gfp
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Latest Celiac Disease News & Research:
Everything posted by gfp
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ARCHIVED Does Anyone Actually Feel 100% Better?!?!?!
gfp replied to LilyCeliac's topic in Coping with Celiac Disease
Its a toughy... I think many of us go through stages but there are often plateau inbetween. For me after 6 months I thought I was gluten-free ... and 6m-1yr I stagnated .. then after 1 yr I went back to basics. Everything made myself... no gluten in the house at all. It coincided with me moving and I just threw out any dodgy items and kitchen utensils... -
ARCHIVED I Am 2 Weeks In To Diet, Am I Doing Something Wrong?
gfp replied to aeshlea's topic in Coping with Celiac Disease
Wow .. you pretty much caught all the gotchas. I think your less confused than you think .. perhaps dazed ... You probably are getting some CC (search cross contamination on this board) in the kitchen. OR it could be withdrawal... it affects some of us more than others. Personally I think the amount of withdrawal is probably... -
ARCHIVED Ok, I'm Sorry I Got Another Question Concerning Making Your Own Foods!
gfp replied to ShayBraMom's topic in Parents, Friends and Loved Ones of Celiacs
Pasta can be difficult. The hard part is the stickyness/consistency .. I have made it a few times but its hard to roll out as unless you get it just right it either stcks to the machine or falls apart. Although I love pasta I just cut down and buy the pre-made stuff. I sometimes try thicker pasta like canelli which can be rolled thin enough by hand... -
ARCHIVED Another "could I Be..." Thread
gfp replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Carla Yep I stupidly tried the UK Codex bread again ... New job and lots of travel.and very long hours.. (and I mean lots) and I have been trying to get portable food. I thought I'd try the UK gluten-free bread again... with disastrous results. It does seem cumulative. The first time I thought I was OK then after 1-2 days I just got worse and worse... -
ARCHIVED Gluten Stuffed Turkey. Is It Ok To Eat?
gfp replied to a topic in Coping with Celiac Disease
Its a funny thing but often its family and close friends who have the hardest time adjusting to our diet. I think in many ways they saw us eating gluten for years and being relatively OK... especially we have a lot of things we didn't mention (toilet habits) and they just find it hard to accept we need to be THAT strict. Sometimes they even seem to think... -
ARCHIVED Gluten Stuffed Turkey. Is It Ok To Eat?
gfp replied to a topic in Coping with Celiac Disease
Deb is so right... From what you said I don't think you will be able to eat safely at all. Read up on CC on this forum and you will start to see. Even if she makes a seperate bird unless she thorough washes hands and makes sure no crumbs get anywhere you will have a huge chance of CC. Exactly like Deb say's 1/1000th of a slice of bread is more than... -
ARCHIVED Another "could I Be..." Thread
gfp replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well all wheat starch will have some residual gluten. If its analysis grade or pharmacutical grade then it is likely to contain very little whereas food grade it can contain significant amounts, depending what you call significant. Wheat starch is basically extracted just by washing flour or the byproducts. Its the most soluble part that comes away... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
gfp replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Well, I'm well and truly lost !!! -
ARCHIVED Eating Out Is Such A Pain In The Ass Now
gfp replied to jasonD2's topic in Coping with Celiac Disease
Paulina says it all really... It seems awkward at first ... but its mainly just not something we are used to doing. Trying to guess what is gluten-free and what might not be is pretty likely to give bad results. I was flying the other day just a short domestic hop and not a single item was gluten-free. I hoped the peanuts would be but they even... -
ARCHIVED Healed And Never Get Sick
gfp replied to Lisa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think we are saying the same thing.... I have the same problem eating out with work b.t.w. The reality is unless we put ourselves in a bubble we will get some CC and some accidental glutening, its just a reality of the world we live in. As others have noted, the damage seems to some extent to be cumulative. This makes sense, I don't think all our... -
ARCHIVED Healed And Never Get Sick
gfp replied to Lisa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think the bottom line is that even if it takes repeated glutenings to get as bad as it was it took most of us over a year of pain to get to this stage. If you don't get an immediate strong response then keep going the point at which you do is going to be when you have done enough damage. Even worse, that damage isn't always reversible and the process... -
ARCHIVED Another "could I Be..." Thread
gfp replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And the same person just tried again... With the same results ...... Studies like the one posted are not very helpful. Firstly it doesn't say if they are using pharmaceutical grade starch or regular stuff bought in a store. Nor does it list the conditions of the control subjects. It says they "followed a naturally gluten free diet... -
A friend who had serious medical issues read a book lately... and he summed it up saying "If it doesn't look like vegetables, meat don't eat it". Another nice maxim is "nothing in excess" Unless you have other dietry restrictions then a little fat is no bad thing... My personal preference is I try and not eat anything comes in a tin, packet or...
