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Fiddle-Faddle

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Do full workups now include vitamin deficiency testing? Wow, that is really good news. Every "full workup" I've ever had included hundreds of dollars of blood tests--and the only deficiency ever looked for was anemia. If your doctor is smart enough to be looking for vitamin deficiencies, (s)he is likely smart enough to have looked for thyroid problems...
  2. Fiddle-Faddle
    You might want to read the whole thread (and others) at Open Original Shared Link as there are other ideas there that may be helpful for your dizziness and ataxia. One other idea mentioned there is B12 deficiency. A common symptom of celiac is acid reflux, which is almost always treated by long-term Prilosec. Long-term Prilosec use causes B12 deficiency...
  3. Fiddle-Faddle
    According to Open Original Shared Link "Many people here have found that certain foods trigger Meniere's symptoms. The most common offending food seems to be wheat. The protein in wheat is called gluten, and it is also found in other grains (barley, rye, and oats). Celiac Disease is an autoimmune disorder triggered by gluten, and increasingly common...
  4. Fiddle-Faddle
    I don't think any test can tell you "for sure." Doctors don't agree on whether gluten intolerance belongs under the subheading of celiac, or vice versa. Some think they are two completely separate conditions, while others believe that gluten intolerance is simply early-stage celiac. Genetic tests can indicate likelihod, but plenty of people without...
  5. Fiddle-Faddle
    Annalise Roberts has a cookbook of recipes specifically for the Zojirushi bread machine: Gluten-Free Baking Classics For The Bread Machine. You can probably find a used one on-line. Many of her recipes also appear on www.foodphilosopher.com. You can also try www.betterbatter.org, which has a ton of very good recipes, and they sell a very nice...
  6. Fiddle-Faddle
    Actually, wheat IS a common allergen, and if it is an ingredient, it is now required to be clearly listed on labels of food products made in the US and in Europe.
  7. Fiddle-Faddle
    I've never refrigerated my gluten-free flours (which I buy in bulk), and they've been fine. I do store them in sealed hard plastic food containers (I bought mine at Sam's Club). That keeps creepie-crawlies and humidity out, and they also stack very nicely.
  8. Fiddle-Faddle
    We buy Rudi's gluten-free bread at Costco! 2 packages for $7.89--we buy 8 loaves at a time! (4 of us gluten-free in this family!)
  9. Fiddle-Faddle
    If it were my child, I would take him off gluten immediately. And, in fact, that is exactly what I did do with my children. If it were a peanut reaction, no way would they make you feed your child peanuts until he reacted enough for them to MAYBE see it in blood work or endoscopy. And gluten-loading for a few days is NOT enough for the test to be accurate...
  10. Fiddle-Faddle
    I have had very similar symptoms to what you describe. Various doctors came up with various diagnoses: migraine disorder, cochlear hydrops, Meniere's Disease, Benign Positional Vertigo, etc. Turned out, I had B12 deficiency, which probably started before I went off gluten, and was exacerbated by 10 years of Prilosec (for gluten-induced acid reflux)...
  11. Fiddle-Faddle
    There are support forums about the question of ablation vs. hysterectomy; here is just one: Open Original Shared Link
  12. Fiddle-Faddle
    I'm just wondering if you've had your thyroid checked, and also if your doctor is "up" on the latest levels deemed to be optimal? I had heavy, extremely painful periods last year. The OBGYN did NOT think to check my thyroid levels, even though I'd been treated for Hashimoto's for years. Later, I had surgery for something else, and the surgeon checked...
  13. Fiddle-Faddle
    My apologies--it is much muddier than what my initial impression was, when I first looked up PSC. If you like, I can edit my previous post. It looks like PSC and celiac are strongly linked, and it SEEMS that untreated celiac actually causes the PSC? At least, that's the impression I'm coming away with. I didn't see a single case of PSC linked with celiac...
  14. Fiddle-Faddle
    Prozac is VERY dangerous stuff. PLEASE don't stop taking it cold turkey! You should wean off very, very slowly, under the care of a doctor. Open Original Shared Link "Often there is the terrible withdrawal associated with the SSRIs. Unless patients are warned to come very slowly off these drugs by shaving minuscule amounts off their pills each day, as...
  15. Fiddle-Faddle
    Hysterectomy? You might not NEED a hysterectomy if you go off gluten. Open Original Shared Link
  16. Fiddle-Faddle
    It actually doesn't make a whole lot of difference if it's shingles or DH. Either way, gluten is setting off an autoimmune reaction. If it really is shingles, antivirals will help. Shingles tend to be terribly and unrelentingly painful, with some itch as well; DH tends to be unbearably and unrelentingly itchy, with just a bit of pain. I've had them...
  17. Fiddle-Faddle
    You mention that you have children. I was wondering how old they are? And if they might be at risk of having either celiac or gluten intolerance themselves? The predisposition IS hereditary; while your celiac was apparently triggered in adulthood, theirs might be triggered earlier. Vaccines are a common trigger of autoimmune disorders. Adults are receiving...
  18. Fiddle-Faddle
    First of all, I think that the cravings effect of gluten is extremely strong, and takes weeks of 100% gluten-free to go away, even for an adult. Secondly, I agree that at this point, you should not be calling gluten-eaters "normal." It just makes your daughter feel like she's NOT normal, and that there is something WRONG with her. She doesn't need that...
  19. Fiddle-Faddle
    Hi, Worried bro, your sister is lucky to have such a caring brother! The normal level of antibodies varies from lab to lab, as each lab can set their own reference range, but in general, healthy people do NOT produce antibodies to gluten, nor gluten-triggered antibodies to their own bodies, which is what the celiac blood tests test for. The biopsy has...
  20. Fiddle-Faddle
    WOW, that was fast! I got all excited when I saw all the gluten-free societies listed for the various countries. Unfortunately, I don't speak much German, French, Lithuanian, or Polish, so unfortunately, I can't get much help from those societies. (If I spoke those languages well, I probably wouldn't need to ask for help! )
  21. Fiddle-Faddle
    First of all, I applaud you for starting your son on the gluten-free diet already. Many parents would wait for official approval from the doctor (usually requiring a biopsy) before doing so, which is something I strongly disagree with. You already know from the blood work that gluten is causing problems. The fact that your son's mouth sores have already...
  22. Fiddle-Faddle
    I will be traveling for work in Weisbaden, Hamburg, Vilnius, Vienna, Lucerne, London, Paris, Bonne, and Berlin. I've been to London and Vienna with no problems, so I think I'll be okay there. I'm a bit less confidant about finding gluten-free in the other cities. I am traveling with a large group, mostly by bus and plane, with a couple of trains, which...
  23. Fiddle-Faddle
    We went through this with our middle child. We did get a second opinion, and I am so glad we did. The first dentist, like yours, told us that there were several cavities in the front teeth that needed to be addressed immediately or he would have severe problems with his secondary teeth, including more decay. The second dentist looked, said, "hmmm...
  24. Fiddle-Faddle

    Hey I noticed on an old post that you have PCOS, Celiac, AND a child? I am trying to get pregnant and my faith is really waivering... Did you have to do anything special to get your body to accept a pregnancy?

  25. Fiddle-Faddle

    Hey I noticed on an old post that you have PCOS, Celiac, AND a child? I am trying to get pregnant and my faith is really waivering... Did you have to do anything special to get your body to accept a pregnancy?

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