gfp
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Latest Celiac Disease News & Research:
Everything posted by gfp
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ARCHIVED Wheat Starch
gfp replied to JodiC's topic in Gluten-Free Foods, Products, Shopping & Medications
I guess its just short cut... and extremely cheap as its essentially a waste product. I have to admit though, sometimes it FEELS like they just throw it in for good measure... -
ARCHIVED Milk And Gluten
gfp replied to JennyC's topic in Gluten-Free Foods, Products, Shopping & Medications
Or more simply because IgA is definitively transferred in breast milk... he got your IgG about 12 weeks into the pregnancy when the placental barrier first allows blood to be transferred. If we assume it was your antibodies, not gluten then there is no danger in cows milk (lactose/casein intolerances excluded) since cow antibodies are not the same... -
ARCHIVED Wheat Starch
gfp replied to JodiC's topic in Gluten-Free Foods, Products, Shopping & Medications
BAD BAD BAD .... Food grade wheat starch is not particularly pure... its just what washes away from the wheat and bits of gluten get carried along and its 'food' so its not really important. I have had reactions to the much purer pharmaceutical grade wheat starch... used in some tablets as a binder/filler let alone food grade. -
ARCHIVED Vodka's
gfp replied to blueeyedmanda's topic in Gluten-Free Foods, Products, Shopping & Medications
Caution never hurts.... To me its a bit like making a habit of wearing a seat belt. The chance of any single bottle of grain vodka containing gluten is probably really really small (frankly its impossible to calculate from theory alone but its very very small) However if you drink outside the house you are sampling quite a few bottles. Presuming... -
ARCHIVED Gluten Free Dreams
gfp replied to silk's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yep, its heroine withdrawal... or VERY similar. Gluten is classed as an exorphin, it binds to the opiate/endorphin receptors and you are basically undergoing a type of withdrawal. Unfortunately gluten doesn't bind very well to the receptors, it actually damages them. You may also be experiencing a bit of depression and mood swings. It will go... -
ARCHIVED Anyone Have Problems With Satiation?
gfp replied to Pyro's topic in Coping with Celiac Disease
Pyro, sorry but the answer might depend on your weight and body fat ratio... Simple explanation: The body only has one way of saying its missing something... actually its two but they are both overlapping. The body has a hard time differentiating needing protein, carbs, salt and even nicotine... Think about it we just feel 'hungry' like something... -
Well you can't really be definitive, its possible for the blood tests to be positive after a week depending what they call 'significant', just unlikely it is significant... the problem is you have to eat enough to be really ill, regardless of the time it takes. The problem is if you do two weeks your results will be compared to a 'norm' of 6 months... and...
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ARCHIVED Gluten Free Daughter Tests Positive For Igg
gfp replied to celiacgirls's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just a thought but I wonder if by giving some responsibility to the eldest regarding the diet of the 9yr old you might solve two things at once and there is little to lose? My experience is kids can be far more responsible when they have a younger kid they are responsible for... The flip side is it might instill some responsibility into the 11... -
Sympathetic though i am to those who have problems loosing weight on a gluten-free diet many of us actually have the opposite problem. I know my issues are complex, involve not eating regularly etc. but also some adsorption issues. Heck, I'm typing this now wondering if I should go out and if I can be bothered to eat knowing full well if I don't...
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ARCHIVED Help Before The Endoscopy
gfp replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Worse still it can lead to false negatives that are very hard to then retract!!! Depending on the knowledge of the GI the danger is a negative biopsy can lead to a diagnosis of 'IBS' or something non specific even when blood tests and dietary response show the opposite. At best getting a positive biopsy means deliberately damaging an internal organ... -
As ravenwood glass points out ... delayed reactions are not only possible but seem common for me. This can be UTTERLY FRUSTRATING .... I find I have random events for 4-6 WEEKS ... the first 1-2 days Its 'mostly' then the rest of the week its diminished .. then its like my body suddenly finds this bit that was locked away and I randomly get glutened...