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ARCHIVED Celiac Treatment: What Should I Expect In The 1st Year?
gfp replied to sandyg's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is hard if you have no external symptoms to know just how well you are adjusting to the diet. Many of us started off thinking we were 100% gluten-free then later found the gotchas. Also although you think you have no symptoms doesn't mean you don't have ... we as humans are very adaptive and we get used to coping and our bodies used to handling... -
Its really as matter of how much... The bottom line is that the FULL report of the analysis McDonalds did found them to contain BOTH gluten and casein ... you have to read it all through because the intro discusses the less sensitive ELISA testing but of you read down to the more enstive RAST testing then they tested positive then the report was written...
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ARCHIVED Best Place To Be gluten-free In Europe?
gfp replied to Gabbous8's topic in Introduce Yourself / Share Stuff
It depends how sensitive you are .... The UK has a decent amount of awareness but it stops short of really understanding (IMHO) Equally the supermarkets stock things labelled "Suitable for coeliacs" which frequently conform to "CODEX gluten free" but are not actually gluten free. I have presently got myself in a bit of a mess with this. The main... -
I'll get back to posting but things are really hectic right now...
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Just a hello.... I just took a job in London and have been commuting and stuff... to those in the know I'm doing better and will get back as time permits... gfp/steve
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ARCHIVED Pain In Muscles - Real Or Imagined
gfp replied to shp2drp57's topic in Coping with Celiac Disease
Nexium does exactly that to me.... headaches (dull) and muscle pain... I found out there are two types, the Esomeprazole which is the AstraZenaca version and plain generic omeparazole. I read somewhere that the Esomeprazole version is not any better, it was a modification for patent purposes, this might or might not be true. What is true is many people... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
gfp replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
No, I'm just a ghost I'm in London next week for a weeks contracting .... Well, you might perhaps make an exception.... ah go on go on go on... (Father Ted)... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
gfp replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Hmm white coat and thick rimmed glasses .... sexy .... On a slightly more serious note .... and something <b>you</b> of all people should realise. That's what boobs are for ... with the exception of some bovines no other mammal seems to have need for boobs (as opposed to glands and nipples) ... and boobs developed once we were no longer... -
ARCHIVED Weight Gain?
gfp replied to 2BOYSMOM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Its not even uncommon... the mechanism works something like... Your body is not adsorbing nutrients Your body only really knows it need nutrients so you feel hungry... that's how the body tells you.. However when you eat you only digest the easiest part and you still miss nutrients and hence still hungry Equally because of this you can end up relying... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
gfp replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Rather depends on several factors.... (seriously even on this thread!) 1/ How serious you are about the wine... 2/ How serious those you are dining with are about the wine 3/ The actual wine available e.g. If I see a really good wine at a reasonable price (which I consider reasonable and depending on the wine this might exceptionally be $... -
ARCHIVED People With Clinical Depression And Anxiety
gfp replied to Mtndog's topic in Coping with Celiac Disease
Just one of my 'alternative' scientific head views on this.... Drugs certainly work ... and I think a lot faster than a proper psychiatric treatment ... Just my 2c but because their are SOME doctors who will just prescribe drugs this offers a quick fix... and because of the nature of the problem and almost catch-22 nature of being able to do anything... -
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