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gfp

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Everything posted by gfp

  1. gfp

    ARCHIVED Soy!?!?!

    gfp replied to Twila Marie's topic in Coping with Celiac Disease

    I had similar experiences with "low-gluten" ... it's almost so subtle but seems to build up. Me too. I know it affects me but how will it affect me long term?? This is largely because of the weird 'definition' in the CODEX. The weird part is that naturally gluten free isn't allowed to be called gluten free. The rest of the complexity seems...
  2. gfp

    ARCHIVED Soy!?!?!

    gfp replied to Twila Marie's topic in Coping with Celiac Disease

    Unless this happened and i didn't notice then I don't think its so clear. So far as I know the Codex didn't change and the definition in the Codex is pretty confusing. (Don't shoot the messenger here..I agree this is crazy) Rice Milk can't be called gluten free UNLESS they add gluten. Because ... it can only be called gluten-free IF it has gluten...
  3. gfp
    Its 2 issues ... The first is quite common, that is for some reason families sometimes get all defensive over celiac disease because its genetic. Its almost like some 'guilt thing' which is obviously silly but happens all the same. As for the racial genetic side ? I guess it is fairly uncommon ... in most things I tend to think that trying to ...
  4. gfp
    Pretty much my feeling .... Although from my perspective the chance of being found guilty of some obscure FDA law is unlikely BUT the pure cost and hassle of having to deal with it, pay an attorney and go through the process is what I would find offputting. It always seems to be the "easy examples" which are targetted ... As a UK judge told the...
  5. gfp
    I'll see if I can get over this weekend, its only around the corner. If its at home then I don't see a problems but I would be very careful about any public showing. The real problem (from my perspective) is this is the sort of stupid thing that legal systems like to make an example of. They can't touch the criminals dealing illegal drugs but they...
  6. gfp
    Quite honestly I would use subsitutes .... Reason.. someone will be offended, someone will complain if its seen in public. At least you cover yourself this way... As it happens the British Museum has a huge expo of pills as art!! Will try and get you a photo ...
  7. gfp
    The two are not the same, the statement is false because McDo say's the fries are safe yet its an impossibility .. A single resto might say "they make every effort" and they may well but with thousands of resto's a blancket statement like "our fries are safe" is just wrong ... Even a single resto its pretty hard (and like you i would still be wary) but...
  8. gfp
    There is a long a short version, long version I guess a search on McDonalds fries will find! Short version, the analysis itself is available, I've linked to it several times. (I Also worked half my life in analytical labs). If you read the summary you get the idea the oil is gluten-free and CF. If you read it all very carefully then you realise (if...
  9. gfp
    It depends if its the same person. I seem to remember a Shauna who said McDonalds fries were gluten free even when the analysis say's they are not. However it might not be the same one, hence the question. (which is a question) That's exactly how I feel about it really. I hardly have anything I eat (excepting Pasta) that isn't just as easy gluten...
  10. gfp
    Is this the same Shauna who is paid by McDonnalds to lie?
  11. gfp
    No extra effort involved ... I never used tins, packets etc. and little has changed in preparing my own meals with the exception of Pasta. Eating out and snacks are a different way of life but cooking at home is no easier nor harder. Everything in my kitchen is gluten-free, most products I buy are naturally gluten-free and most has barely changed. Some...
  12. gfp
    strange I said the same thing above... However, like I say if the house was burning down you'd suddenly find you forgot about it and carried on breathing... The same for falling asleep but its not the easiest thing... Being aware you will not stop breathing is a big help... distract yourself however you an, be it a TV (not my choice) or reading a book...
  13. gfp
    That's OK and the best they can do and avoids CC in the mill but it doesn't help with the field itself or the bulk transport... this is pot luck... My thoughts on this are that Rice is good because it doesn't grown in the same environment as wheat (or barley/rye) ... and quinoa is good for the same reasons but other grains can be contaminated in the field...
  14. gfp
    Frankly its ridiculous your parents are not willing to discuss the celiac situation. If you were a child with diabetes would they be 'too embarassed' to tell them not to give you candy? So guessing your parents do love you (though Parents sometimes have a funny way of showing it) I am guessing they don't really understand the seriousness of the...
  15. gfp
    Yes and No.... Firstly its not REALLY difficult, it's just practice. Its like jumping in a stick-shift car the first time (presuming you drive). At first it seems a bewildering amount of things to balance and do at the same time but soon it becomes second nature. Secondly if you cook at home then its really not that hard to eat 100% gluten-free...
  16. gfp
    Try contacting them.... In reality they can't guarantee gluten-free... companies that say they can are probably lying because stuff can always happen they miss or can't control. (I suppose if they charged $20 a mix its possible but given the way it grows and is transported its hard to be 100%) To me its more how they respond and how much effort they make...
  17. gfp
    My Dr. thought I had asthma .. until they had me blow in the tube thing... Anyway this may or may not be appropriate and the important thing is to find out exactly what your dealing with. For me it turned out to be a combination of things... 1/ I get a Casein reaction which nearly killed me once by blocking my airways with literally glue. However even...
  18. gfp
    A simple way to look at this is: Negative biopsy ... means pretty much nothing unless you have been really hammering the gluten for a long time and know they took lots and lots of samples etc. and even then its never definitive. Negative blood tests ... this depends largely on 'negative' ... Firstly AgA tests could mean you are AgA deficient hence...
  19. gfp
    Yep just buckwheat flour, water and salt.... Make sure you leave it stand for about 20 mins... but the actual consistency is just trial and error... For 20 mins it bubbles a bit.... if you use it like this you get holes in the crepes ... I use a big huge cup and fill it about 1/4 full with buckwheat flour then add water slowly ... I never really measure...
  20. gfp
    Buckwheat is incredibly heavy .. if you use it in 'normal baking' then combine it with a light flour (like rice flour) .. Real buckwheat crepes however are really simple and easy ... I mix by eye until its reasonably fluid, just buckwheat flour, water and optionally salt and optionally an egg.. (if yuou add the egg you'll need less water). Ideal for savory...
  21. gfp

