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momandgirls

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Everything posted by momandgirls

  1. momandgirls
    Hi - Is anyone else out there intolerant to both soy and lactose? I'm finding it difficult. It seems that most products that are dairy free are made of soy. We wanted to make pizza the other night but all the dairy free cheese was made from soy, for example. And I can't find a dairy free margarine that is both dairy and soy free. What do all of you in the...
  2. momandgirls
    My treatment was called PrevPak. I did not have an endoscopy (and nor was it suggested). I only had the blood test. The PrevPak comes in one big box. It consists of two antibiotics and a bunch of Prevacid and everything is marked clearly. You take two antibiotics and and a Prevacid twice a day for two weeks. After that, you take Prevacid twice a day...
  3. momandgirls
    I was 41 when I had it. It's diagnosed with a simple blood test and the treatment is a two week course of antibiotics. I would think it's worth knowing for sure.
  4. momandgirls
    Hi - I was positive for H. Pylori about three months ago. As far as I know, I don't have Celiac though I am going to have the blood test because I feel like I have a lot of the symptoms and my daughter has it. My doctor ordered the the blood test for H. Pylori because I complained of feeling like I was being choked all the time. My doctor thought it was...
  5. momandgirls
    Thank you - yes, your information is a great starting place. I'm going to try to get to the bookstore tonight as we're leaving on vacation on Sunday. I know that my local library doesn't have those books so hopefully Barnes and Noble will. I was wondering...what about vinegar? or canned/boxed broth? I'm trying to think of recipes that I was planning on cooking...
  6. momandgirls
    Hello - I've written before about my daughter and her test results (elevated TTG antibodies, negative endomysial antibodies, no flattening on biopsy but very high leukocytes, positive for CeliaGene and symptomatic for many years and particularly symptomatic when eating foods with high gluten like bread). So, even though the doctor, for whatever reason, is...
  7. momandgirls
    Thanks Rachel - We're going away on Sunday for a week so I'm going to try to get some gluten free things for her - I'm sure she'll be eating some gluten since we're just starting out with this whole thing but you have to start somewhere, right? So, tomorrow night, we'll be heading up to Whole Foods. We'll definitely be picking up some Tinkyada pasta and...
  8. momandgirls
    Hello - I've written before about my daughter and her test results. We've made the decision to go gluten free for her (she's 11). I guess, since pretty much everything I know about Celiac, I've learned from this board - I'm just looking for advice, suggestions, etc. What brands of foods are the best? Any books that are particularly helpful? Corn and rice...
  9. momandgirls
    Thank you so much everyone for your responses. You're right...even if the doctor doesn't want to give her an official diagnosis, I'm tired of her being sick every day with stomach aches. With the results we have so far and the fact that she's in the bathroom for an hour every time she's eaten bread in the past two days, I don't feel like I need any more...
  10. momandgirls
    Hello - I never heard of enterolab until I read about it on this site. Can someone tell me about their experience with them? Do doctors seem to be aware of them or have you had to suggest it? Do they seem to be a respected lab within the medical community? I've explained this here before but my daughter's in still in the process of her testing. TTG level...
  11. momandgirls
    We're new to Celiac and my daughter is still in the midst of her testing. For as long as I can remember, she's had stomach aches. She had the lactose intolerance breath test and it was extremely abnormal. She's not able to tolerate any dairy at all - even if she takes a Lactaid pill. Even with cutting out all dairy, she still gets the stomach aches - though...
  12. momandgirls
    Hi Rebecca - I don't have Celiac but my daughter's in the process of getting tested/diagnosed and so I've been reading this board and asking questions and, I have to say, everyone is so incredibly nice and helpful. But, in reading your post, I just thought I'd respond to your comment that you have a lump in your throat. I had that feeling for several months...
  13. momandgirls
    Hopefully someone can answer this question for me - my daughter's in the process of being diagnosed for Celiac (positive antibodies, "borderline" biopsy and positive CeliaGene). I'm not happy with her current GI doc and am in the process of making an appointment for a second opinion with someone else. If she does have Celiac (which I'm thinking she probably...
  14. momandgirls
    Hi - I just found this site and your post. I'm also in MA. My daughter's in the process of being tested for Celiac Disease at Children's. I haven't been totally happy with our GI there and have heard good things about the Celiac Center at Beth Israel. It sounds like you were happy with Dr. Cheney. I'm thinking of getting a second opinion for my daughter...
  15. momandgirls
    I just found this board and have been snooping around and reading posts for about a week now. My daughter's 11 and has had chronic stomach aches since infancy. No doctor has ever had an explanation. Finally, we saw a pediatric GI and she's been through the wringer with tests. First, they found that she is severely lactose intolerant and, even with cutting...
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