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I agree, you were LUCKY to get diagnosed... sad as that is it's a reality. As for 'help' ... Again you were lucky in a funny way. Most Doctors have no idea what gluten-free diet entails... they just never considered the issues like cross contamination or hidden gluten. The help they are able to give is likely more harm than good. Lets presume...
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ARCHIVED Probiotics
gfp replied to Trillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well I never saw any NEGATIVE side effects to them... How good they are??? Hard to say but I personally believe that the Western diet has removed them almost completely. An interesting statistic is that many Mediterranean countries have longer life expectancy, lower infant mortality etc. than the UK, US and countries where these are removed from... -
ARCHIVED Walkers Ready Salted Crisps
gfp replied to mak07's topic in Gluten-Free Foods, Products, Shopping & Medications
Funny thing... I worked onsite for a week and the only food I could find was crisps and the new walkers corn tortilla things. I got accused (in a light hearted way) of being sponsored by Walkers. Nikki ... I agree on the codex stuff.. however I do think walkers make more effort than most. In a bizarre chance I was in England the weekend they made... -
ARCHIVED Gluten Free Daughter Tests Positive For Igg
gfp replied to celiacgirls's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Rather weirdly .... I am an older brother... and my brother 2 yrs younger. I was the 'bad one' at school .. my brother the 'perfect student' .. etc. when my younger brother got a skateboard I wasn't allowed because I would kill myself .. when he was 16 he got a motorcycle ... I wasn't allowed etc. etc. Like your 9 yr old he would come home from school... -
ARCHIVED Gluten Free Daughter Tests Positive For Igg
gfp replied to celiacgirls's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Or she is just eating other kids food... Of course every parent will say 'but my kid doesn't smoke/do drugs/insert here' .. my mom certainly did but she was certainly wrong, just like all my friends mom's. -
ARCHIVED Walkers Ready Salted Crisps
gfp replied to mak07's topic in Gluten-Free Foods, Products, Shopping & Medications
Walkers are quite good... A while ago they had a CC problem with the 'old' cheese and onion line (at that time non gluten-free) contaminating the salt and vinegar and they came clean so I tend to trust more than most. However, I really can't be bothered saying more when the poster cannot even be bothered to type 'someone'. I find this extremely offensive... -
Better is subjective... In the UK gluten-free doesn't mean gluten-free, it means less than xppm gluten. If you just do a gluten-free lite diet then this might be OK, otherwise you need to be very careful... for instance dextrine and malto-dextrine can both be derived from wheat in the UK and the label still say gluten-free.
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Unfortunately that list is full of errors. Some are so basic as to be laughable; were they not to make us ill whereas other are more degrees of certainty. Seriously though, would you trust a list says "Mead - distilled from honey." when Mead is not distilled but fermented? If the list is wrong on something so basic as this how can you possibly trust...
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ARCHIVED Curries
gfp replied to mak07's topic in Gluten-Free Foods, Products, Shopping & Medications
The safest option is to buy whole spices and grind them your self. Coriander,cumin,star ainseed,black pepper -> THESE JUST GENTLY ROAST THEN PUT IN A MORTAR AND PESTLE cinnamon,nutmeg -> NEED GRATING black cardamon,green cardamom,bay leaves,clove -> THESE I PUT WHOLE IN A MUSLIN BAG AND COOK IN THE CURRY AND DISGUARD AFTER ginger,pimento... -
Yeah, I pay taxes too. You'd think the government would pay someone to help me fill out tax forms to my advantage too? Strangely, when I do my own (boring as it is and pressed for time as I am) I end up paying less tax. I find the same with my health research, the more I know myself the better the results when interfacing with 'medical professionals...
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B6 and gluten-free diet works well!
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ARCHIVED Testing Question
gfp replied to Yellow Rose's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Really what else counts? I look at it this way... If I get a chest biopsy and its negative for cancer does that mean i keep on smoking until its positive? The whole basis of the biopsy is you damage a important organ so someone can see it's damaged... if you are reacting to the protein and producing antibodies this seems as stupid as keeping smoking... -
Yes (putting the same amount of effort as the original question)
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Grr.... annoying as it is this sort of accident will always happen. Its annoying but its just life and no point blaming yourself. You identified the risk so that's a big plus...