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gfp

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Everything posted by gfp

  1. gfp
    That is a tough one! your DD's father's friend is obviously in denial.... of course he/she should know better and perhaps at the back of his/her mind they do but I don't see any easy way's around this. My sig is a very old quote from Julius Cesar... It says "Man(kind) will willingly beleive what they want to beleive" You are not fighting against...
  2. gfp
    OK, I just had an idea whilst answering another post. We can do something huge to help outselves and it can be done for almost nothing if we club together. For my photography I get postcards printed. For bulk its remarkably cheap.... These are basic size postcard size prices.... If a country could reach 10,000 total this is 0.5c...
  3. gfp
    I have done a lot of public speaking and presentations in my life (mostly scientific) and I am meant to be quite good at it ... The 'secrets' (if you can call them that) is really not hard ... and it amazes me so many people don't .... Getting the point about celiac disease across is a presentation or a sales pitch ... if you want to look at it that way...
  4. gfp

    ARCHIVED Vent

    gfp replied to MDRB's topic in Coping with Celiac Disease

    Quite often those closest to us have the hardest time accepting ... All those times you have been sick and your mother gave you gluten but she can't come to terms with that so instead she is in denial. I don't think this makes her evil, it just means she can't cope so she won't let herself believe she was poisioning you all those years... IMHO...
  5. gfp

    ARCHIVED Vent

    gfp replied to MDRB's topic in Coping with Celiac Disease

    oops double post: mod please delete
  6. gfp
    I just read it .... the info overload is the CODEX entry on gluten-free. The Codex was written in the 60's and then updated about 1983 (The exact dates are on their website)... back then we had far less additives and far less was known about celiac disease. (This might seem impossible given we know so little even now). It was also written BY the...
  7. gfp
    Your certainly not thick if it doesn't make sense ..! Quite the reverse ....because it reallydoesn't make sense UNLESS you imagine it was written by someone who thought gluten free food means gluten-free pasta or gluten-free bread. Like you I pretty much stick to things that are not "replacement foods" but the reason these foods can't say gluten-free on...
  8. gfp
    This is one of those questions noone can answer but yourself and both are equally relevant... It may not seem a big deal but convincing family members and friends is often way more difficult than we expect... The arguament "but I feel so much better" just doesn't seem to convince many and then it becomes an extra burden in your gluten-free journey. ...
  9. gfp
    Yep quite a few brands actually do that... wheat free is meant to mean just that .... its the gluten free label that's confusing. Some of it is and some of it isn't .. wherein lies the problem. I bolded the partswhich add confusion... 1.3 - So the Corn Tortilla, Rice cake cannot be labelled gluten-free... except ... 2.1 then say's they can add...
  10. gfp

    ARCHIVED Lightheaded

    gfp replied to soccermom's topic in Coping with Celiac Disease

    Brainfog is very hard to describe but those of us that get it can identify it pretty well. As kbtoyssni said ... its almost like not being in proper control of your body to me... and a generally dissacociative state ... a weird way to describe it many agree is its like an "inbody out of body experience" ... I tend to thinkof myself in the 3rd person almost...
  11. gfp
    It could just be a function of age or a change in diet or both ... going gluten-free you have undoubtedly changed what you eat and what your body is accustomed to, I guess the longer you were undiagnosed the more used to the old foods your body is. It could also be a hangover from pre-diagnosis ? where your body was trying to get every ounce of nutrition...
  12. gfp
    Not everyone is OK with oats anyway but I would really stay well clear. If you are using it for shaving then its like injecting it direct... (presuming once in a while you do nick the skin)...
  13. gfp
    Both this and milk are likely culprits. Being 65 your Villi will take longer to heal. Your about the same age as my mom and she also had lots of problems getting her villi to heal but she also continued with milk and soya and she was also getting CC from her dog. Its a catch-22 like situation, with damaged villi its difficult to get the nutrition to...
  14. gfp
    Moreover its illegal in Modena and Reggio Emila. Its not really about the allergens, if they had allergens then the EU would force them to label them but the policing is done very very strictly to ensure the livelyhood of the region and the product from how it is grown and harvested to what exactly can be put in. This works well for us because...
  15. gfp
    As others have said .. Anything that gets onto the skin potentially end up in the mouth ... I'm not so sure about this... the antibodies just need to be in the blood or the gluten to get into the blood for it to be recognised and antibodies produced. Simply producing antibodies on a continual basis is enough to make many sick and neurological and...
  16. gfp
    This is a long and complex subject. For a lot of historical reasons, not to mention constitutional and well plain greed the US doesn't follow International Law for "Regional Protected" origins. In a simple way, if its not Trademarked in the US then the US doesn't enforce any international "area trademarks" . So you can have a cheese made in Florida...
  17. gfp
    Bleach is useless or no better than soap. Gluten isn't alive, it can't be killed and bleach is not an effective cleaner in that it doesn't 'lift' it just kills bacteria. Neat alcohol is probably the best cleaner if you decide to try and scrub things clean.
  18. gfp
    As if to demonstrate how individual celiac disease is I'm almost the opposite. The amount doesn't seem to matter (for me) for either severity or how long to onset. In most cases it's 8 hours or so but it can be up to a weel or it can be 1-2 hours. Most often the symptoms come at different times... I often start with a fever or just a dissassociative...
  19. gfp
    Its a long time for an adult .... but that doesn't mean much really for him at his age. Incidentally not everyone even gets diarrhea, some people actually get constipated and some people get pain but no D and others D and not much pain... Quite a few people here had no symptoms they were aware of until they got diagnosed because of another indicator like...
  20. gfp
    I'm sorry to agree. At his age the body repairs very very quickly... One interpretation of your description (which you seem to be saying between the lines?) is that it took quite a bit to really screw him up... a long extended glutening and he was only gluten-free for 3 months (a lot of his life but not so long in real terms). One way to classify...
  21. gfp
    The usual coating is chitin which is the protein insects use for their skeleton. The usual source is crustaceans but this obviously isn''t kosher or halal. Prior to coating they usually clean the apples, irradiate then coat in candida.
  22. gfp

    ARCHIVED Diarrhea

    gfp replied to Kritter's topic in Coping with Celiac Disease

    Everything so far is great advice but I would say, step back and make sure you really are not getting traces of gluten from somewhere. Quite often we introduce things that can be contaminated ... but perhaps not always... For example corn chips made on the same lines as flavored ones... At the time we introduce them we are 'lucky' perhaps the bag...
  23. gfp
    That is the information we needed. Blood tests in young children and toddlers are particularly unreliable for false negatives. Withdrawal symptoms from gluten are not .... The odds would seem stacked in the biopsy being correct but you will not get firm answers without an extended torture of your toddler ... if its correct. You can keep testing but...
  24. gfp
    Simple explanation is that the gases just float up through the water ... the filtration system might get rid of solids but not the gasses that are produced. How do you know ? Most of us would have said the same about our mom's homemade bread until we got diagnosed with celiac disease. Your presumably here for a reason, my celiac disease was triggered...
  25. gfp

    ARCHIVED Conspiracy

    gfp replied to CuriousOne's topic in Related Issues & Disorders

    More seriously though .... The bottom line is ... well the bottom line. We live in a 'corrupt' society where being elected to office is a way to line someones pockets or those of their friends and relatives. Not everyone does but enough do and others see this as 'normal' and turn a blind eye. Unfortunately this is the best we have ....
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