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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    If you still have candida overgrowth I would urge you to consider the ketogenic diet. That would starve out the candida which thrives on sugars and starches.
  2. trents
    Was that his report from visual inspection during the endoscopy or was it the lab report from microscopic examination?
  3. trents
    I would think so. But it also begs the original question of are there other medical conditions that can cause elevated IGA? We know there are other conditions, foods and meds that can cause blunted villi but does that equate to elevated IGA? I can't seem to find an answer to that. All the googling I have done connects elevated tTG-IGA with celiac disease...
  4. trents
    Not necessarily. Many celiacs are of the "silent" type and have minimal or no symptoms.
  5. trents
    Welcome to the forum, Sairah! There is a strong correlation between type 1 diabetes and celaic disease. In fact, doctors are beginning to routinely check for celiac disease when a patient presents with type 1 diabetes. With type 2 diabetes, there is no established link with celiac disease but there may be a connection indirectly through obesity...
  6. trents
    In some countries, e.g. the UK, there are subsidies to offset the cost of gluten free food and follow-up care benefits as well if there is an official diagnosis of celiac disease. In those cases, there is extra incentive to go forward with the endoscopy/biopsy and not short circuit the diagnostic process.
  7. trents
    From the OP's second post: "We do have autoimmune diseases like colitis, lupus and rheumatoid arthritis in the family. We used a sperm donor so she has many (many!) half-siblings, which comes in useful for health issues! Several have gluten-sensitivity and one is confirmed for celiac disease."
  8. trents
    I assume you mean you washed the desk and not the pie.
  9. trents
    Is she freaked about the endoscopy?
  10. trents
    "Anti-Smooth Music Antibodies"? Do you mean "smooth muscle antibodies"? The intestines are are classified as smooth muscles. You certainly would be wise to convert everyone in the household to gluten-free eating. That accomplishes two things. First, it eliminates mishaps where the gluten sensitive individual mistakenly consumes someone else's gluten...
  11. trents
    The EMA is not as sensitive as the tTG-IGA and it is not uncommon for that one to be negative when other antibody tests are positive. However, the EMA is very specific to celiac disease so when it is positive it's a ringer. What is the ARA stand for? That's one I have seen before. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity...
  12. trents
    Welcome to the forum, Maggie12! Yes, burping can be a symptom of celiac disease, at least indirectly. There are a number of gut issues often found in conjunction with celiac disease such as low stomach acid. Were you already on a gluten free diet when you had your blood work done? That can drive test numbers downward. And if you are scheduled for...
  13. trents
    She probably has celiac disease, judging from the significantly positive tTG-IGA and IgG. One thing to be aware of is that children often don't show damage to the small bowel villi when biopsied even though they do have celiac disease. Their bodies are so resilient. Does she have other symptoms besides weight loss?
  14. trents
    My experience is the same as yours, Joo. If I drink coffee regularly I develop acid reflux. I would encourage you to look into Mast Cell Activation Syndrome (MCAS) and histamine intolerance. These are often found in the celiac community.
  15. trents
    Working to reverse celiac disease. The idea is that hookworms were a natural part of gut biome balance in premodern times. Supposedly, the hookworms produce regulatory compounds that keep our immune systems healthy. In modern times we have largely eliminated hook worm infections and removed their regulatory benefit. Supposedly, this is a contributing factor...
  16. trents
    Unfortunately, most physicians never check for deficient total serum IGA. And it's not as though the IGG and DGP tests have no diagnostic value even if total IGA is within normal range.
  17. trents
    There are celiac antibody home testing kits available through companies like Imaware. It's a viable option when physician refuses to order the tests.
  18. trents
    Yes, but if these tests are repeated over time as follow-up and there is a pattern then I would think it appropriate to trust the blood tests. Alslo, that's why an endoscopy/biopsy is typically done if blood test values indicate celiac disease. The biopsy is corroboration.
  19. trents
    I agree with you, Mary. Sometimes I think the gluten intolerant/gluten sensitive community is unrealistic in this regard and expects too much. I ate at a local Mexican restaurant the other night and I appreciated how they handled it. On the menu, they had certain meals labeled with "GS" for gluten sensitive. They didn't claim they were gluten free but the...
  20. trents
    What about gluten in meds, supplements and oral hygiene products? What about getting glutened from kissing your husband after he has consumed gluten?
  21. trents
    LP023 never actually said RCD was not real. That was my conclusion from what what he/she did say. which to me, seemed to be inferring that.
  22. trents
    "A raised IEL count with normal villous architecture is not uncommon. Six of the 14 patients may have had latent coeliac disease. The cause in at least half of cases is not obvious at present. The finding of a raised IEL count with normal villous architecture is of sufficient clinical importance to be highlighted in routine duodenal biopsy reports." https...
  23. trents
    One option to consider is to commit to eating gluten free for say, 6 months and then have your tTG-IGA rechecked. If it is within normal range that would suggests you are indeed having a light reaction to gluten. We know there are certain medical conditions besides celiac (e.g. Crohn's and some parasitic infections), some foods (e.g., the dairy protein...
  24. trents
    I don't think so but these other two conditions I mention are not infrequently found in the celiac community. But I wonder if you have "celiac light" (my invented term) such that your body is compensating so far for the damage that the inflammation usually causes in celiac disease. Just for your information, we often get reports of young children with significantly...
  25. trents
    Welcome to the forum, Tara V! In answer to your question, we do have reports on this forum from those who have positive celiac antibody scores (and not just borderline) but no villous atrophy. Frequently, we are exposed to things like this on the forum that defy our little boxes and check off lists. IMO, we are learning that gluten disorders have a larger...
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