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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I beg to differ. From the article itself, "So, unless gluten ingredients are added during processing, all Parmesan cheese is likely to be gluten-free, and safe for people with celiac disease."
  2. trents
    I think it's certainly worth a try but I wouldn't rule out a temporary regimen of steroids to calm the immune system down in conjunction with the Fasano diet.
  3. trents
    That's an excellent point. If antibodies go down on the gluten-free diet then, even though symptoms remain, it tells you that there is celiac disease present though it also tells you it's not the only problem.
  4. trents
    Welcome to the forum, Annilee! Are you still eating oats or dairy? These are common "cross reactors" whose proteins (oats-avenin, dairy-casein) have structures very similar to gluten and blunt SB villi like gluten does for some celiacs. Intolerance of eggs is also fairly common in the celaic community. Also, some meds cause villi blunting as well. What...
  5. trents
    Although I am not a doctor, I would remind you that it was a doctor who prescribed prednisone for you. Maybe you should listen to the doctor instead of doing it your way.
  6. trents
    Referring back to what I said earlier, "As has been said, the definition of stupidity?/futility?/insanity?", you seem to have taken that personally. It was not intended that way. It is a proverb of sorts.
  7. trents
    Are you kidding? You've tried every diet variation know to human kind already! The answer is probably not a nuanced version of what you have already tried. And in all seriousness, I think you might do well to seek counseling for OCD.
  8. trents
    Look at it this way, what you have been trying hasn't worked. Why keep doing it? Try something completely different. As has been said, the definition of stupidity?/futility?/insanity? is when you keep doing the same thing over and over again even though it doesn't work. If you take no risks you will find no solutions. Prednisone has been around for a long...
  9. trents
    I am currently finishing out a 15 day prednisone experience, prescribed because of painful inflammation in my right knee. The tentative dx was gout but I have my doubts. Uric acid levels were normal by the time they were tested but I realize that is not unusual by the time the gout manifests itself. I think it may have been caused by overdoing as my wife...
  10. trents
    You started having this abdominal pain, joint pain, bloating tenesmus and gas while you were still eating gluten free? Are you now back on gluten and if so, how long now? What did this gastroenterologist test you for and how? Were tests done specifically for celiac disease at this time? Celiac disease cannot be diagnosed by a colonoscopy. It doesn't...
  11. trents
  12. trents
    I would say that a 95% accuracy rate is good enough to be considered a reliable diagnostic tool. Very few tests are fool proof.
  13. trents
    Yes, that's an option. The Mayo Clinic guidelines for doing that, the pretesting "gluten challenge" as they call it, is the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the antibody test and the same amount for two weeks leading up to the endoscopy/biopsy. Be aware, however, that if you have been gluten...
  14. trents
    You say you could be considered a weak positive. Can you supply the actual antibody test numbers along with their ranges for negative vs. positive? Did your symptoms improve when you went gluten free? Did you go back on gluten and then the symptoms reappeared or did they reappear while you were striving for gluten free? This part is not clear to me from...
  15. trents
    What the blood tests are checking for is the immune system antibodies connected with the inflammation celiac disease produces in the villous lining of the small bowel. The second stage of testing is the endoscopy with biopsy to microscopically examine the damage to the villous lining of the small bowel produced by that sustained inflammation over time. If...
  16. trents
    Sorry, Shelly. Now I see your question is in your thread title. Yes, I believe you would do well to seek a biopsy as your antibody test results are not unequivocally conclusive. If you intend to seek a biopsy, remain on regular amounts of gluten.
  17. trents
    I agree with Plumbago. You had symptoms of either celaic disease or NCGS (Non Celiac Gluten Sensitivity) well before COVID. Now that you are on a gluten-free diet, you have eliminated the possibility of valid testing for celiac disease and there is no reliable test for NCGS. celiac disease must first be ruled out to arrive at a NCGS diagnosis.
  18. trents
    Welcome, Shellly! Your test results indicate you could have either celiac disease or NCGS (Non Celiac Gluten Sensitivity). What led to your testing? What symptoms do you have? Do you have a specific question for us?
  19. trents
    https://www.beyondceliac.org/celiac-news/negative-blood-test-other-conditions/ "Additionally, a registry of celiac disease patients at the University of Alabama at Birmingham found that 80% of Black patients with biopsy-confirmed celiac disease had negative results on the TtG test. While the study sample was small, these results raise the question of...
  20. trents
    Welcome to the forum, hmcdowell! Even though the individual antibody test scores are not high, the fact that she is positive for several tests coming at the question from different angles lends strong credence to the probability of her actually having celiac disease. Children can be difficult to diagnose because their immune systems are under development...
  21. trents
    Are you saying that refractory celiac disease is a myth?
  22. trents
    Yes, I have tooth resorption going on as well with at least one of my front teeth. The dentist tells me it happens from the inside out and offered no explanation.
  23. trents
    Thank you for your encouragement. One of the gifts of this forum is the knowledge and experience the community brings to bear on those just entering what seems like a new health crisis. It helps by allowing them the room to put it all in a better perspective so that they can deal with it one step at a time rather than being overwhelmed by taking on the whole...
  24. trents
    Welcome, NickG! Concerning the pain under your right rib cage, have you had your gall bladder checked? It is pretty normal for stools to turn dark when eating foods high in black, red, or purple pigments. I don't use Gatoraid so I can't comment on that in particular. But I do see it with things like beets, leafy green vegetables and blueberries...
  25. trents
    I think that your doctors are showing wisdom and seem to be on top of things. You should be thankful for that because this is not always the case when it come to celiac disease diagnosis. Regular monitoring of the tTG-IGA is important in this case. One thing that might come into play here is that many of the carbs the average first world person consumes come...
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