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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Wendy.DLH! The pathogenesis of celiac disease is, at this point, unknown. There is a strong genetic component to it but also a biological stress triggering component to it, such as a viral infection. It takes both to develop active celiac disease. When you visit with your doctor about getting tested for celiac disease, if he...
  2. trents
    Welcome to the forum, Amanda! Do you have access to the antibody testing results done most recently that you say were more strongly positive than the first ones done? It would be helpful to know exactly what antibody tests were run because some of them are more specific for celiac disease than others. We do now and then get reports from forum participants...
  3. trents
    Do you mean TruMoo milk?
  4. trents
    I sympathize with your food allergy issues. I don't know if you've ever had food allergy/sensitivity testing done (such as the ALCAT test) but when I've had those tests they show I'm sensitive/allergic to 30+ foods. You've got to eat something! And I'm not sure how valid those kinds of tests are as there are so many variables and there can be plenty of false...
  5. trents
    Have you been consuming dairy and oats all this time? These two foods have proteins (dairy = casein; oats = avenin) whose structures are close to that of gluten. A percentage of celiacs react to them like they do gluten. Do you take NSAIDs regularly? Are you on any blood pressure meds? One of them blunts the small bowel villi like celiac disease does...
  6. trents
    Welcome to the forum, Stacy! Can you give us more history on your gluten-free journey? If you just now tested positive for celiac after being gluten-free for 20 years, why were you eating gluten free in the first place? Were you ever actually tested for celiac disease 20 years ago or did you just diagnose yourself with a gluten disorder of some kind...
  7. trents
    Besides celiac disease, there is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity). The two share many of the same symptoms but NCGS does not damage the villi that line the small bowel. NCGS is 10x more common than celiac disease but there is no test for it yet. Celiac disease must first be ruled out. If you test negative for celiac...
  8. trents
    Welcome to the forum, Justsherry! Parietal cell antibody positive and low B12 would indicate pernicious anemia. In this condition, your parietal cells are not producing enough "intrinsic factor" which is necessary for the absorption of B12 which, in turn, prevents the proper absorption of iron from the diet. This condition is offset by B12 injections...
  9. trents
    Keep us posted.
  10. trents
    So, is you question about whether or not you should have the biopsy or whether or not you should follow the doc's recommendation of no Guinness? Two things: 1. Don't equate no discernible reaction to a gluten-containing foods with no damage to your gut villi. Many celiacs whose gut villi are damaged seriously do not have gut discomfort. We call...
  11. trents
    You are certainly welcome! I also feel I need to say that it would be advisable to consider some high potency vitamin and mineral supplementation, making sure they are all gluten free, of course. You say your son is low in D3 and co q10. D3 is a master vitamin that modulates many functions in the body. I would put him on at least 2500 IU daily of...
  12. trents
    Welcome to the forum, brittany5! What a horrible medical odyssey your son has gone through and how nerve racking it must be as his parent! First, even if he doesn't have celiac disease, your son could have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms and NCGS is 10x more common than celiac disease. There is no definitive...
  13. trents
    Scott, the way you worded that is confusing to me. Are you saying that in the USA if modified food starch is an ingredient and it is made from wheat that the source of that modified food starch will not be specified on the label? . . . and if it is made from some other plant source it will be labeled as such?
  14. trents
    I would suggest you consider genetic testing through 23andMe or another third party company to see if you possess any of the genes associated with celiac disease. If you have one or more of them it doesn't confirm that you are a celiac but it does establish the potential for it. About 40% of the population have the genetic potential but only 1% or so develop...
  15. trents
    Welcome to the forum, caseylarae! Your story is not unlike many who have joined this forum. Celiac disease and NCGS (Non Celiac Gluten Sensitivity) are just not on a lot of docs' radar. Most of us suffered for many years before we got a celiac diagnosis and were able to get on the road to healing. By that time, sad to say, irreversible damage has been...
  16. trents
    Welcome to the forum, caseylarae! Your story is not unlike many who have joined this forum. Celiac disease and NCGS (Non Celiac Gluten Sensitivity) are just not on a lot of docs' radar. Most of us suffered for many years before we got a celiac diagnosis and were able to get on the road to healing. By that time, sad to say, irreversible damage has been...
  17. trents
    Welcome to the forum, nataliepike! Looks like you had two celiac antibody tests run, the tTG-IGA and the DGP-IGA, that are used to check for or diagnose celiac disease. Both were negative. The other measurement that was taken was of total serum IGA which, if it is lower than normal, can create false negatives in the other tests. The total serum IGA...
  18. trents
    A skin rash known as dermatitis herpetiformis or "DH" is associated with celiac disease and celiac disease is the only known cause for it. But it has characteristic little blisters in the bumps. It is an epidermal expression of celiac disease and a small percentage of celiacs have only that - no GI involvement. But most celiacs who have DH do have GI involvement...
  19. trents
    "Tissue Transglutaminase (tTG) has been identified as the endomysial antigen." This not a test result. I believe it is just stating what kind of marker the antibody testing is targeting. Your actual test numbers are all negative. Had you already started eating gluten free before the testing was done? If you were still consuming gluten up until the blood...
  20. trents
    Rheumatoid arthritis for one. But I was wrong in my earlier statement. Actually GDP-IGA has a 97% specificity for celiac disease. What it lacks is sensitivity at only 85%. I looked it up. So, if it rings up a positive, the chances are very, very high you have celiac disease. https://www.healthcare.uiowa.edu/path_handbook/rhandbook/test3227.html
  21. trents
    Snoopy23456, welcome to the forum! The symptoms you describe suggest you may have either celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms but there is no definitive test for NCGS. Celiac disease must first be ruled out. However, if you were largely avoiding gluten for some weeks because of the discomfort it...
  22. trents
    For comparison sake, here is what my Kirkland Super B-Complex shows on the back of the bottle: Vitamin C 200 mg - 222% Thiamin 100 mg - 8,333% Riboflavin 20 mg - 1,538% Niacin 25 mg -158% B6 3 mg - 176% Folate 666 mcg DFE (400 mcg folic acid) - 167% B112 100 mcg - 4,167% Biotin 300 mcg -1,000% Pantothenic Acid...
  23. trents
    3000 mcg of sublingual b12 should be plenty. Where are you shopping? What is the brand of the B-complex? It is odd that it does not give amounts/percentages of RMDA on the packaging. If it doesn't, I'd look elsewhere. Like I said, Costco is a good place to look.
  24. trents
    Continue to take the multivitamin you are currently using as long as it is gluten free. I'm saying add to that a high potency B-complex, D3 (5k IU should do it), mag citrate or mag glycinate and zinc. Even though the multivitamin you currently take has most of these already, the amount is insufficient to jump start healing and recovery.
  25. trents
    From Kayla at Wilton: "While we carefully label for wheat in our products and any potential cross-contamination with wheat, we do not label any product as gluten free. In addition, some of our manufacturing facilities may produce other items that do contain gluten and there is always a risk of cross contamination when wheat is present in the manufacturing...
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