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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Sorry, I didn't know about your physical challenges with regard to exercise. As far as magnesium supplementation goes, consider the differences between formulations in regard to your needs. Magnesium oxide is the most common form that you will see on the supplement shelf in places like Costco, Walmart, Safeway and other big grocery and retail chains. It is...
  2. trents
    There are a number of factors that contribute to regularity. 1. Adequate daily fiber intake. Health professionals recommend 25-30 gm per day. Have you actually tallied up your daily fiber intake? I find that if I drop below 30 gm. per day I start to get irregular. 2. Adequate hydration. Health experts recommend 64 oz of free liquid per day. Admittedly...
  3. trents
    I wonder if your son's loss of appetite is due to a thiamine deficiency. Wheat flour is fortified with vitamins including Thiamine (B1). Gluten free flours are not fortified. So, when we eliminate wheat from our diets we also eliminate a major source of vitamins. Loss of appetite can be a symptom of thiamine deficiency: https://www.healthline.com/nutrition...
  4. trents
    Welcome, Julia! Cristiana has given some good advice. But let me ask some clarifying questions. How old is your son? Does he still live at your home? Who does the cooking for him? Has he been diagnosed with celiac disease or with NCGS (Non Celiac Gluten Sensitivity)? I assume one or the other since he is eating gluten free. Is he still having the...
  5. trents
    How much real estate did they take from your hide when they did the biopsy? You had to have stitches?
  6. trents
    When you go to your appointment I certainly would ask again about the specialized test mentioned in the DH article and ask why it was not run when you replied "Yes". As it is, you have no more information relating specifically to DH than before the biopsy was done.
  7. trents
    If you are experiencing gluten withdrawal, it typically takes 2-3 weeks to pass.
  8. trents
    Yes, could be just an adjustment period. Withdrawal symptoms are experienced by many people when the remove gluten from their diet. Gluten has addictive properties much like opiates. It is also likely that your total fiber intake has been negatively impacted by removing wheat-based foods. Low magnesium levels can also cause constipation. We would suggest...
  9. trents
    Since you used the expression "bloods" in reference to blood antibody testing and used the British spelling of celiac disease, I am assuming you live in the UK. In the UK it is common practice for the physician to order only one celiac antibody test, the tTG-IGA. It is the best all around test and not expensive to perform but it does miss a certain small...
  10. trents
    It's always good to finally know what you are dealing with.
  11. trents
    I think the medical community uses the same tests to diagnose celiac disease everywhere in the world. Sometimes the nomenclature deployed is a little different and physicians in some countries have more freedom to the secondary tests while in other places what tests the doc can order is more tightly controlled and minimal. In the UK, for instance, they will...
  12. trents

    Day 10 post inoculation

    trents commented on dixonpete's blog entry in Pete Dixon

    Well, I don't have colitis and the gluten free diet works well for me for the celiac disease. I've adjusted to the change in diet over the years and it's the new norm for me. I'm not an extremely sensitive celiac so I don't obsess over cross contamination. I do take reasonable precautions when eating out, ask questions of eatery staff, let them know my needs...
  13. trents

    Day 10 post inoculation

    trents commented on dixonpete's blog entry in Pete Dixon

    "Not much to report. My GI issues have all cleared up, but that's probably because I've gone gluten-free for the month of June. My entry wound has almost entirely healed. Aside from a touch of redness it should be 100% in a couple of days. That steroid cream made a huge difference, not in pain or discomfort really but certainly in aesthetics. Previously the...
  14. trents

    Day 10 post inoculation

    trents commented on dixonpete's blog entry in Pete Dixon

    Yes, and diabetics also work at changing how they eat.
  15. trents

    Day 10 post inoculation

    trents commented on dixonpete's blog entry in Pete Dixon

    You are a celiac and will always be a celiac. You are just masking it. If you were not a celiac then there would be no need for either going gluten free or using helminth therapy.
  16. trents
    Welcome to the forum, gordoben! Your symptoms and the elevated DGP indicate you may have celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms but there is no reliable test for NCGS. NCGS is 10x more common than celiac disease. A colonoscopy cannot be used to diagnose celiac disease but rather an endoscopy with...
  17. trents

    Day 10 post inoculation

    trents commented on dixonpete's blog entry in Pete Dixon

    Gluten test? Do you get checked for celiac antibodies? You may know this but you need to be eating regular amounts of gluten (two slices of wheat bread daily or the wheat equivalent, according to the Mayo Clinic) or 6-8 weeks before being tested in order to not undermine the test results.
  18. trents
    Welcome to the forum, Elisec4! Are you still consuming oats? About 10% of celaics react to the oat protein avenin as they do gluten. And there are many other food intolerances that are possible. Corn, soy, eggs. It could be almost any food but it is common for celiacs to develop food intolerances in addition to gluten. I would suggest keeping a food...
  19. trents
    You make an excellent point that is typically overlooked by most who have celiac disease. It's not actually the 20ppm that is important. It is the total amount of gluten consumed in a day of eating. The 20ppm figure was arrived at by testing the amount of gluten in milligrams that produced villi damage in the test population. It was determined that 50mg of...
  20. trents
    I was asking about the part played by your OCD not only in reference to your reaction to wheat but to how your wife reacts to you in all of this. I assume she knows about your OCD. Does she automatically assume this is the real issue when you report a reaction to wheat, i.e., she sees this in a monolithic way as a mental health issue?
  21. trents
    One thing you should know is that getting accurate testing done for celiac disease depends on regular consumption of gluten. The testing looks for the antibodies produced by celiac inflammation of the small bowel lining in response to gluten ingestion over time. The Mayo Clinic guidelines for a pretest gluten challenge are the daily consumption of two slices...
  22. trents
    Eric, it sounds like your wife could use counseling but if she won't go it would probably be of help for you to be able to tell these things you are sharing with us to a professional counselor, someone who is a skilled listener and someone who can help you strategize in finding the best ways to cope with this situation. Do you believe your OCD figures into...
  23. trents
    Have you tried 2nd generation antihistamines for the MCAS?
  24. trents
    Welcome to the forum, Eric! First, I need to let you know that celiac disease and NCGS (Non Celiac Gluten Sensitivity) are not allergies. The immune system pathway for NCGS is not well-established yet but we do know that celiac disease is an autoimmune disorder. So, I'm not sure this is the appropriate place to address your allergies. But that raises...
  25. trents
    I am not aware of high doses of D3 causing constipation issues.
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