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Latest Celiac Disease News & Research:
Everything posted by evie
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ARCHIVED Avid Gardener Wondering Is There Anything To Watch For Gardening With Gluten?
evie replied to toomuchagony's topic in Coping with Celiac Disease
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I had the sore mouth corner cracks unril I started vitamin B...seemed to help and they went away. glad you are getting diagnosed and can get on to feeling much better, it is rough to have problems most of a LONG life like myself. You will get very good advice here..lots of very helpful people on this forum. good health to you...evie
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ARCHIVED Depressing Teeth Decay Problem
evie replied to Alternative mama's topic in Coping with Celiac Disease
I ertainly can feel for you about the tooth problems...Mine started a few years before DX then all of of a sudden I needed 2 teeth removed after rotting from iside out. every year since then i need a few cavities filled or old fillings replaced. My dentist does have to remove HARD plaque every 6 motnhs and thinks I neglect my teeth but I DO NOT. Just... -
ARCHIVED Newly Diagnosed And Kinda Cranky
evie replied to TipTip's topic in Coping with Celiac Disease
Hurrah for you...you are fighting mad!!! that will make you very vigilant about what you should or should not eat...with celiac disease we have to be our own researcher and find what works for us..so glad you came on the board, stay with us and you will get a lot of good help here. & I did here 2 years ago after my DX and still do...had been having digestive... -
ARCHIVED Are These Normal Symptoms For Anyone Else?
evie replied to newgirl88's topic in Coping with Celiac Disease
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ARCHIVED Not Better 5 Months Later - Please Help!
evie replied to LoriG's topic in Coping with Celiac Disease
I know how it is to feel like you are having little progress but if you had been sick some time before diagnosed it may take more time to get the small intestine healed enough to feel better making you feel like you have been cc'd. I have been a SLOW healer, took one and one half years before I started to feel progress. Still have to be careful but am much... -
Have you tried wearing socks to bed? I have the same problem of needing extra heat and clothing, has been worse since I was diagnosed 2 yrs ago. my heart rate is quite low, Dr. says could be from some of my neccessary meds...hope you are better soon...evie
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ARCHIVED Crohns/uc/colitis And Celiac
evie replied to cookie22's topic in Related Issues & Disorders
Nearly one year after Celiac DX I found I have colitis too. Not using any meds but still experimenting to find what causes upsets of both problems...does anyone eer get to the point where you feel safe in what you eat? Do you think emotions enter into theses problems? I am wondering about the colitis if it does not...I am so much better than i was at DX of... -
I just recently read that going off gluten can cause deperession and related problems..like we are addicted to gluten..I have been thru that too..also does take time for the diarrhea and etc problems to get under control since people who have had this problem for some time take longer to heal their gut of the damage made by gluten...fiber is helpful for some...
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I FEEL FOR YOU DEB, I WAS IN YOUR PLACE ABOUT 18 MONTHS AGO. MY GASTRO HAD TOLD ME TO GO GLUTEN FREE AND SET UP AN ENDOSCOPY + COLONOSCOPY), THEY WERE BOTH OK. I GOT WORSE WITH BIG "D" CONSTANTLY, WEAK AND LOSING MUCH WEIGHT...THEN HE DID THE CAPSULE CAMERA WHICH SHOWED CELIAC DAMAGE, APPARENTLY I HAD THE PROBLEM SO LONG MY INTESTINES DID NOT HEAL QUICKLY...
