
Fiddle-Faddle
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Fiddle-Faddle
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ARCHIVED When It's Not Celiac's
Fiddle-Faddle replied to 123xyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had 2 endoscopies, both without any sedation at all (at my request). I DO remember, and it did look exactly like a garden hose, only black. -
ARCHIVED Whole Foods gluten-free Sandwich Bread
Fiddle-Faddle replied to DawnDG's topic in Gluten-Free Foods, Products, Shopping & Medications
I think both of you (and anyone else who has noticed this) ought to contact Whole Foods directly about this. They won't know that there's any problem to investigate unless told by someone. -
ARCHIVED When It's Not Celiac's
Fiddle-Faddle replied to 123xyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, I should have said, "less invasive" rather than "non-invasive." Sorry about that! -
ARCHIVED When It's Not Celiac's
Fiddle-Faddle replied to 123xyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tapeworms are usually diagnosed by analyzing stool samples, not by endoscopy: Open Original Shared Link. So this is actually NOT a good example of why an endoscopy is a good idea (which is not to say that endoscopies are never a good idea). In this case, the doctor obviously dropped the ball more than once. Non-invasive tests (like blood work and stool... -
ARCHIVED Please Help Me!
Fiddle-Faddle replied to 024Mandy's topic in Introduce Yourself / Share Stuff
Be aware that most margarines contain casein (read the label)--you'll have to look for special dairy-free margarine. I was wondering if the Plaquenil or something else you are on might be causing your intestinal symptoms? Also wondering if some kind of bacterial infection of the gut or even Lyme disease might be a possibility. One member here found... -
ARCHIVED Which Formula Is gluten-free?
Fiddle-Faddle replied to mandigirl1's topic in Related Issues & Disorders
I owe the thanks to my sister-in-law, who had a very tough time getting started, but eventually became the Queen of Breastfeeding, and passed her hard-won knowledge on to me. Both her mother and mine wanted very much to be able to help, but neither had been able to nurse their babies, so they both felt very helpless watching us struggle to get started. -
ARCHIVED An Amazing Collection Of Recipes
Fiddle-Faddle replied to Jestgar's topic in Gluten-Free Recipes & Cooking Tips
Wow, David, this is really awesome! I'm forwarding the link to all the celiacs I know! -
ARCHIVED Connection Between Celiac And Psoriatric Arthritis
Fiddle-Faddle replied to mimommy's topic in Related Issues & Disorders
Fascinating--thank you for posting this! -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
What I meant was a somewhat more organized, interactive section on doctors, where you could perhaps click on a city, then on a specialty (GI, endocrinologist, dermatologist, etc.) and find names of doctors, and if you clicked on those, you could find comments. Maybe there could also be a section rating the doctors by number of positive vs negative comments... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
Aren't you jumping to conclusions? You assume firstly that others might not be actively seeking a solution, first of all, and secondly, you assume that venting is pointless. As I said before, venting --or complaining-- is not pointless, even without taking into consideration that someone reading the thread might learn something, either from the vent or... -
ARCHIVED Another Ttg, Not Looking Forward To Results :(
Fiddle-Faddle replied to kaiess's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
BTW, if your son has any additional issues like asthma or eczema--they are very likely directly related to gluten, and will likely resolve or improve on a gluten-free diet. I'm not sure I should pray for a reduced TTG. It sounds awfully likely that your son already has celiac. If his TTG were to suddenly reduce, he might not get the treatment he needs... -
ARCHIVED Another Ttg, Not Looking Forward To Results :(
Fiddle-Faddle replied to kaiess's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can already cook everything you need to--you just need to substitute a few ingredients, that's all! Really. You can use rice pasta instead of whatever you were using. Tinkyada brand is available at most grocery stores (usually in the organic section), and has directions on the package. I have to use a bit more water in the pot than I used to with... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
First of all, I'm sorry about your friend, and am sending prayers for her recovery. Second of all, that picture of you is ADORABLE. Thirdly, it's terribly expensive and time-consuming to search for doctors. Perhaps we could convince Scott to fine-tune things so that we could have an organized way (like, by City/State!) to search for doctors, recommend... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
I think both quotes have some basis in fact, and also carry at least some connotation of hostility. But the "fools" quote has some direct bearing on many of us here on this board. Most of us have complained, criticized, and (gasp!) even whined. Sometimes it's just to vent; sometimes it's a way to look for help and suggestions. Sometimes, I think... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
I do understand Mayfaire's point. I think that the quote strongly implies that people who criticize and complain are fools. On this board, is there a clear line past which we are not allowed to disagree, argue, and yes, sometimes argue quite heatedly? And are we also prohibited from criticizing and complaining? Even if someone who criticizes and complains... -
ARCHIVED Zantac No Longer Working...
