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daffadilly

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  1. When you get a rude or nosy question you could ask one of the following: Why do you ask? How many books have you read on celiac disease? Why do you need to know? She is better educated and informed than my generation (or yours). Dietary Trial is the ultimate test. Instead of fast food she is making healthier food choices to enable her to lead a long...
  2. Two Words - Food Allergies I suffered with UTIs for MANY years. Now that I am gluten-free I do not have them anymore, I also still do not eat or drink, Tea, Coffee, Sodas, Grapefruit, Potatoes I was allergic to coffee, but I never drank it !!! Severely allergic to tea & it would give me an instant bladder infection. Used to be any and...
  3. Everyone has to make their own decisions, I personally would skip it. Instead i would just get the Enterolab gene test... & maybe the fat absoption test, if that is clear then it really means that your villi are okay. IMO biopsy is not necessary, if you want to a doctors permission to eat a healthy diet, then you will almost have to kill yourself...
  4. Did you change any soaps, fabric softner?? my guess is you probably got some cross contamination in the house, when they eat pizza with their hands what all do they touch in the house? Do they wash their hands right away???
  5. The director of our support group went to the international celiac meeting in NY & she said that it is recognized that ONE EIGHTH of a teaspoon of gluten stuff is enough to damage the villi. So you be the judge... You know if we could feel the damage being done to our organs we could all cure ourselves, but we cannot. Some of us are "lucky" enough to...
  6. Peanuts - for some weird reason I cannot eat roasted canned peanuts - they make me sick every time. BUT I have no problems with my Smuckers All Natural Peanut Butter. I have a lot of food allergies, so I usually accept these things & go on. I can eat all other kinds of roasted nuts with no problems, so I do not know what the problem with peanuts are...
  7. re the 2 year old that loves bread, watch that one as I have a grandson and a son that are like that - they crave wheat, & both of them are gluten intolerant. Your life with hubby sounds fun. Do you keep a kitchen box packed in the car? I think you might be getting some cross contamination (CC) from an old cutting board, wooden spoons etc. When...
  8. This is why you are ALWAYS supposed to get a hard copy of all tests for your OWN files. Tiffany the world needs people like you !!!! I used to be married to a doctor and knew lots of doctors socially - of course these would now be older doctors - if they are still living, the whole lot would not deserve your good thoughts of their profession. It is...
  9. Has she had a complete blood work up to check for vitamin levels etc? I would say to mail her some B12 - she should take a B12 everyday, this is very important, she might even need to get B12 shots... Most of us are low on B12 - & some dangerously low. Even if we test at the acceptable level - it is too low, Take a B12 everyday. you will not overdose...
  10. We have DQ1 in our family & yes you definitely want to keep him gluten-free. I have two DQ1's one of the same ones as your son 0303, I passed it to my son, who passed it to his son & his daughter, the lst kid has not been tested yet, my sister also has that gene. My sister & I & my granddaughter also cannot do dairy. We have a lot of food...
  11. Totally Agree... I believe, You are what you eat !!!! I am the oldest in my family and the healthiest. I have to go to the doc once a year to get my blood pressure med script. I am always afraid that I will catch a germ from some of the sick people there!!! I think testing is totally optional. I do like the gene test to see if you have the genes....
  12. after checking into all the other possibilities and in addition to I would like to second the exercise. Some of us need that extra boost to get the circulation going.
  13. Congrats Mia on your pregnancy, I was also going to say cut out nightshades, especially black pepper - It gives me little pains (they hurt) in the finger tips. I also cannot eat potatoes they give me chest pains. check this out for yourself, but i find that if you cannot eat potatoes a lot of time you can eat corn. Lundberg rice chips are good & have...
  14. I have a grown son.... IMO chances are nil you are going to get him to the doctor to demand tests that the doc is unfamiliar with. Your best chance I think, is to order the tests from enterolab.com not that I am too happy with them at the moment as my granddaughter's test came back negative, when I definitely know she has a problem...
  15. YES, YES, & YES... I was telling a doctor friend recently that I do not think that there is a person that is celiac or gluten sensitive that is not depressed on some level, before going on the gluten-free diet which has helped me a lot... depression is one of the main symptoms along with a lot of other stuff, and a lot of people have no symptoms or...
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