for liver enzymes being elevated persistently for several years for no apparent reason and albumin and total protein were sub normal as well. I finally went to a GI doc and he checked me for celiac right away. Both antibodies and biopsy were positive. In some countries having an...
  2. trents
    When you had the antibody blood test performed, had you already started on a gluten free diet? The Mayo Clinic guidelines are the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the blood draw. If you were not approximating that you should consider getting retested using those guidelines. Or you can start...
  3. trents
    What? Kyma, please read your first two sentences. They don't make sense. Are you using translation software or speech to text software? You could also have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but cannot be tested for. celiac disease must first be ruled out. NCGS is 10x more common than celiac...
  4. trents
    What's keeping you from getting tested for celiac disease, or thyroid disease for that matter? Is this an economic or insurance issue? There is no way to confirm you have either one unless you get tested. The first stage of testing for celiac disease is a simple blood draw which is sent off to a lab to be checked for antibodies characteristic of celiac disease...
  5. trents
    Welcome to the forum, ireneschmidt! The information you gave in your post does not include your tTG-IGA score. You only supplied the ranges used by the lab for categorizing the test result as being negative, weak positive or positive. We need to know what your personal results were. For instance, if your personal test score was 2, your result...
  6. trents
    Ichf?
  7. trents
    You are probably getting some cross contamination in eating out because, even though you may order something that is gluten free, they may cook it on the same surface with wheat things or cut and handle it with the same kitchen utensils they used on wheat stuff.
  8. trents
    Welcome to the forum, Lindquist! First of all, there is no danger in taking B12 or any of the vitamins indefinitely. They are water soluble and you will excrete any excess in your urine. They are not toxic. But if your levels are now adequate or above normal you may quit taking the supplement as long as your gut is healed so that you don't lose ground...
  9. trents
    Thanks for the clarification. First, I would guess you were born into a family with tall genes. Second, it is not unheard of for people in the college age years to continue to grow in height. I hear about this in connection with basketball players. Third, I'm guessubf that your growth spurt is a "catching up" due to healing of your gut since...
  10. trents
    Welcome to the forum, Holly15892! So, if my math is correct, you seem to have grown 2" in one year, between ages 20 and 21? Is my calculation correct?
  11. trents
    Welcome to the forum, Emma! One of the issues that usually accrues from celiac disease is vitamin and mineral deficiencies. celiac disease (Celiac Disease) damages the villous lining of the small bowel which is where almost all of the nutrition in the food we eat is absorbed. The damage to this area of the intestines decreases the efficiency of absorption...
  12. trents
    My understanding is that ferritin level represents long term iron storage whereas hemoglobin measures the immediate availability of iron circulating in the blood. It's like calcium. The body will take calcium from your bones if serum calcium is low. So, could it be that your body is not adding iron to the storage and it is being depleted in order to keep...
  13. trents
    Yes, it is common with celiac disease. Once we remove gluten from the diet for a significant period of time we become more sensitive to it than when we were forcing our bodies to try and cope with it regularly before diagnosis. Reactions generally become more intense. If I get a good amount of gluten now I develop intractable vomiting for 2-3 hours, intense...
  14. trents
    Personally, I don't mind taking a multi vit and other supplements to ensure that I get what my body needs. The amount of fortification of mainstream serial grains as required by the FDA doesn't amount to much anyway and was designed to prevent obvious nutritional deficiency diseases rather than provide optimum levels of nutrients.
  15. trents
    Very, very, very small chance. Unless you prove to be an extremely sensitive celiac I would not worry about stuff like that. For most celiacs, it takes about 10mg of wheat crumbs over 24 hr. to produce a reaction. Some are much more sensitive. https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/ https://www.glutenfreedietitian...
  16. trents
    I would add a B-complex to that supplement mix. Make sure your supplements and any meds you take are gluten free. Pills sometimes contain wheat starch as a filler. Costco's Nature Made and Kirkland Signature brands are good sources of gluten free vitamins and supplements. Most of these products are gluten free and if so they will clearly advertise it on the...
  17. trents
    I think the hardest adjustments are the social ones. It will get better. There will always be some family and friends who are skeptical that there is anything to this gluten intolerance thing. Some just feel it's the latest fad disease. But others will come on board with you and do what they can to accommodate your needs.
  18. trents
    Megrosewalke, what is your living situation? Are you living in a house where everyone else is consuming gluten? College dorm?
  19. trents
    One thing that needs to be said is that there is tremendous variability in the sensitivity level to gluten within the celiac community. Most celiacs don't need to throw away their cookware or avoid eating meat. Processed meats often used "meat glue" to mold their products into a certain shape. Meat glue protein is similar to gluten is the reason but it won...
  20. trents
    Megrosewalke, welcome to the forum! I would not say that what you are going through is normal but I would say that it is common, at least at this early stage of the gluten free experience. Gluten has addictive properties similar to opiates so there can be a withdrawal experience when it is removed from the diet. I know this sounds incredible but...
  21. trents
    Welcome to the forum, Jlsnj! Glad you are experiencing such good results from going gluten free. You are dealing with a lot of autoimmune stuff with the lupus. Celiac disease is also an autoimmune condition. Autoimmune diseaseses tend to cluster and it is well-known that there is a higher incidence of lupus in the celiac population than there is in the...
  22. trents
    About 1 out of 5 celiacs experience elevated liver enzymes.
  23. trents
    Welcome to the forum, vikikem! It's easy to cut out major sources of gluten but much harder to eat totally gluten free. It requires education and diligence to root out the hidden sources of gluten that can compromise our healing. This might be helpful: https://duckduckgo.com/?t=ffab&q=The+Gluten-free+diet+101&atb=v352-1&ia=web You may...
  24. trents
    You will experience no soreness in your small intestine from the biopsy. Get some sleep.
  25. trents
    I don't remember what I ate the day before. It really doesn't make any difference as long as you don't eat anything within 8 hr. of the procedure and I believe you can have clear liquids within about three hours of the procedure. They just want your tummy and small bowel to be empty of any solid matter and not stained by red or dark liquids. After the...
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