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Latest Celiac Disease News & Research:
Everything posted by evie
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ARCHIVED How Important Are Probiotics And Digestive Enzymes?
evie replied to Aerin328's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Nancy, could you tell me how to amke kefir from coconut milk. thank you so much! evie -
I used to get those bad sores on my inside cheeks + tongue, would be hard to eat. After getting to the right Dr (dermatologist) I was put on a med for Citicidal Pemphoid. It is realted to DH and Celiac, did no know that @ the time so ws on the ned for 7 years. After celiac diagnosis and lots of time I got off it and only use a special mouth rinse when I have...
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ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
[rinne... I went back trying to find your post/ no luck 'scary out there'. So glad to hear from you!! I had been telling myself I should start asking about you here or on DS. Procrastinator I am but maybe it was telepathy between us!!!! . hope you will soon be feeling lots better and add your 2 cents worth even more, you have had some very good posts. ... -
ARCHIVED :( Lost
evie replied to katrinamaria's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here I am again..evie.. It may be that the alchohol does work as a diuretic and takes some of the fluid from your body. but there must be another way to get this fluid off besides alchol. whiskey is made of rye, beer of corn (sometimes) and some alchoholics have found that their drink of choice is made of a food or grain they are allergic to. Of course wine... -
ARCHIVED Attn: Iowans!
evie replied to katrinamaria's topic in Gluten-Free Foods, Products, Shopping & Medications
Good to see you Katrinamaria..you look so young!! I too have heard this new pizza advertised lately on WHO..Van harden is his name. think he is also the one who invented a clock - calendar so his not well mother could tell time. As soon as I get over lactose intolerance I want to try it too. Also in case you don't know it Hy Vee has a long list of... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
BEEN NEARLY A YEAR SINCE MY CELIAC DIAGNOSIS, WAS GETTING MUCH BETTER BY SUMMER, THEN HAD TO SPEND 36HR IN HOSPITAL. WITHIN 6 WEEKS I WAS VERY SICK WITH MUCH 'D'. THIS CAUSED OTHER ORGAN DAMAGE AND I SPENT 2 WKS IN 2 HOSPITALS, DR. SAID I HAD COLLAGENOUS COLITIS. HAVE BEEN OVER THE C DIFF FOR A FEW WEEKS AND THE COLITIS IS BETTER. TIME WILL TELL ABOUT THE... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I have a suggestion for a subtitle: 'When the gluten-free diet isn't enough'. ""When the gluten-free diet isn't enough to make us heal.""'. -
ARCHIVED Colonoscopy/endoscopy
evie replied to Mal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Mal...you really do not have to be scared. the doctor and his helpers will make it easy for you. . You should have no pain and should be feeling pretty good soon after the procedure. If this is your first time to have a procedure such as this everything is new to you. I have had it and no big deal!! Just hang in there, things will be just fine and hopefully... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Christmas day I plan to make pumpkin custard, we like it real well and hubby does not need the calories. The family fixed him up with enough goodies to last awhile. I mix the ingredients to gether up to milk, then I take 1/2 out and use cocnut milk for mine & canned milk for his. Seems real good. I do eat a tiny bit of topping, maybe should not but cna... -
ARCHIVED Happy Birthday Judy!
evie replied to Rachel--24's topic in Introduce Yourself / Share Stuff
Happy belated Birthday Judy, I just ran across this thread. I hope you are feeling better since you gained one year!!! evie -
Someone back a few postings wrote of reasons why you might want to not have the endoscopy and just start the diet, another reason might be that the longer you continue eating gluten you could be having more damage to your intestine lining. My Second gastro wanted me to have another endoscopy, first one did not show much damage and he was unsure. but I had...
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ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Hope you are feeling better soon rinne. I too have been getting dropped off here for quite sometime, even before the additions to the forum, but have been dropped from other places too. must be a few ghremlins in our computers lately. I did a lot of napping Monday also, must have eaten something I should not have had on Sat., paid for it all day Sunday with... -
I understand!!! I was diagnosed just a bit before you and was getting along pretty good food wise when with company here I may have eaten 3 foods that may be suspect for my 2 day 'D'. Suppose I will just stay away from all 3 until i feel up to testing them. Glad you know what food is the culprit, you are ahead of the game. I eat individual nuts on a 4 day...
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ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Judy...so sorry you have been so sick, has that been for long? I so appreciated you chatting/ daughter Shirley when I was in the hospital. She and hubby are here for the weekend, sure do appreciate all of our 3 dd's!!. Has PM been removed from the board? was going to send you one but did not find that area. Is your cellulitis any better? I do not have that... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Welcome back from your vacation Donna!! Hello to all you, I just skipped a lot of pages so will need to catch up on your doings and goings on. I see you have a lot of whistles and such added, will check them out. I have been kicked off for awhile and just got a password from Scott that works!! Got on for 1 or 2 days a week ago but soon gone. I am lots... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
OMG my dogs have gas. ugh.....I fed them the leftover stuffing. IT is of course gluten-free but evidently doesn't agree with Stinker's intestines..... off to bed. I"ll try and catch up later but I dingo'd everything else. Quote So do I Susan, glad you had a better day at work today...sure hard to keep up with you busy people, lots... -
ARCHIVED Anyone Know How Evie Is?
evie replied to Judyin Philly's topic in Introduce Yourself / Share Stuff
I put a post on the OMG thread when I got home mon pm. Am now eating my own types (gluten free + rotation diet) foods which I could not do in hospital, so am feeling stronger a bit. I got so low down on energy it will take awhile to gain back weight and energy. I so appeciate all of you asking about me, really pleased to have made so many good friends on... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Yes, I am back home finally!! Got home mon.late afternoon, exhausted of course. Nurse in this am and PM dd Carolyn took me back to hosp to have heart monitor checked and renewed. Have to go back Wed pm, only 60 miles 1 way, that is to be last one, hopefully. Will get a blood test also, then get to stay home a few days. So good to hear from so many of... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Sorry to break in here...am going to Dr. soon..still having bad diarrhea, worse. not be surprised if hospitalized..getting very weak..your prayers and concerns have kept me going...thanks so much. Love to all, evie -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Yes i did and THX, kinda scary too. Thanks to everyone for your concern and all. Is good to know some people know what we talk about, those around me know very little about celiac and so forth..can't imagine such problems. G'nite all. evie -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
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ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I think 98 would be a great age to live to, congratulations to her for living a life to be celebrated. I hope it is a good day for all. -
ARCHIVED Hi Everyone, I'm New....
evie replied to 2ofus2kids2dogs's topic in Coping with Celiac Disease
I sure do not agree that your DR. did not do the biopsies you asked for you. Some of us (a lot) have problems getting diagnosed, including me. Such a long time for me and then GI said "presumed celiac' a few months ago, so I gained back some lost weight. I had not been a big bread fan so I use alternate grains cooked for breakfast..quionoa, millet, wild... -
ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
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ARCHIVED Omg...i Might Be On To Something
evie replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Can't get caught up!! Been gone most of day. Hope rinne can see my Happy Birthday to you.. before she goes to bed?? Hope you have had a VERY good day. evie