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evie

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Everything posted by evie

  1. evie
    Rachel, do you have enuf foods left to use a 4 day rotation diet? I am afraid you are going to lose (to intolernces) all foods or most! when you are having diarrhea that is when you are most liable to have that happen. sounds like vacation week was not such a great week, sorry. I just happened to see my dermatologist last week for pemphigoid of...
  2. evie
    Rachel, I have been waiting a bit since you posted about the new medication you are taking (ketitofen) so? to ask you to send info about how to get it in other states. thought you might be getting several requests. I will see my local Dr. on Monday, would like to tell her about it and if she can't prescribe it will tell my GI @ University some time in...
  3. evie
    My prayers are for you 2 plus family, for healing, patience & all the things you need evie
  4. evie
    Praying here for wisdom for you, family and dr's to make the right decision for little Megan. so she can get her surgery too and be a well child. evie
  5. evie
    Yes,I have heard of people having celiac and chrones + having celiac and IBS. So m,any times with further investigation people will find their IBS is actually celiac disease. If she is found to be celiac and goes gluten free she will get much better and probably would not develop chrons. wish you much luck with your daughters testing!! Living gluten free...
  6. evie
    I do not know about the saliva test either but from what I understand unless you are very lucky to get a REALLY knowledgeable GI for any celiac testing you may be on your own in working/ celiac disease. It seems celiac has not been taken seriously by most doctors, maybe because many medical schools teach very little about it. It seems the theory has been...
  7. evie
    No, they are just not online just now!! but i know how you feel you want instant answers. I am not as well versed as many here on tests. I had endoscopy several months ago that was negative then I swallwed a capsule camera that showed small intestine damage & satisfied that GI that I had celiac disease & started gluten free. He sent me to University...
  8. evie
    Its not going to stop me from being happy.. ill write more later, christina; I admire your grit and determination , I know a bit of encouragement can really help when a person is down. I have done a lot of it and also gotten lots for myself. My hubby has been depressed for over 20yrs, suisidal for part of that before I could get him to right dr., now...
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  11. evie
    hiveman; sounds like you are having problems!! Sorry, you too. Many people on this forum have had or have either constipation or diarrhea, I am wondering if possibly you are somewhat constipated that causes the fullnes on your R. side. I went from "D" to "C" after being gluten free for a few months, now am m ore the way I want to be (nearly 1st time in...
  12. evie
    I have had those for 7 or 8 years, better now. first was diagnosed/ lichen planus by dental surgeon, then to dermatologist / diagnosis of citricidal pemphigoid, he sent the swab to Mayo clinic. Dapsone has kept me more comfortable for several years, after going gluten free for almost 6 months & cutting out several foods I have been able to cut down the...
  13. evie
    Rachel; I do not think you are a hypochondriac!! more than likely you have just been sick for so long your immune sytam has gone down the drain along / mine and many others on this board. After reading about sulfites on this line i know why my Dr. had me leave off dried fruits ( sulfites). i am in the process right now drying in my home ddehydrator some...
  14. evie

    ARCHIVED Constipation

    evie replied to Moongirl's topic in Coping with Celiac Disease

    I get pain in my lower to upper right side too when I'm constipated. Not to be disgustingly graphic, but if I press down around there I can FEEL the poop. It's like it gets stuck there (that is the ascending colon so it has to travel up and then turn...) My GI doc thinks I also have some IBS. Taking Metamucil helps me for the C, and Equalactin helps with...
  15. evie
    My dentist is not allowed to do it & I have so many but for last several years I have had composite material put in when an old one need replacing or a new one put in. I like to think it helps. I used to get HEAL magazine (allergies) and writers there sure thought it was worthwhile to have removal of amalgam fillings. I do think could have started a lot...
  16. evie
    Rachel; Avocado have 300 to 500mg of fat. they are very good to help you gain weight, helped me gain a few lbs. the spaghetti squash need salt and buuter or oil you use, we like it. hope to use spaghetti sauce on it when I get so I can use it. Also sw potato and yellow winter squash are loaded/ vitamin A, carotene & etc GOOD things for you. I just may...
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  18. evie
    I have a similar problem even closer in relation, daughters!! the oldest has very bad osteoporosis & stomach problems + anemia. she has recently started getting IV/ something to help her osteo since nothing else had helped (got worse). she is bothered by stomach problems, has a prescription for that. second daughter has had breat cancer 5 years ago, now...
  19. evie
    I agree!! If you are old enough you will remember when spaghetti first became popular in the US, then pizza & later sandwiches, especially subway sdw/ lots of bun. all based on bread/ wheat!! Long ago, like erly 1900's diets were based on potatos,when more moved to cities rice based, now wheat bread based!! no wonder there are more people/ celiac disease...
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  23. evie
    Rachel; you sure are a good detective!! I sure don't blame you for being angry, I would be too and am. As far as i know MSG is not a problem for me but I sure am going to stay away from it just in case. Have you thought of writing to your local senator & congressman about the blatant misuse of MSG. Even 1 gram is a lot for a persons body to ingest!! when...
  24. evie
    Lister, I am so proud of you with your giving encouragement to someone who is having a rough time fighting the celiac disease too. that does mean a lot to us when we are feeling at our lowest, at least we think it is. Back 4 months ago my GI Dr. said " it will get worse before it gets better" and I thought "it can't possibly get worse" but it DID. I went...
  25. evie
    I have not had a chance to try organic chicken either, it might go down better, when I have a chance I will get one to try. seems strange so many seem to have a problem eating chicken and rice, we must have eaten them together just too many times! I hope we all get over those problems. A friend of mine was surprised & said those are such mild foods!!...
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