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gfp

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Everything posted by gfp

  1. gfp

    ARCHIVED Endoscopy Clarification

    gfp replied to Healthy Girl's topic in Doctors

    So you need to ask her whatever you don't eat? Lets say you had dental work and stopped eating chips because they were hurting ... do you need to ask her permission? If it was a myth then why should celiacs not eat gluten? Isn't the idea the villi will mend? Firstly a biopsy is never reliable as a negative, they don't test everywhere let alone...
  2. gfp
    There are 101 unlikely but possible explanations ... it could easily be an aunt you haven't seen and kiss on the cheek for instance. You went to wash your hands and someone with crumbs just used the soap...then you ate crisps
  3. gfp

    ARCHIVED Helpful Tips?

    gfp replied to tgrand's topic in Coping with Celiac Disease

    I know exactly what you mean ... The worse I eat the less motivated I am to do anything else ... and things start to back-up.
  4. gfp
    Probably, but to me this is a question (in general) would a Dr. be so lax about a potentially damaging test if they were performing it on themselves or their mother or daughter? I don't think gfpaperdoll meant the biopsy itself, more the gluten needed. My concern is still what if its negative after a week (as is likely) .. when to stop? ...
  5. gfp
    Then he's an ass! Even if you eat gluten for 6 months it can't guarantee the biopsy will be positive. I think the fist explanation makes more sense .. So I would carefully consider this... Why does he want to see damage? What you want to ask yourself is what if its not positive after a week? Will you continue until it is? I read one...
  6. gfp

    ARCHIVED Helpful Tips?

    gfp replied to tgrand's topic in Coping with Celiac Disease

    Well sometimes they do .. but so what! I'm not the tidiest person naturally but I am busy at work and have little time BUT one thing I always do is COOK. I might end up making a mess cooking and not get round to clearing it up that night if I'm really tired out but ... I always try and cook and always try and make something healthy. We are what...
  7. gfp
    Weight gain has many reasons.... For a ex-undiagnosed celiac one main one is the empty calories. Prior to a gluten-free diet we ate and didn't really adsorb calories but also we didn't adsorb nutrients, minerals etc. When your body needs nutrients it just makes you feel "hungry" ... it can't say eat more iron or eat more potassium ... (although it...
  8. gfp
    Ellen, a little pride is not such a bad thing, specially if it helps us to keep focused ... however when it gets to the point you get coky with yourself then its lost that value (in my humble opinion) Its all to easy to con ourselves and .... well I found out like you... I'm flattered by your comment but it wouldn't be honest of me not to point out I did...
  9. gfp
    It might be easier with an obvious reaction but like Ursa say's it comes eventually .. The big reason for me is that when I was diagnosed I had done somuch damage it took a long time to even feel half normal (and I'd half forgotten what half normal was) The odd mistake and you take a step back but keep going anf you end up taking 2 steps back for every...
  10. gfp
    OK, we had scare tactics, sarcasm and more ... so I'll roll it all into one (no malice meant) If you cross the road without looking one time does that make it OK? However mainly, as Ursa said ... these reactions can take time from a hour to a week ... I personally find no correlation with what I get glutened or nor how much ... One thing...
  11. gfp
    If you make a seperate post requesting anyone who has a Dr. even half close to you then someone might be able to help out. Once you see a UK Dr. who agrees and puts it on your records then the other Dr.'s are not likely to disagree. You can request an emergency Dr. and say you are visiting to get an appointment ... With a bit of luck you might find...
  12. gfp
    I know its hard to get a GP but you are probably better to try and find one already educated. If your GP doesn't know the basics and doesn't know you need to be eating gluten for a positive blood test then convincing him/her might be an upward struggle. They didn't listen the first time so going back and saying "these people on an internet message board...
  13. gfp
    Well I guess when she say's 'maybe tomorrow' he's more worried about possibly traumatising her and forcing the issue. I know its a long time but she was presumably pretty depressed and it can be very hard to choose the moment to 'betray' that person's trust. Retrospectively with 20/20 hindsight he probably knows he should have done it earlier but...
  14. gfp
    I have yet to see a decent definition of IBS. It seems to shift with the seasons and moon cycles as far as I can tell. I think its just an acronym doctors use for I'm Bamboozled Sorry ... I think most cases it just means they don't have a clue and won't admit it. Calling it something makes it sound like they know what it is I guess. I'm with...
  15. gfp
    Everyone over the age of 5 is lactose intolerant. We were never designed to drink milk once we are weaned. We find eating monkey brains repulsive, many far eastern cultures consider drinking a cows milk just as digusting ... Personally, I love cheese but hey ... I eat it because I like it not because i think its good for me. Quite if lactade can hurt...
  16. gfp
    It really depends what you call trouble.... I tend to view all resto's as risky, its just a fact of life.... You seem to be doing everything correct but remember you are dealing mainly with people on minimum wage who might lack motivation from time to time. My advice is never to expect too much. Its frustrating but less so than looking forwards...
  17. gfp
    It appears many autistic children have their level of autism reduced when Gluten-free/C-F ... Many of my friends can tell from my mood/level of disassociation when I'm glutened so as a mom I would think you have to go with your 'feeling'. You might check poop but its hardly definitive ... and you might se if other children have a virus or tummy upset...
  18. gfp
    This is the bottom line .... The 200ppm limit was set by the food industry, not based on scientific study. The food industry itself then paid for the studies saying celiacs were no worse off on 200ppm than a 'normal' gluten-free diet. This in itself is fundamentally flawed... it took 50 yrs to 'prove' smoking causes cancer ... and this was in the...
  19. gfp
    You got excellent answers so far so I'll just add. I think its very important to realise just how we cope and put up with symptoms for years. In many cases we only actually notice symptoms when they go away because we adjust and learn to live with them. In the case of chronic pain our bodies get flooded with endorphins and our bodies get practiced...
  20. gfp
    Can't fault anything psawer said ... I would go further though as darlingdeb said This reeks of "Do this until you damage yourself then we will take you seriously" Its akin to someone seeking help for alcoholism and having a liver biopsy within 'acceptable' norms. Despite the fact they tell the Dr. they are drinking 3 bottles of hard liquor a...
  21. gfp
    Not long ago 200ppm (the lowest detection limit for cheap testing) was considered safe. Now cheap testing goes to 20 or 5 ppm ... For many years current scientific research could make no definitive statement that smoking causes cancer. I would say when people make their descision that current scientific research is not the last word... I am certainly...
  22. gfp
    Please consider this to be a bit of fun. As you yourself mentioned ....your family considered themselves to be of English blood .... but there is no such thing. Nor Irish nor any other racial group (except Icelandic and perhaps a few very weird tribes like Kalahari Bushmen). Almost all racial groups are mixed through centuries of rape, infidelity...
  23. gfp
    This just illustrates how unreliable testing can be when the people taking the tests don't know what they are doing. The same goes for blood tests and biopsy and tsting children in general. Its not a black and white test even if sampled correctly. Its about levels above 'normal'. Many things can influence the tests ... and like any other of this...
  24. gfp
    Quite honestly it varies so much.... I don't even think it has to do with how much .... indeed it seems totally random how long it takes and how long it lasts... I'm sure quite a lot of things influence it like general health and being tired or not etc. but the best rule is there seems to be no general rule.
  25. gfp

    ARCHIVED Anxiety And Gluten

    gfp replied to AmF's topic in Coping with Celiac Disease

    Yes ... Yes and Yes. = Short answer.... Long answer is follow aikiducky's advice above....
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