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Everything posted by gfp
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ARCHIVED What Is "the Basic Diet"
gfp replied to Missouri Farmer's topic in Coping with Celiac Disease
This is all excellent advice... Unfortunately as others have pointed out, seeing the wrong MD or nutritionist can be more confusing. Unless they have actually had to eat gluten-free themselves they rarely "get it" regarding CC and industrial products. Can you live off fresh vegetables and meat? Our ancestors did for hundreds of thousands of years... -
ARCHIVED Diagnosis And Statistics
gfp replied to gfp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok, first thing we need a study BUT that study needs a control. Italy manages to screen everyone at school. Scientifically you can't have a perfect test.... you need to have one that has either flase negatives or false positives but screen everyone at school and awareness sky rockets. We need more accurate controls on blood tests, most studies have... -
Not older but not far off! But my mom was 30 when she had me and we were very poor and didn't have much in the way of luxury items. Perhaps I got to see them all introduced one by one .. certainly my grandmother spent her whole life without most of thse labor saving devices and never had a car. I spent 5 years of my life carrying water from a well...
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OK, a different view point is to forget about the calories.... (I agree with the rest of the post) Exersize is a means in itself, our body needs exersize to be healthy... that exersize can be ping pong as you say.. but we can burn calories just doing academic things but it doesn't have the same benefits as exersize! Today's modern life is almost...
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ARCHIVED Diagnosis And Statistics
gfp replied to gfp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In your case the damage was both severe and not completely repairable... I just don't see how if every single study uses biopsy as the only positive that we will ever get to that point. celiac disease seems to be one of a very select group of diseases that is DEFINED by a test.. and because it has such a high false negative rate any suite of tests where... -
Colby, your written style is excellent; truly a joy to read. Perhaps this should be your tool of choice? I really mean this, you come across as frustrated not bitter and this is IMHO perfectly in line with what you are saying and have to get off your chest. It truly adds a passion to your communication and perhaps THAT can make a difference? My...
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ARCHIVED Gluten Protein In Breast Milk
gfp replied to home-based-mom's topic in Related Issues & Disorders
Actually a lot of people seem to think not ... I'm not one of them though... It makes sense, I'm mot sure how much wheat they eat... but they must certainly have some. First ... Well, perhaps it does and perhaps it doesn't. Gluten is produced in the actual seed part.. this is true BUT ... Its not actually gluten does the damage but a small part... -
ARCHIVED Diagnosis And Statistics
gfp posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yet another article proving conslusively thay celiac disease is actually caused by the actual biopsy. ??? Using the biopsy as the gold standard 100% of patients not biopsied did not have celiac disease. So statistically only patients biopsied had celiac disease. The control (blood tests) do not have celiac disease since they didn't have a biopsy. ... -
ARCHIVED I Can't Do This Anymore. Any Suggestions?
gfp replied to GhostLady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
www.scielo.br/pdf/anp/v62n4/a07v62n4.pdf and from this site: https://www.celiac.com/articles/112/1/Brain...ease/Page1.html -
Please don't get offended .... this is just my 2c. Much as its convenient for the store to be close to you it makes business sense to put it where the customers are. How far would I personally travel REALLY varies .... I have made special trips on quite a few occaisions of a few hours but these are pretty much novelty. When I travel I will...
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Sorry if you don't like "get over it" .. there are other ways to word it but what offends one person might not another. Everyone has lots of issues but when they affect your health then its time to push through them. If its not serious enough to need to seek professional help then its something you should get over for your own sake. Had...
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ARCHIVED Barbecue Sauce Help Please....
gfp replied to Mistilyn's topic in Gluten-Free Recipes & Cooking Tips
gluten-free Soy sauce, lemon and or lime juice, pureed fruit (apple, pear etc.) is a good base to add to. We posted quite a few the other week so do a search on the forum. -
The great outdoors is another option.... Many people are, nothing weird... however I strongly advise ... get over it.... (I know its easier to say than do) I have a friend who is 1/4 cherokee and inhetirted a metabolism... he was obese in Europe where obesity is not so common hates exersize and had a bad diet and smoked 100 a day. Whenhe was told...
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ARCHIVED How To Tell What The Reaction Is From?!
gfp replied to jewi0008's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me the time frame is variable, the amount ofgluten doesn't sem to exert a measureable control over the other variability. Issues like general health, what your immune system is up to as well wtc. seem to play a bigger part. I can get sweats and mood effects after hours and gastro might take 4 hours or 4 days. Also once glutened it comes and goes... -
Like I observed really, I once sat in on a meeting only because an other division were using our high tech projector and I had the meeting room 1st. Company in question were discussing saving money on plastic bags at service stations and someone pointed out if they got any thinner they would just break on the forecourt. The someone said , good they...
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This is pretty much my opinion. The bigger the company the more disassociated it becomes... so some guy purchasing has a job of getting the cheapest bul ingredients and someone in another state or even country has the responsibility for QA. Having worked for a few large internationals it sems to usually be a case of the left hand not knowing (or caring...
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ARCHIVED Those Of You On A gluten-free Diet And Retested
gfp replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It seems to methat since babies are growing so quickly they repair much more quickly. As we get older our repair system slows down but for a baby the damage may repair as fast as it is made. This means the biopsy is much more tricky since the villi are repairing as fast as they are damaged and its much more tricky (need more luck) to find them damaged.... -
Yep it depends WHERE the malto dextrine is from. Europe has both wheat and non-wheat derived .. the US only corn etc. However malto-dextrine is a commodity. Its a waste product which is processed into something that can be sold. A company may buy this on a world market and because its essentially a waste product its bought and sold along with...
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ARCHIVED Are Blood Tests Accurate After 6 Yrs gluten-free?
gfp replied to erintigs's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I doubt that will really help. Unfortunately. The bottom line is celiac disease testing is not looking for an absolute but a cut-off. If you never had TB or immunisation you would be negative because the body has no antibodies BUT testing for IgG and IgA there will always be some and a positive or negative is an artificial cut-off. Your MD's rational... -
ARCHIVED Those Of You On A gluten-free Diet And Retested
gfp replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The problem is this can go on forever. There are plenty of biopsy positive people who got told they would "grow out of it" ... -
ARCHIVED Those Of You On A gluten-free Diet And Retested
gfp replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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ARCHIVED Should I Be Seeing More Results?
gfp replied to jesslynn555's topic in Parents, Friends and Loved Ones of Celiacs
He can get more available calcium through greens and things like whole sardines ... and as has been said the diary and soy are harder to digest. As Ursa asked .. is the whole house gluten-free? -
If your Doc is correct (and I believe they are) then the ratio's are pointless until you get a new balance. Her adsorbtion is completely different as she recovers and will probably keep changing as she heals further. I would think the best thing would be to fall back to testing until this stabilises as your rules of thumb are likely to keep changing...
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ARCHIVED Testing
gfp replied to Beck's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The gold standard really only applies if you DEFINE the disease by that test. A full panel blood test is actually far more reliable at giving a positive but it all depends HOW you classify the disease. A GI will lean towards calling celiac disease a GI problem and a neurologist a neurological problem ??? Open Original Shared Link If... -
ARCHIVED What To Do About My "mixed" House
gfp replied to Nan2N's topic in Coping with Celiac Disease
This might work if you can get the cat to use a tooth brush and mouthwash afterwards. Admittedly, cats are much cleaner than dogs in this regard but they are still gong to get some on their fur round their mouth and then rub up against you ... on top of this they will spread the food all round their fur when they clean .. How much? How big a risk...