Fiddle-Faddle replied to NorthernElf's topic in Gluten-Free Foods, Products, Shopping & Medications
I have had reflux issues for many years--in addition to the gluten issues, I have a hiatal hernia,which allows stomach acid back up in my esophagus, yuck. I went from Tums to Pepcid to Zantac to Prilosec to Nexium. Nexium worked well in huge doses--but then I went gluten-free. Eventually I was able to take one Prilosec (well, generic Prilosec) in the... -
ARCHIVED Am I A Bad Mom For Not Letting Them Biopsy My 16 Month Old?
Fiddle-Faddle replied to Stacielovas's topic in Parents, Friends and Loved Ones of Celiacs
I agree. At least, a blood draw is minimally invasive, and, if you handle it right, not too traumatic for little ones. A 16-month-old can usually be distracted for at least a few seconds, and it's not nearly as painful as a shot. You'll want to make sure he's not dehydrated, as that can make it difficult for the phlebotomist to find a vein. If you have... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
No, they are not mentioning that the MMR has been determined in two separate cases to have caused autims (Hannah Poling and Bayley Banks) (Open Original Shared Link) They are also implying that "experts" have never considered that the MMR caused autism, and that's not true, either. There ARE experts who think so, and experts who don't think so The... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
Now, that comes across as downright snotty. Maybe I'm misinterpreting something here? I don't recall ever saying that doctors are there to repair things that are within my capabilities to repair. In fact, I was raised to always question doctors, and to get second opinions whenever possible. The majority of people you interact with feel--what? What do... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
Well, I can't say that I think that the MMR flyer was accurate--but at least it mentions that children have had severe reactions immediately following it! -
ARCHIVED Am I A Bad Mom For Not Letting Them Biopsy My 16 Month Old?
Fiddle-Faddle replied to Stacielovas's topic in Parents, Friends and Loved Ones of Celiacs
I also wanted to add--my oldest was very underweight as an infant. If I knew then what I know now, I would never have let them give him so many vaccines (26 by 18 months!!!). I would have done a very few of them, ONE AT A TIME, and turned down a lot of them altogether. They don't vary the dosage of vaccine by weight of the child. My 4 1/2 pounder... -
ARCHIVED Am I A Bad Mom For Not Letting Them Biopsy My 16 Month Old?
Fiddle-Faddle replied to Stacielovas's topic in Parents, Friends and Loved Ones of Celiacs
Suppose the shoe were on the other foot. Suppose the doctor biopsies a 16-month-old, and the findings are negative (false negatives are common in the very young, though false positives are extremely rare). Suppose after a few years, and MANY more, and serious health problems, the diagnosis finally does come back positive. Forget the idea of a bad mom... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
Not just harsh, but also narrow-minded. There is a cultural element here that has nothing to do with not caring about yourself enough to protect your health. It is about having been raised to have faith in and respect for members of the medical profession as experts with knowledge not available to the layman. Certainly, in the past (pre-Internet days... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
How many parents do you think even KNOW that this is possible? I didn't, and I'm not exactly an idiot, nor am I lacking in formal education. And how many pediatricians are advised, as our ped was, that the first MMR shot only lasts 5 years, and that's why a booster is "necessary?" He offered us a titer as a long shot to avoid a second MMR; HE didn't... -
ARCHIVED Many Doctors Are Trained By Big Pharma
Fiddle-Faddle replied to mayfaire's topic in Doctors
Actually, at a university, it doesn't matter if you pay for your own research--as faculty, research fellow, PhD candidate, grad student, whatever, your research belongs to the university.