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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    I had a terrible episode of ovarian pain a few months ago. I was told by the ER doctor that my experience was typical of a burst ovarian cyst, and that by the time they burst, they no longer show up on the ultrasound. I had been having ovulatin pain for several months before that, on the right side, but that seems to have calmed down. I am exercising much...
  2. Fiddle-Faddle
    Perhaps the Rice Chex reaction poll ought to get more specific. Maybe those who react to it all live in a certain part of the country, or have bought boxes made from the same batch. Maybe they are all super-sensitive, and react to the tiniest trace of gluten, left by the stock boy who had just finished munching a sandwich before unloading the boxes. ...
  3. Fiddle-Faddle
    You raise many interesting issues, and ask thoughtful questions. The problem with the "definitive diagnosis" being through biopsy is that this was defined 50-something years ago. At that time, the sophisticated blood tests of today weren't in use. Doctors today still cling to this notion of the biopsy being the "gold standard" of diagnosis....
  4. Fiddle-Faddle
    I had hyperemesis with all three babies, for the whole pregnancy. With the third, it went away about a week before she was born--but I don't remember what I was or wasn't eating that week! I didn't go off gluten until years later. I also had pre-eclampsia with the first.
  5. Fiddle-Faddle
    I had a very bad reaction to Singulair, which was prescribed to me when I had bronchitis/pleurisy as a reaction to the flu shot. It made my coughing and wheezing immediately worse--much worse-- rather than better, and my doctor didn't believe me when I called him to tell him that. He switched me to Advair--and the same thing happened. The doctor didn...
  6. Fiddle-Faddle
    I totally agree with No More Muffins, and also think that you put your finger on it--your EGD and biopsy will pay for his expensive office and rude, ignorant staff. If you pay out-of-pocket for Enterolab, the results will NOT be available to your doctor or your insurance company (unless you choose to give it to them)--which could be a good thing. Insurance...
  7. Fiddle-Faddle
    I had headaches that the neurologist claimed was an atypical migraine disorder. I also had a B12 deficiency that may have been caused in part by gluten/malabsorption, but was mostly due to 10 years on acid blockers (like Prilosec), which are listed on B12 sites as being a primary cause of B12 deficiency (you NEED acid to properly absorb B12). I was on...
  8. Fiddle-Faddle
    While it would be a good idea to see if there is any gluten-induced intestinal damage, the fact that you have been gluten-free already, as stated above, is going to raise the likelihood of a false negative, as once you are on a gluten-free diet, damaged villi heal quickly. That said, there's a lot to be said for dietary response as diagnosis. I'm not...
  9. Fiddle-Faddle
    B12, D, and magnesium deficiencies, as noted above, can all contribute to headaches. If you have been gluten-free for a significant period of time, your intestines might have healed, so theoretically, you should not have absorption problems. However, if you have been on acid-blockers (like Prilosec, for example) for more than a couple of months, that is...
  10. Fiddle-Faddle
    What a great link--thank you SO much for posting it! I have had only occasional optical migraines (looked like the first video, but the auro itself was in black in white--I didn't get any of those pretty colors!), but recently was diagnosed (questionably) with atypical migraine disorder by the neurologist, who thinks that the ENT's diagnoses of Meniere...
  11. Fiddle-Faddle
    Oops, sorry, Gemini, I can't edit my previous post where I made the error that you pointed out.
  12. Fiddle-Faddle
    I'm so sorry, Gemini, I didn't mean to misquote you. Reading back, I'm guessing that I confused your post with GottaSki's. I will edit my previous post. I don't recall either posting or thinking that you addressed anybody's issue with denial or lack of proper diagnosis, either--??? My understanding is that people with DH but without classic wheat allergy...
  13. Fiddle-Faddle
    The initial response to gluten may occur in the small intestine, but the autoimmune response then occurs in the blood stream, according to https://www.celiac.com/categories/Celiac-Di...ance-Research/ Celiac Disease and Physical Activity * By Claire Atkin * Published 06/2/2009 * Celiac Disease & Gluten Intolerance Research ...
