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Everything posted by gfp
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ARCHIVED Still Drinking Regular Beer - No Problems
gfp replied to Mountaineer Josh's topic in Gluten-Free Foods, Products, Shopping & Medications
I think what some of us are trying to say is that "noticeably react" really depends if you are gluten-free or not. When posting here its good to remember people who have poor or more likely worse than poor advice from a GP or GI will be reading these posts thinking ... ooh I can drink beer... Its only natural ... however it can be very harmful. Most... -
ARCHIVED Still Drinking Regular Beer - No Problems
gfp replied to Mountaineer Josh's topic in Gluten-Free Foods, Products, Shopping & Medications
Exactly, what I didn't have time to say earlier was how so many of us then react to that first glutening... We might think we are not getting glutened but that is because we have no real reference... I know of many of the people on here who started off the 'normal way' .. but the normal way is what the MD or GI tell you, they can't FEEL what you FEEL... -
ARCHIVED Tetnas And Tb Shots
gfp replied to nikky's topic in Gluten-Free Foods, Products, Shopping & Medications
Rubella... Nikki, the required shots in the UK are pretty limited (compared to the recommended US ones)... They are almost all for serious and life threatening situations ... although measles might be said to be lower.. At one point I moved abroad and had a series of shots and missed out typhoid... (just because of timing)... You can probably guess... -
ARCHIVED Still Drinking Regular Beer - No Problems
gfp replied to Mountaineer Josh's topic in Gluten-Free Foods, Products, Shopping & Medications
Josh, this is short because I have to leave for work ... so it might be a bit blunt. There are many people with celiac disease who are simply in denial. I know, I was one ... Like you I was diagnosed and was determined ... hey, I'll be one of those who can drink the odd beer or eat oats .. etc.etc. The figures you have quoted (I'm not sure which... -
ARCHIVED Tetnas And Tb Shots
gfp replied to nikky's topic in Gluten-Free Foods, Products, Shopping & Medications
Tetanus is a 10 yr shot. TB... I would not take any risks.... even if it did contain gluten its not worth being ill for a few weeks from gluten vs the risk of TB. its on the rise in the UK due to the number of immigrants from the Indian sub-continent and the fact vaccinations have not been kept up because we in the UK thought we had broken it's back... -
ARCHIVED Does Anyone Throw Up With Celiac?
gfp replied to Bri's mom's topic in Parents, Friends and Loved Ones of Celiacs
This is a different case I believe..... Vomiting can be due to many factors but the most controlling is psychological in most cases (excepting this)... I DO NOT get sea sick (categorically).... hence i don't get sea sick.... If I feel nauseous I refuse to vomit because I stick to my belief. Other people will vomit when they see others vomit... they... -
2-3 Litres a week isn't SO much, probably more than is healthy but really not out of the way if that's ALL you drink alcohol wise. (At least not by European standards). It is however a personal health issue... The bigger question is really what Lockheed brought up. I rather feel the same.... its easy for the ACA to say but they also say CC doesn...
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I'm in Central London.
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ARCHIVED What About Alchols? Are All Bad? What About Alchol In Paints
gfp replied to rmducote's topic in Gluten-Free Foods, Products, Shopping & Medications
Unless he has any cuts the alcohol will not make any difference, regardless of source. Breathing in the fumes (at normal room temperatures and pressure) can't transmit any residual gluten Ethylene glycol is not an alcohol but a glyceride commonly used as antifreeze. If your husband has a reaction to handwipes I presume you mean dermatological. This... -
Am exploring both your sociohistorical-genetic and pathogenic ideas about the origin of celiac, which you expressed in Aug. of 2006. Very interesting!
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Some Vodka is made from potato however its a minority ... Many Cognac's have coloring added, as do many other spirits. The more ingredients (like derived drinks) the greater the chance of one of them being a gluten source. To make it more complex the 'added' stuff can vary in a single drink depending on market price and availability. So one batch might...
