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celiac3270

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Everything posted by celiac3270

  1. celiac3270
    Here is a link to the group's homepage: Open Original Shared Link
  2. celiac3270
    With gluten intolerance, it's an autoimmune reaction--basically, the immune system mistakening gluten as being an invader--basically what happens to people with juvenile diabetes (though not with gluten, of course). But in gluten intolerance, the gliadin doesn't trigger an autoimmune reaction. Celiac is autoimmune, but gluten intolerance isn't because there...
  3. celiac3270
    I guess I'll divide my response up into your first post and the second. I'm not saying that damage can only be caused in people with the DQ2 or DQ8 genes. There are other genes involved, but nobody's had the resources to go through all of them and check as to whether they are involved with celiac disease. You might have a gene that has not yet been identified...
  4. celiac3270
    Just wanted to reiterate--not trying to undermine your diagnosis, Rachel--just pointing out a general possibility in similar cases. I just wanted to emphasize that because I don't want to offend you or suggest that you don't have some issue with gluten, be it celiac or something else.
  5. celiac3270
    So someone without one of the known celiac genes and therefore, not at risk of developing celiac (except in extremely rare cases when they have one of those not yet identified genes), will not be hurt at all by consumption of gluten. If they have gluten intolerance, they may feel bad when they eat certain amounts of gluten, but it will not do any intestinal...
  6. celiac3270
    sent
  7. celiac3270
    I got a list from another group, Silly Yaks: Gluten Free Candy List October 2005 Disclaimer: This list is for reference only and the user should contact manufacturers directly. It is a guideline and the user accepts full responsibility for use of it. At the time of it’s posting, it is believed to be accurate with current gluten-free information. ...
  8. celiac3270
    I've talked to a number of doctors about gluten intolerance, though, and they have all told me (including Dr. Levy at the Celiac Center at Columbia) that gluten intolerance is like lactose intolerance in that you can consume whatever you can tolerate--for some that may be almost none, for others it might be a little bit. And gluten intolerance disregarded...
  9. celiac3270
    I recently got this list from the Yahoo Group "Silly Yaks." I could also send it in word document to you if you wanted. Gluten Free Candy List October 2005 Disclaimer: This list is for reference only and the user should contact manufacturers directly. It is a guideline and the user accepts full responsibility for use of it. At the time of it...
  10. celiac3270
    --
  11. celiac3270
    But surely no one could react intestinally to 10 ppm. You'd need at least around 100ppm to have a possible autoimmune reaction. And I'd bet over 95% of people here are getting over 10 ppm daily (just the number I chose before). Unless you eat 100% non-processed, have a dedicated gluten-free kitchen and no gluten in your house, you're bound to have at least...
  12. celiac3270
    Crystal Light is completely gluten-free. Coca-Cola will send you an e-mail with the specifics, but basically, everything such as (regular Coke, sprite, diet coke, diet sprite, caffeine-free coke, caffeine-free and diet Coke, vanilla coke, coke with lemon, and then the rest of it is gluten-free, but they have a cya thing about all products adhearing to the...
  13. celiac3270
    I would go with Delphi first, hands down, even if it cost something. It's the best list I've found. If you're going to buy one of those two, though, I'd probably go with the Clan Thompson (#2).
  14. celiac3270
    If you get "glutened" once a month, it's the equivalent of not following the diet at all--you need to go all in.
  15. celiac3270
    Technically, it is a disease--it doesn't need to have a virus involved--for example, take an autoimmune DISEASE like juvenile diabetes--no virus involved, but it's still an autoimmune disease--likewise is celiac. Do I think of it as a disease, though? Yes and no, more on the no side. I think so because it is technically and because it damages me. In...
  16. celiac3270
    In what format is the list? Is it a basic word document or pdf that you could just copy and paste while maintaining the general format?
  17. celiac3270
    Hey-- being that this is under the teenager's section, how old are you? (not that you can't post here if you're not a teen, but just interested to see if you're around my age)
  18. celiac3270
    Well, any amount within reason. 10 ppm, for example, would not get ANYONE sick--you should not feel symptoms and there would be no intestinal damage from that amount.
  19. celiac3270
    I don't remember my numbers-- but to answer one question: it would never go to zero. You can be perfectly healthy, perfectly non-celiac with no gene or anything, and still have a tTG of say... 6.
  20. celiac3270
    Right--it's not ALWAYS representative of the amount of damage, but it is representative of celiac.
  21. celiac3270
    I'm hoping I won't be spoiled like that. Maybe I have an advantage, being that I experienced 14 years of misdiagnoses and medications that didn't work before everything was fixed.
  22. celiac3270
    The doctor probably meant borderline--could go either way, since it's not conclusively high, but it doesn't fall in the normal range. But it is phrased oddly
  23. celiac3270
    Thank you! I'm a freshman in high school. Actually, I want to be a doctor
  24. celiac3270
    It could take awhile. You're lucky if you see improvement within the 1st month. It could take anywhere from 2-6 months normally--after that, it could be that the villi are still blunted, but then you know it's time to check for other problems.
  25. celiac3270
    Wow--I am amazed. An increased population of celiacs around my age! (btw, that post is about a year old--I'm now 14, almost 15).
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