Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,401

  • Joined

  • Last visited

  • Days Won

    507

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Progressively worse, yes but rarely suddenly. We have some reports on the forum of people who believed the onset of their celiac disease coincided with contracting COVID, or at least that it ratcheted up as a result of COVID. Mood disorders have been connected with gluten disorders and you will find them on many celiac disease symptom lists. Plus, when we...
  2. trents
    Kudos to you! You really are on top of it it seems. Keep up the good advocacy for your family.
  3. trents
    Keep in mind that the doctor may also want to order an endoscopy with biopsy to confirm the antibody results if they are positive. She should not cut back on gluten until all testing is complete. Though, at her young age, the doc may be reluctant to order an endoscopy.
  4. trents
    Welcome to the forum, Barcino! How long it takes depends in part on what tests and how many were ordered for each person. Speaking of tests, you say your husband was negative. For which antibody test or tests? I wonder how thoroughly he was tested. Most doctors who aren't GI docs (and even some GI docs) are pretty lacking in their knowledge about celiac...
  5. trents
    Welcome to the forum, Morenaroo! Sounds like the issue for you is learning where and how gluten is hidden in our food supply, particularly processed foods. There is a definite learning curve for avoiding gluten. Takes a year or two but you eventually develop a sixth sense of what to avoid. Perhaps this will give you a jump start: Everything must...
  6. trents
    Welcome to the forum, Rhyanna! Sounds like your 5 year old could very well have celiac disease. Symptoms and family history on both sides make that a strong possibility. At her young age, it would be important to get a "full" celiac panel, and not just the tTG-IGA antibody test which most physicians prescribe. This would include: total serum...
  7. trents
    Make sure all meds (including over the counter stuff) and supplements are gluten free as well.
  8. trents
    Kklop, welcome to the forum! What were the reference ranges used for establishing what is normal for both blood draws? Was the same lab used to analyze the blood samples in both cases? You may not realize it (and I wonder if your doctor does as well) that there is no industry standard for concocting celiac antibody tests so the range used for normal...
  9. trents
    It would not appear so from the results of this study: "However, the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis. It is important to note that these associations did not reach statistical significance after adjusting for multiple...
  10. trents
    It's too bad you had to go over your boss' head to the next level. I hope that doesn't have negative repercussions for your relationship with your boss. Did you explain to the supervisor why you were appealing to her, i.e., that your boss wasn't receptive to your need to take a sick day or two? I'm asking because it seems to me that a conversation needs to...
  11. trents
    I'm supposing the dermatologist dropped the ball there since celiac disease is the only known cause for DH? He probably didn't know that. Was that derm pathology report a part of your medical record that your GP would have access to at that time?
  12. trents
    Did you mean to say, "i can't eat chops . . ."?
  13. trents
    Yes, it's hard for those who don't have a gluten disorder to understand how ill it can make you when you get glutened. It might help to put together a concise description of what celiac disease is and what the symptoms are to educate your boss. In the meantime, if you are still sick in the morning, take her up on her suggestion and call in sick.
  14. trents
    Yes, you must be eating normal amounts of gluten (2 slices of wheat bread or the gluten equivalent) daily starting now and continuing up until the day of the blood draw. If discontinuing dairy didn't help, you might as well go back to it. Dairy is a potent source of nutrition. Have you tried Imodium for the D?
  15. trents
    Welcome to the forum, Sickofbeingsick2023! The tTG-IGA is the most common celiac antibody test ordered by docs because of three factors: 1. It has very good sensitivity 2. It has very good specificity 3. It is a relatively inexpensive test to run. Most other celiac antibody tests suffer from either lack of good sensitivity, lack of...
  16. trents
    To add my 5 cents worth of advice to what RMJ and Scott have said, the total serum IGA test is only relevant in uncovering a cause for negative celiac antibody scores in the face of continuing celiac symptoms.
  17. trents
    I am mistaken about the symbols in the test report. Greater than is ">". Less than is "<". Not sure what the "^" stands for but the essence of what I said about the numeric values themselves is correct. One is a moderate positive and the other is a strong positive.
  18. trents
    The Mayo clinic recommends two slices of wheat bread (or the gluten equivalent) daily leading up to the biopsy but other medical authorities allow for less. But I realize that you also have to manage symptoms in the process. It has gotten better but there is still a lot of ignorance, particularly in the area of general practice medicine, about gluten disorders...
  19. trents
    By the way, welcome to the forum, hanna246! Don't start the gluten free diet until you find out if you will be having a biopsy. You don't want healing of the small bowel villi to happen until after the biopsy since that might invalidate the biopsy results.
  20. trents
    Many people with celiac disease are asymptomatic. We call the "silent" celiacs. I was one. Autoimmune disorders tend to cluster. See my edit in the last post for understanding your test results.
  21. trents
    The tissue transglutaminase is a mild positive but the anti Gliadin AB, IGA is strongly positive. Both have high specificity with regard to celiac disease. So, the chances of these positives being caused by something other than celiac disease is remote. Are you scheduled for an endoscopy with biopsy yet to confirm the findings of the blood work? For...
  22. trents
    Elizabeth, have you already started eating gluten free yet? You should not begin eating gluten free until the endoscopy/biopsy is done or you risk invalidating the results. Healing of the small bowel villi begins as soon as you eliminate gluten. The endoscopy/biopsy's purpose is to check for damage to the small bowel villi caused by the immune system's inflammatory...
  23. trents
    Processed and "formed" meat products often use "meat glue" to bind pieces together in a certain shape convenient for packaging and use. This "meat glue" can cause problems for some celiacs as it is very similar to gluten:
  24. trents
    Welcome to the forum, Elizabeth! Are you asking about whole ham or ham-based sliced lunch meat?
  25. trents
    Good to hear.
×
×
  • Create New...