    ARCHIVED Sinus Problems

    gfp replied to gfp's topic in Coping with Celiac Disease

    Its not actually the same stuff, the bread ive been getting is wheat free as well as gluten-free... The main problem is all the other things I've been living on... where gluten free can mean CODEX or real gluten-free... I got to a point where I really had to start eating something, indeed my new years resolution was to eat at least once everyday .. I...
  22. gfp

    ARCHIVED Sinus Problems

    gfp replied to gfp's topic in Coping with Celiac Disease

    Yeah, I have to agree and regardless of the sinus issues ... The problem with the CODEX stuff is you don't know what is and what isn't gluten-free (in the real way)... so some things don't say gluten-free but seem OK, others say gluten-free but you don't know etc. Well that's two votes for salt, plus my mom.... = 3 Also previously I had a "homeopathic...
  23. gfp
    The problem is you can't really help eating SOME shampoo. Even if you don't get some on your lips in the shower (which is pretty hard to achieve) its all over your skin so next time you put your finger in your mouth etc. akJenny Just to make you feel better.... I was using some shampoo and getting sicker and sicker... Forget the labels ... when...
  24. gfp
    We all have days like that .... since moving I miss my freezer which was ideal... even frozen and microwaved taco's are better than risking it IMHO ... but good luck all the same
  25. gfp

    ARCHIVED Sinus Problems

    gfp posted a topic in Coping with Celiac Disease

    Since last October I have had really bad sinus' ... and I'm not sure if this is due to change of diet and more risks or allergy or something else. Basically I always had dodgy sinus' .. but to different degrees and depending how 100% gluten-free I am it seems to be better and worse... Patient History ... (LOL) I watch too much House I moved to London...
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