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ARCHIVED Has Anyone Ever Had A Reaction To Tuaca Brandy?
gfp replied to SLOmommy's topic in Food Intolerance & Leaky Gut
You're answer is really as you stated yourself. Its a mix of ingredients that they source from wherever is cheapest a the time. Someone else not reacting means nothing because one batch may contain gluten and another not and one factory might source one ingredient and another a gluten one. Many brandy's do add coloring and this coloring can be... -
ARCHIVED Not Satisfied On My New Diet
gfp replied to MLB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Until you go 100% gluten-free you will have withdrawal reactions... If your family are eating gluten, then you are too..... (unless you really are an expert ...) This is like the nicotine patches and other nicotine aids to quit smoking being sold by the tobacco companies.... it just extends your addiction.... Gluten is addictive, its classed as an... -
ARCHIVED How Long Does It Take To React To Gluten?
gfp replied to CCR's topic in Coping with Celiac Disease
I don't mean to undercut people BUT... In the interests of you being well.... How long people take to 'react' is based on at least two things... 1) Identifying the reaction ... This sounds simple, it's not... it takes experience... just like riding a bike. There really is a feeling.... BUT it takes experience to get used to it.. not being smart... -
ARCHIVED I Don't Understand How The Healthy Stuff Is Bad
gfp replied to Dawneekoz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The nutritional advice being paid for by the grain industry perhaps. The diary industry still maintains cups full of gunky fat are good for us... so it depends which advice you want to take. The bottom line though is that gluten is a toxin for you... whether its really good for anyone is another story. -
ARCHIVED Self Diagnosis?
gfp replied to monimoni's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Couldn't agree more .... the 'diagnosis' of IBS probably leaves more people in misery and declining health than any other medical fad. Can't explain it, don't know what causes it ... but here have a diagnosis and go away... I'm sure the gluten-free diet helps many but equally there are probably lots of other causes wil never be found because the Dr's... -
ARCHIVED Blood Positive, No Visual Signs, Biopsy?
gfp replied to natalie23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
and ditto from me .... If you want to get a positive diagnosis, I would ask the GI to explain the positive blood tests !!! Listen to whatever they say ..then ask if its possible the biopsies were taken from a poor area to sample... There are 1001 reasons why a biopsy might be wrong from the tech having a hangover that day to the samples in the... -
Technically zonulin is supposed to control the permeability of the cell walls. However its less simple (permeability doesn't exist as a quantity because its always relative to the liquid ... i.e. A substance will have different permeabilities for water and oil a seive coated in wax but with lots of holes will allow water through but will repel oil so its...
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ARCHIVED Asymptomatic, Recently Diagnosed
gfp replied to Hummingbird4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I can only agree with home_based_mom, the only real effective way is getting ALL gluten out of the kitchen. If you have an understanding spouse, no children ... etc. you might mostly get away with a shared kitchen with clear zones but ... that really doesn't seem possible for you. Remember it only takes a crumb (or actually a lot less) .. someone... -
ARCHIVED Asymptomatic, Recently Diagnosed
gfp replied to Hummingbird4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Symptomatic can be misleading, you obviously had stomach pains but you might be surpised at symptoms you didn't realise you had. The easiest way to look at this is like a smoker or alcoholic. Many might say "Oh, my health is fine I just have normal irks and things" but the reality is there are lots of symptoms that built up slowly over years... we... -
ARCHIVED Why Is My Son (who Has Celiac) Always Sick With Colds?
gfp replied to mcceliac's topic in Parents, Friends and Loved Ones of Celiacs
This is almost exactly how I feel ... emphasis on feel.... Although I guess it's more like 'overloaded' than forgets??? However I did still find that most of the cold were not colds ... just a tiny amount of gluten seems to mess my whole immune system and I become much more allergic to pollen, dust etc. so in a way I feel its becoming hyperactive as well... -
Sadly mostly true.... Unfortunately that is rarely the issue. An amazing amount of people have no idea what the ingredients are on so many different levels. (personally I can't understand this at all.... that people eat things and have no idea what the raw ingredients are but it seems that most people really don't have any interest in what...
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There are multiple problems in English resto's. You don't say where you have been but in London many/most waiting staff are not English and many do not speak English past learning a menu by heart. The higher end the resto the more unlikely the staff are English ... my Gluten-free is not English and works as a waitress and has worked in quite a few...
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ARCHIVED How Does Gluten Free Food Taste?
gfp replied to Live2BWell's topic in Coping with Celiac Disease
Its all and none ... like Tim said, like regular food some is good and some is bad... The one thing that is different is the 'comfort food thing'. Its never going to taste like moma used to make because its different... Adjectives don't really work until you pin down a single product because its like saying how is gluten bread (to someone who has never... -
ARCHIVED Why Is My Son (who Has Celiac) Always Sick With Colds?
gfp replied to mcceliac's topic in Parents, Friends and Loved Ones of Celiacs
I used to think I always had cold but it turned out to be allergies! Its worth considering (headaches, runny/blocked nose, sneezing) are pretty much the same symptoms