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Franceen

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Everything posted by Franceen

  1. Franceen
    Hi, I have DH - since 2004. Went completely gluten-free in 2005. I currently go to a Dermatologist. I was diagnosed by an Allergist via biopsy. The first gastro I went to had never heard of DH! I went to a Gastro recently when I moved to a new state, and she told me to take Lysine - that it is the cure-all for DH. OMG. Other than the gastro's all...
  2. Franceen
    I had a very similar diagnosing experience back in 2004. My PCP said "atopic dermatitis". The dermatologist said same thing. I was referred to an allergist, who was the only one willing to let me participate in the diagnosis. I came from a family of doctors and so I did a lot of research with medical literature and textbooks. I decided that it must be...
  3. Franceen
    Hey, My primary symptom was bad bad horrific DH. I didn't start getting the diarrhea until after I was gluten-free for a couple years, and got "gluten'd". The ONLY ONLY way to heal and rid yourself of DH is to be 100% (and I mean 100%) gluten free - probably for at least a month before you get improvement - and then never never cheating! I got relief from...
  4. Franceen
    Exceptions to the "most mainstream cereals" are SOME cereals made by General Mills in the "CHEX" series. Corn, Rice, Cinnamon, Chocolate Chex are all gluten free and the boxes are marked as such. But Peter's post about the MALT word is correct. Malt flavoring, barley malt, etc are made from barley. And almost all Kelloggs cereals have it in them. As...
  5. Franceen
    To be a little more specific..... Butchers, for many health reasons, unrelated to gluten CC (sanitary and disease related), practice some of the most diligent processes in cleaning their tables, knives, etc. They mostly don't use butcher block wood anymore as that harbors meat residue and grows bacteria. Instead they mostly use stainless steel tables...
  6. Franceen
    Why would the butcher's be too "gluteny"????? Meats (all that are just plain meat) do not have gluten. The butcher's is probably one of the safest places around! That's a very good place to get your liver!
  7. Franceen
    I have used many Sudaphed generics successfully: Walmart, CVS, Costco, BJs, Kroger. When I first tried each one I read the label. I've never had a problem with them. And I agree with "Moderator" all the companies DO tell you they are NOT gluten-free because they don't test for gluten and their lawyers have told them they HAVE to say that. So I no longer...
  8. Franceen
    Thanks Everyone for your input!! I have no known sensitivities to any of the mentioned ingredients (nor the ones common to these products). I eat soy all the time in other things and by itself (gluten-free soy sauce, soy milk), tapioca starch products, many many dairy products all the time, eggs at least twice weekly (scrambled, etc). I've been gluten...
  9. Franceen
    A while back I remember a few posts about Udi's making some really sick and then also that BC Devil's Food and now the Biscquick do the same thing. The conjecture was that it is cause by a significantly large amount of Xanthum Gum in these mixes to make them have the texture they do (GOOD, Hold-together texture). I had been eating BC Devil's food for...
  10. Franceen
    So for those of us less familiar with the test terminology/procedures what is the interpretation of the results? I don't know what "hook and control" is nor "test line". I'm assuming that Corona has very little or undetectable amounts of gluten and the other two have a lot of gluten? If so, that's strange! Franceen
  11. Franceen
    5 Yrs of gluten-free and this only recently came up for the first time! (We must not kiss enough). I came home late from work and went to give him a hello kiss and he was eating a sandwich and had crumbs all over his lips and teeth. I stopped short and so did he at the same time. Waited until he'd finished, and had something to drink and used a napkin...
  12. Franceen
    I had exactly the same thing happen to me with Betty Crocker's gluten-free Devil's Food Cake mix. I made cakes about 10 times and had no problem then out of the blue I started having the same reaction you did with the bagels! I thought it was bad eggs or rancid butter maybe. It was awful. Major stomach pain, nausea (while driving I pulled over a couple...
  13. Franceen
    No, never had a problem with nuts. I routinely check the label of anything and everything I eat too. I've been gluten-free for 4.5 years now. I don't generally worry about "made in a facility.........." and so far, haven't had a problem. I have eaten many different brands of nuts with no issues. The ones that are coated, candied, flavored, etc are the...
  14. Franceen
    I've been eating Curly's for several years now with no problems. I originally had emailed the company and received a reply that they were definitely gluten-free - the modified food starch is made from corn. I recently re-emailed them because they seemed to change to "new improved" this summer. Again they replied the same reply -gluten-free with Mod. Food...
  15. Franceen
    I had no problems for the longest time then started having problems with the Cinnamon flavored ones. Haven't had them in about 6 mos because of that. Will be trying them again soon.
  16. Franceen
    I have been taking Mucinex for years with no problem. I also have taken the Costco (Kirkland) version (which is different - it's not time-released) with no problems. The Kirkland version is a lot cheaper, but you have to take it every 4 hours.
  17. Franceen
    Yes, it happened to me. I gave up on tests of all kinds because they were all negative. I was told that I would have to eat a lot of gluten for 3 weeks prior to the test. I had been gluten-free for about 3 months when I had the Biopsies (two, one from old lesion one from skin near that lesion, even though I thought it should be from new lesion - I had...
  18. Franceen
    I looked up all the sour creams in the Clan Thompson Food Smart List and all the basic, non-flavored sour creams were gluten-free. One "Fat Free" however, was listed as Maybe not gluten-free (yellow flag). Several sour creams "with onion" were listed as NOT gluten-free. Generally I have never questioned pure sour cream, plain, full fat, and I've not gotten...
  19. Franceen
    I was diagnosed with DH and Celiac by success of the Gluten Free Diet. I had amazing success, so much so that my allergist said that if I wanted the Endoscopy that would make the medical community happy, but because I had been gluten-free for 6 months it would be positive unless I ate a LOT of Gluten for a LONG time! I went to the Gastroenterologist who...
  20. Franceen

    Happy birthday and may God bless you today!

  21. Franceen
    I never can pinpoint it exactly for sure but suspect the following: Cinnamon Flavored Chex (almost certain) - do fine with the corn and rice and honey nut. Van's Waffles (almost certain because reaction is consistent every time I eat them) gluten-free Menu items at Uno's (Cheesburger item - just a cheeseburger w/o bun - suspect cross contamination in...
  22. Franceen
    Dapsone is a very dangerous drug and can cause some very serious side effects. I almost died from it - although it did wonders for my DH until I hit a certain dose (100 Mg) Here's what happened - taking 50 MG I got hemolytic anemia and all the side effects of that. My liver enzymes went way out - pointing back to a hepatitis infection I'd had 35 yrs prior...
  23. Franceen
    All of my research has found the same thing - gluten is not absorbed through the skin - but can be absorbed through mucus membranes (inside nose, mouth, etc). I've checked all the leading authority people (U. of MD, Mayo Clinic, UVA, other famous places abroad, etc) and had it confirmed by my own 3 doctors. I have no problem using non-ingested products...
  24. Franceen
    There are many out there. The best ones (most comprehensive) aren't free. The one I use is Clan Thompson's. www.clanthompson.com His celiac site is specifically: Open Original Shared Link All the options for both the Gluten Free Food Guide and Gluten Free Drug Guide (they are software programs) are on the site. You can buy the static versions (no...
  25. Franceen
    I THINK I had a problem with the Cinnamon Chex, but am not 100% sure that was what it was. A Wegman's just opened up here and I've been trying out a lot of new "gluten-free" stuff. I LOVE the Cinnamon ones to eat for a snack just plain, but for now will stop. The Chocolate ones are also on my shelf now (my Hubby bought them for me as a surprise), and I...
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