  14. Fiddle-Faddle
    There have been several people on this board who were initially evaluated for MS, and they did find that their symptoms were caused by celiac. There is also a strong connection between MS and Lyme disease, and many believe that MS is misdiagnosed Lyme, so that's something else to rule out. Since less than half of those diagnosed with Lyme ever had the...
  15. Fiddle-Faddle
    pinksmashing, it sounds like you have a huge case of...denial. Your blood work says that you do have either celiac or gluten intolerance, which is treated by diet, the same way as celiac. Muscle testing does not diagnose celiac disease, which is not a wheat allergy, but an autoimmune response. You also have autoimmune thyroid disease, and your "new...
  16. Fiddle-Faddle
    Whatever you do, I think you need to do it as soon as possible--you have obviously suffered a LOT of damage, and if gluten is what's causing it, you need to get it out of your system ASAP. People with long-term damage don't always heal 100%, and the odds are better, the shorter the term of damage. There are also other problems that may cause similar symptoms...
  17. Fiddle-Faddle
    Good point. You also probably noticed that nowhere in the media does anyone discuss the 1975 outbreak of swine flu, nor the disastrous results of the vaccine developed for THAT outbreak. There IS a lot of discussion of Tamiflu and flu shots, and every time I turn around, I hear people saying that they have a fever, or a headache, or a cough, and that they...
  18. Fiddle-Faddle
    I react quite strongly to maltodextrin, even though my gluten reactions are mild to the point of being unnoticeable at times. At first, I was convinced that maltodextrin must contain gluten, since I was reacting to it--but apparently, it doesn't. I can only conclude that rather than being allergic to it or intolerant to it, my body simply recognizes it...
  19. Fiddle-Faddle
    First of all, keep in mind that the first appearance of swine flu in America was in 1975--60 Minutes did a special on it in 1979, with Mike Wallace, because the vaccine that was rushed into production ended up killing more people than the swine flu itself did. Also, several hundred people, according to 60 Minutes, ended up with a serious, sometimes fatal...
  20. Fiddle-Faddle
    There are many celiacs who have reported reactions to gluten-containing lotions, though the current medical thought indicates otherwise. If you are prone to any kind of skin rashes, I WOULD avoid gluten-containing lotions, as it is quite possible that those celiacs who are prone to skin rashes have either an additional kind of sensitivity to gluten or an...
  21. Fiddle-Faddle
    Betsy, it took about a week to be sure that we were seeing consistent results and not the "waxing and waning" we were seeing prior to going gluten-free. In retrospect, that waxing and waning could have been from diet--we had always eaten a lot of rice anyway. My son had no growth issues--only rash and tummy aches/diarrhea. His eczema DID turn bright...
  22. Fiddle-Faddle
    I hate to say it, but I'm not sure I agree with you that your doctor is very knowledgeable about celiac. A weak positive is the same as a weak positive for a pregnancy test: it's positive. If he did the correct tests (i.e., not a wheat allergy test, but the "celiac panel"), those are testing for antibodies to gluten, and autoantibodies. You don't...
  23. Fiddle-Faddle
    My son's chronic severe eczema--which did NOT respond to the cortisone creams, even when my fingers went numb--disappeared after a several weeks on a 100% gluten-free diet. All the doctors agreed (before this) that it had nothing to do with anything he ate. Each one wanted to give him stronger and stronger cortisone creams. Then they wanted him on some...
  24. Fiddle-Faddle
    If you have Meniere's Disease, there are some VERY interesting discussions on some of those forums. In particular, there are two unrelated ideas for alternative treatments that seem to be helping a lot of people. One involves chiropractic neck adjustments. I showed the thread to my chiropractor, and he already knew all about it--I had just never complained...
  25. Fiddle-Faddle
    I have a colleague from mainland China who experienced exactly what your mother did. He is now (after nearly 30 years) gluten-free and feeling much, much better.
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