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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Kels2022! I am over 70 years old and as long as I can remember this debate about how soon to introduce babies to wheat has been around. I don't have a recommendation for you but here is something to consider: For years, the "experts" pegged the likelihood of children developing celiac disease if a close relative had it was said...
  2. trents
    You are correct in your understanding of the IgG being 84% accurate for celiac disease but compared to the tTG-IGA which is 98% accurate, the igG is less specific. You need to go forward with the endoscoy/biopsy to clarify whether or not you have celiac disease. Don't withdraw gluten until the endoscopy/biopsy is complete. Your test results also could...
  3. trents
    Yes. For instance, another bowel disease such as Crohn's. No one is saying it's definitely not celiac. Your IgG positive indicates possible celiac disease but possible other medical issues. IGG is not as specific for celiac disese as the tTG-IGA and the EMA tests.
  4. trents
    There are two IGA measures in your test results. tTG-IGA is the low one and this is the most commonly relied upon antibody test for celiac disease. There are other IGA tests that can also be run. All the individual IGA components combined make up "total IGA" which is the one you scored 368 on and it falls within the normal range. The tTG-IGA fraction is normal...
  5. trents
    Yes. Called a "bun" in the US.
  6. trents
    Not so fast! Has the wheat in the beef flavor been deglutened so as to remove the protein and leave only the starch? And I would also point out that "gluten free" as the food industry legally uses it is not the same as no gluten. It simply means it meets the not more than 20ppm of gluten FDA standard.
  7. trents
    What is a bap?
  8. trents
    I would add to what Russ H said, some of the test results, but not all of them, indicate possible celiac disease. The positive ones are not particularly specific for celiac disease and could be the result of another disease process. The endoscopy with biopsy of the lining of the small bowel should provide some clarity. Do not start withdrawing gluten from...
  9. trents
    Welcome to the forum, Cassie! Both the tTG-IGA and EMA are very specific for celiac disease. And your tTG-IGA is very high. In the UK you would likely have been declared to have celiac disease based on that high reading alone. There, they often will forego the biopsy when the tTG-IGA is 10x normal. Deamidiated gliadin IgG is not as specific, meaning...
  10. trents
    Welcome to the forum, HannahLaF! How old is your daughter? Children often do not respond the same to celiac antibody testing as adults do because of immature immune systems. Children who actually do have celiac disease will often produce negatives for the tTG-IGA test which is the most common antibody test for celiac disease that doctors order. It is...
  11. trents
    The Mayo Clinic guidelines for a pretest biopsy gluten challenge is the daily consumption of two slices of wheat bread for two weeks leading up to the procedure. You may also have develop an additional food intolerance that is not tied to gluten. This is typical for celiacs. Common offenders are dairy, oats (even gluten free) and eggs. But it can be...
  12. trents
    MBjim, you had an endoscopy done and I assume they did a biopsy of the small bowel lining at that time to check for the villi damage that is characteristic celiac disease. Can you confirm that a biopsy was done? You did not actually say that it was.
  13. trents
    Welcome to the forum, MBjim! First, let assure you that it is not all that unusual for those who truly have celiac disease to have positive bloodwork for celiac disease but a negative biopsy. There can be a number of reasons for this but one of the common ones is that the one performing the biopsy does not do a thorough job. Damage to the small bowel...
  14. trents
    I agree, Qrummed, with most of what you said, except the last sentence. There are "bondafide celiacs" who do not react to trace amounts of gluten, or at least not discernibly so. Two celiacs can eat the same french fries and one will get ill and the other not.
  15. trents
    How long have you been taking the SSRI? Maybe it's a matter of your body needing more time to adjust to it or maybe the dosage needs to be adjusted. Also, as you know, wheat starch can be used in pills as a filler. See what you can find out from the dispensing pharmacy and if necessary they can give you information about their supplier to ask more detailed...
  16. trents
    It would be but with such a strong positive tTG-IGA score at such a young age, there is not much doubt in my mind that he has celaic disease. There are benefits to getting that confirmed as an official diagnosis, however. For one thing, if it's official, doctors can't blow it off as just another "fad" disease. Many in the medical community have "attitudes...
  17. trents
    I don't need to embarrass you or to be nosy but I note that the primary use of naltrexone is to address withdrawal from drug and alcohol dependence. Like many medications it may have other uses. Is this why it is being prescribed for you? Or are you being prescribed this med to help with your gluten withdrawal? Let me explain why I am asking and the connection...
  18. trents
    Please see my response to your other post. To that I want to add that until all testing is complete, including an an endoscopy/biopsy, your son should not start reducing gluten intake. Doing so will invalidate testing if you intend to pursue it further for confirmation.
  19. trents
    Welcome to the forum, 416510! How old is your son? Young children will often test negative for the tTG-IGA even when they do have celiac disease because their immune systems are immature. With young children, there should be several different antibody tests run, what we call a "full celiac panel". So, if you son tested positive on the tTG-IGA I would...
  20. trents
    Welcome to the forum, Bettyvan! Can you give us some more context? Some more information? Do you have celiac disease? Are you recently diagnosed? Are you certain you are eating gluten free? May we ask your age range? Is this foot swelling a brand new condition for you? Do you have other significant medical conditions? I'm not trying to be nosy....
  21. trents
    Different labs used different scales because they each develop their own tests. There is no industry standard for celiac tests. So, you can't compare test numbers from one lab to another. But this will not affect results as far as negative vs. positive. I'm thinking your onset of celiac disease is fairly recent and the first autoimmune test results were pre...
  22. trents
    No. Celiac disease must first be ruled out. NCGS is 10x more common than celiac disease. Some experts believe it can be a precursor to celiac disease, however.
  23. trents
    Total IGA antibody load. It's only relevant if it's low. It is comprised of celiac antibodies plus other IGA antibodies that have nothing to do with celaic disease. If it is low it can skew the individual celiac antibody tests down toward the negative range. You need to also consider that your daughter might have NCGS instead of celiac disease, which...
  24. trents
    Correction in order here. It means one or both of her parents have the genes that make for the potential to develop celiac disease.
  25. trents
    Welcome to the forum, Asm! 1. Many of us are like you. We were diagnosed for reasons not having to do with the classic GI distress normally associated with celiac disease. We call them "silent" celiacs. But despite no GI distress, damage to body systems still accrues. One of them you are already aware of and that is iron deficiency anemia. But there...
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