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Everything posted by gfp
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I have irrefutable evidence that ...............................................
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ARCHIVED Why We Should All Be Drinking Wine...
gfp replied to CuriousOne's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That's only Italy not countries plural. All the mediterranean countries drink lots of wine with meals... and have better health metrics than the US or Northern European countries. Then again they also eat raw meat/eggs and unpasturised cheese. ( I believe this itself is another contributing factor because it helps our immune systems develop) I rather... -
Actually C-UK charge resto's to register. This more or less limits them to places that really shouldn't be called resto's but fast food joints since real resto's rarely pay uness they have a real good reason (like the owner is coeliac). London has 3 resto's listed .. One from Worral Smith (TV chef) and then La tasca and Smolensky's. La Tasca is really...
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ARCHIVED How Long Have I Been A Celiac, And How Much Damage Have I Done?
gfp replied to S-J-L's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Even so you do share pans and utensils....or a dishwasher or dishcloth, towels etc. -
ARCHIVED Water-come On!
gfp replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
If you only drink distilled water it will literally leach vitamins and mineral out of the food and you literally pee them out... and this is the wrong forum to say "My Dr. does it " As mentioned on another thread ... this is how I got typhoid. Shallow well water can contain all sorts of contaminants. Ground water seepage is a big issue... -
ARCHIVED How Long Till Villi Heal
gfp replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is how muscle is built, but it doesn't mean its the whole story. Our bodies often lock away toxins (in fat cells for instance) ... or expel them via other means such as through the skin. We know gliadin is passed in human breast milk... How do cows digest wheat? They are pretty much specialised in digesting grass, not high protein sources like seeds... -
ARCHIVED Good Experience At The Gi Today
gfp replied to chb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Its always good to hear of experiences like this... and its always helpful to share them. -
ARCHIVED Is It Really Gluten Free?
gfp replied to LuvMoosic4life's topic in Coping with Celiac Disease
It probably depends on each company and also product. A lot of chance might be involved, if they share lines then if you get one of the first 'gluten-free' products after running gluten or the last ... As this is voluntary I tend to think of it as a good sign and if that company has other products not made in shared faciltities I tend to trust it a... -
Well, its not just you but the kids ... I think that shows how onboard he is...
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ARCHIVED How Long Have I Been A Celiac, And How Much Damage Have I Done?
gfp replied to S-J-L's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ravenwood already said most of it.... Search the forums a bit, ask more questions and ... biopsies can be false negative because of the way they are sampled. Going gluten-free is quite a change, its hard at first like learning to ride a bike but once you actually make it habit it's actually quite easy. Search this forum for cross contamination ... -
ARCHIVED Ciao, Just Need Some Help.
gfp replied to snowbunnyok15's topic in Introduce Yourself / Share Stuff
Well, Cardinemight be new with only 2 posts but that is exactly what I would have said! More tommorow (hopefully) meanwhile try searching this site for cross contaimnation (we say CC) and hidden gluten. -
Mainly just stick to the details in fine print instead of looking for the gluten-free label. The rest you have to just bear in mind as to the background bcause it will seem a little crazy ...rest assured, its the labelling laws not you
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Its not that simple.... it is illegal to label a carrot as gluten free or a corn tortilla UNLESS they add gluten, then it can be called gluten free. This is why it is so confusing... If you (like me) can't eat the 200ppm stuff then ignore anything that say's suitable for coeliacs or gluten free ... and read the fine print on the back...
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ARCHIVED Do Bacteria Cause Celiac Disease?
gfp replied to Nancym's topic in Related Issues & Disorders
The rate of celiac disease by screening is consistent across Europe and N. America at between 1:100 and 1:200. Quite co-incidentally my celiac disease started when I was drinking unchlorinated water... which resulted in typhoid from which I never really recovered. The typhiod came from unchlorinated water. (tested) Flouridisation is a mixed topic... -
ARCHIVED Do Bacteria Cause Celiac Disease?
gfp replied to Nancym's topic in Related Issues & Disorders
Just a guess but I would imagine genetics pays its role in how actively we attack those bacteria and associated gluten. In some (most) people the bacteria are probably tolerated by the immune system and in others attacked. This does explain the triggers... in that when our immune system is in overdrive with a different pathogen it will often attack anything... -
This is very tricky. 1/ By law now, allergens must be labelled and wheat and barley are classed as allergens. 2/ No external testing is done ... its left to a honor system with the food manufacturers. 3/ C-UK are meant to be a charity, the directors also own a company at the same address dealing in gluten-free food and consulting. This company...
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Well I can relate to a lot! I always cooked so for me cooking everything from scratch is no big deal.... being able to just buy a subway is another matter though ... I'm angry, I wonder if we share reasons ... ? I'm angry because it took 15 years to diagnose me... and that from seeing my first GI .. who shoved a tube down my throat but didn't go so...
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ARCHIVED Testing
gfp replied to Beck's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The point is two fold... Firstly the biopsy is not a useful diagnostic tool for celiac disease unless we only count celiac disease as total villous atrophy. For those who are tested and test negative it can be a very hard uphill and expensive battle to then get retestd or have the blood tests stand up by themselves. Most GP's and GI's wil be from... -
ARCHIVED Can I Eat Oats?
gfp replied to mtkd's topic in Gluten-Free Foods, Products, Shopping & Medications
Just to add to this, It depends on how you personally handle gluten-free. Lets say your OK with the gluten-free oats... I try and simplfy things into what I can have and what I can't. I haven't risked/tried oats for one specific reason. Its simpler just to exclude them ... and be done with it. I know myself, if I was to class oats as possibly safe... -
ARCHIVED Diet For Celiac Patients
gfp replied to MDRB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your last point is true .... I think the first thing to say is "no diet is perfectly healthy" ... or no diet is perfect ... Its easy to think there must be a perfect diet ... like the perfect job and the perfect partner ... etc. but just about anything that we eat is both good and bad. Mercury is the only naturally occuring element that has no known use... -
This is really what worries me .... how many of those "half the people" actually have celiac disease or a real severe allergy? Basically I wory the resto's are becoming complacent? Even if it isn't half and just seems like it many of the resto's must get almost bored with the countless "special needs"
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ARCHIVED Just Got Hit Again :(
gfp replied to motif's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Its also possible for delayed or recurring symptoms. When i went 100% gluten-free I realised I can have a episode from gluten eaten a few weeks before I thought had been cleared out. I had a friend who had seizures from gluten. At one point she got so paranoid she stopped eating some days and still got seizures... A while later we decided the... -
ARCHIVED Diet For Celiac Patients
gfp replied to MDRB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A healthy vegan diet is not an easy thing. As you recover your body needs protein to rebuild the villi and repair other damage. This is not impossible on a began diet but its not easy... if you want to steer clear of other common allergens its even harder because so much vegan stuff contains soya. The problem I see is that soya is not a good source... -
WoW, that's a good tip! Overall resto's are pot luck ... I worry about sending stuff back and them just removing the bread etc. and re-serving it.... I realise I have a perfect right...I just worry about someone in the kitchen on minimum wage respecting it! Usually the manager will be more concerned that they don't get sued or something but someplaces...
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ARCHIVED Does This Happen To Anyone Else?
gfp replied to jvalentine89's topic in Related Issues & Disorders
It is eating it! Everything we breath in over a certain size is filtered out before it gets to the lungs and directed to the stomach. Open Original Shared Link Well, not for us. PM10 means its redirected to the stomach ... (There is a name for the process i can dig up if you like)... essentially we have tiny hairlike things inour respitory...