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ARCHIVED I Think Walmart's gluten-free Just Glutenated Me! Help!
evie replied to JustJust's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So right..it took several months for me to feel much better since I must have had the celiac condition for a long time...for some people it take s longer to start the healing process..try not to be anxoius, that will complicate things for you..feel better..evie -
ARCHIVED I'm So Glad I Got Scoped Again
evie replied to melrobsings's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am wondering if you might have ulcerative colitis causing the bleeding...several months ago I had a colon infection that caused me to have the colitis..at that time the bleeding was severe but now only have it ocasionally..but have not been able to pinpoint the cause. I am celiac for one and one half years and have that pretty well under control but just... -
ARCHIVED I'm So Glad I Got Scoped Again
evie replied to melrobsings's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I WATCHED THAT TOO..ANOTHER AMAZING THING WAS THAT THE PHOTOGRAPHER WAS ON VACATION AND SAID HE ONLY GOT HIS CAMERA OUT ONCE A YEAR, GUESS HE MUST HAVE BEEN AMAZINGLY LUCKY OR??? VERY INTERESTING RACHEL ABOUT YEAST AND MICOTOXINS..I USED TO BATTLE THE YEAST PROBLEM AND TOOK NYSTATIN YEARS AGO..ICKY STUFF, TOOK IT FOR OVER A YEAR...HOPE YOU ARE FEELING BETTER... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
WHEN YOU HAD A BAD DAY RECENTLY DO YOU THINK YOU MIGHT HAVE BEEN OVERWHELMED BY ALL THE TESTING AHEAD AND AM SURE THE SPECIAL DIETS EXTRA COOKING, FIGURING WHAT TO EAT ALONG WITH CHILD CARE REALLY FILL YOUR DAYS...YOU NEED A VACATION GIRL!!! HOPE YOU CAN GET IT...EVIE -
ARCHIVED Is There A Connection Between Celiac/gluten And
evie replied to radgirl's topic in Related Issues & Disorders
After going on gluten free diet it is common for awhile to feel like you are starving...I went thru that too, do not believe that will last too long for you..just EAT food good for you..extra protein helped me. Good you are on here..you will get a lot of good information here at Celiac.com...wish you well...evie -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Hello all...just had to respond after reading some nice comments about myself on here 3 pages back. Just yesterday I finally got back on celiac.com, my passwaord gets kicked out..hoping it stays in this time. Also sorry to get back in time for the late 7/4/07 fireworks...hope everything gets worked out and all the posters stay here...we all learn from Rachel... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I am back!! Have not been able to get in here for several weeks and finally made it...hope you are doing better and sounds like Rachel is doing her scientific thing that she is so good at..hope you are at least as well as you were when I got knocked off...I have been busily getting 2nd opinions at U of I..have seen several Dr's and had lots of tests..think... -
ARCHIVED Is Lomotil Ok?
evie replied to Anne AMP's topic in Gluten-Free Foods, Products, Shopping & Medications
I am sure lomotil is gluten free and it helped me more than immodium did when I was having so much "D"...good luck to you...evie -
ARCHIVED Quinoa....yuck
evie replied to singingserena's topic in Gluten-Free Foods, Products, Shopping & Medications
I have used quinoa as a ceral for quite sometime, rinse it well before cooking. Our dd got me some from larger store that had already been rinsed, also the quinoa flakes make a very good & quick hot cereal, good in meatloaf, oatmeal like cookies and many uses. If that soapy stuff is not rinsed off it will even smell different UGH!! i want to try the idea... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Andrea; Sorry for your loss, but he is free of pain and fought the good fight. Everyone grieves in their own way but be sure to let yourself grieve. If not it can be bottled up and cause physical problems later. you are such an intelligent person I am sure that will not happen to you. Prayers for you and all! evie -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
ANDREA, I AGREE WITH THE LAST 2 QUOTES. FIRST MY DAD WOULD NOT GO TO DR. WHEN HE STARTED GOING DOWNHILL ( TOOK 6 MONTH S0 BY THEN TOO LATE TO HELP HIM). HE DIED A PEACEFUL DEATH @ HOME AND OLD FRIENDS, RELATIVES FROM STATES AWAY CAME TO SEE HIM. IN IS 6 MONTHS AFTER EXPLORATIVE SURGERY, HE KNEW THERE WAS NO HELP & HE USED HIS TIME WELL. I ALSO HAD... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut