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Latest Celiac Disease News & Research:
Everything posted by wonkabar
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ARCHIVED What Were Your Child's Symptoms?
wonkabar replied to elaine33's topic in Parents, Friends and Loved Ones of Celiacs
OMG...YES!!!!!!!!!! My 3 1/2 year-old son had many "classic" symptoms since he was about 18 months (some earlier). We've had him on a gluten-free diet since just before his 3rd birthday, and it's the *best* thing we could've ever done for him. He had pale, loose, *God-awful* smelling poops several times a day, blistering-bleeding diaper rash (constantly... -
ARCHIVED Celiacs Disease And Schools
wonkabar replied to SoulKitten's topic in Parents, Friends and Loved Ones of Celiacs
No sweat! Yes, she does know that we don't "do peanuts" in our house. She's a dear friend who I know did not intentionally put my son in harms way. I just think she either forgot or, more likely, just figured it was okay as long as she was sitting at the table. Her daughter doesn't have any allergies or food issues, but they are very protective... -
ARCHIVED Celiacs Disease And Schools
wonkabar replied to SoulKitten's topic in Parents, Friends and Loved Ones of Celiacs
I agree that it would be completely unreasonable for me to expect anyone coming into my house to know that my son has a peanut allergy and that they are subsequently not permitted to bring peanuts into my house. I also agree that it is my responsibility to inform anyone he is with that he has several food allergies. However, she does know about his peanut... -
ARCHIVED Celiacs Disease And Schools
wonkabar replied to SoulKitten's topic in Parents, Friends and Loved Ones of Celiacs
I agree. Unless you or your children are affected by an allergy or other issue with food, some people just don't get it b/c it's not part of their reality. I'm not saying it's right, but it's the truth. My son has a peanut allergy and, needless to say, there isn't anything with peanuts in the house. A couple of weeks ago we had friends over and my... -
ARCHIVED Rrrrrggg....this Is So Darn Hard Sometimes :(
wonkabar replied to Mamato2boys's topic in Parents, Friends and Loved Ones of Celiacs
I'm glad things seemed to go well for your little guy during his Halloween Party. Are you still going to consider talking to the director and staff again?? It might save you some stress during the holiday parties. A little refresher course in Celiac Disease and sensitivity of individual differences never did any harm! My son was very happy with... -
ARCHIVED Nausea After/during Endoscopy?
wonkabar replied to jmengert's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I hope you made out okay today and weren't too nervous. I had my endoscopy done last Wednesday and was really nervous about it, too. I don't know why; I've had several procedures that were more invasive than this. I didn't remember a single thing and woke up in recovery an hour and a half later. I had absolutely no pain, nausea or discomfort afterwards... -
ARCHIVED Campbell's Gluten Free Product List
wonkabar replied to wonkabar's topic in Gluten-Free Foods, Products, Shopping & Medications
I bet you could make a yummy casserole, like Chicken Divan, with the Chunky Chicken Brocolli Cheese soup, chicken tenders, frozen brocolli, shredded cheddar, seasoned gluten-free breadcrumbs and Tinkayda noodles. Hmm....I'll have to try that! -
ARCHIVED Celiacs Disease And Schools
wonkabar replied to SoulKitten's topic in Parents, Friends and Loved Ones of Celiacs
I'm sorry you're having such a hard time. I can understand your frustration and irritation as I have a 3 1/2 year old on a gluten free diet and would be most irritated if I were being treated poorly and the preschool was not being supportive of his needs. That being said, I'm a special ed teacher and can completely understand why your school would not accept... -
ARCHIVED What Are Your Favorite Naturally Gluten Free Foods?
wonkabar replied to Mtndog's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow! What a great thread! This is *exactly* what I was looking for! Confirming what I'm already doing is a good thing and new ideas is even better! Thanks!!!!! -
ARCHIVED Campbell's Gluten Free Product List
wonkabar posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I just got this in the mail today and thought I'd pass it along. My apologies if this has already been posted. EDIT: I just copied this post from another area as it seems more appropriate here! (sorry! ) Chunky Soup -Chicken Broccoli Cheese Select Soup -Savory Lentil Prego Pasta Sauces -Traditional--all sizes -3 Cheese Sauce-... -
ARCHIVED Rrrrrggg....this Is So Darn Hard Sometimes :(
wonkabar replied to Mamato2boys's topic in Parents, Friends and Loved Ones of Celiacs
Having the daycare staff ask if you were going to keep your little guy home was most insensitive. While their intentions seemed to be good in terms of not wanting your son to get sick, they could've certainly gone about it in a different way. I don't blame you for being upset; who would want their kid to miss a Halloween party, or any school activity... -
ARCHIVED Horrible Biopsy Experience
wonkabar replied to wonkabar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please don't feel badly; it wasn't your fault the doctor was such a jerk. The procedure itself truly was a piece of cake. The only downside was that it took me the entire day and night to shake the effects of the sedative. I had the hangover but missed the party! I don't know if I'll get any answers about anything. The only reason I pursued this... -
ARCHIVED Horrible Biopsy Experience
wonkabar posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So, now that I'm more coherent I can explain my experience. I have been to many doctors for many things and have NEVER been treated like this or found anyone to be this rude. After waiting an hour and half after my scheduled time b/c the same day surgery center was packed (standing room only!), the doctor walked into the procedure room. He never... -
ARCHIVED Kids gluten-free Recipes Help
wonkabar replied to vampella's topic in Parents, Friends and Loved Ones of Celiacs
Hi! I don't know if you're dealing with additional food allergies, but here are a few things my kids really like that I *alway*s have on hand that are fast and healthy... **"cheesy chips"...bite-sized (circle)Tostitos and shredded cheddar (you can always add some seasoned crumbled turkey or ground beef) **Tinkadya Pasta with either olive oil or butter... -
ARCHIVED Parents Begging Not To Do Biopsy On Dd
wonkabar replied to LauraW's topic in Parents, Friends and Loved Ones of Celiacs
YIKES!! I think you're right! I apologize, Laura, if I caused you any additional stress. I don't think it was anyone's intentions. Controlling and meddling "parental units" on both sides can certainly bring out the best of us. Good luck today! -
ARCHIVED Parents Begging Not To Do Biopsy On Dd
wonkabar replied to LauraW's topic in Parents, Friends and Loved Ones of Celiacs
HI! I just finished reading this thread and agree that you need to do what you feel to be in the best interest of your daughter. While Zachary was highly symptomatic of Celiac Disease, after our experience with our boob-of-a pediatric gi who told us he was "just fine" despite all of his symptoms, we decided to just try the gluten-free diet. We were't... -
ARCHIVED Biopsy On Wednesday
wonkabar replied to wonkabar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So, I was sent off to a very nice place this morning, however I have no recollection of where it was! Right now I feel like I have a hang-over but missed the party!! (bummer!) I slept in recovery for two hours, during the ride home and for another 3 when I got home...and I'm still groggy. No wonder it's a controlled substance. The doctor... -
ARCHIVED Biopsy On Wednesday
wonkabar replied to wonkabar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So it's 210am, and I'm wide awake! I slept sound for four hours and here I am!! I, of course, am dying of thirst b/c I know I can't have anything to drink. My stomach is also churning which is probably the result of the Applebee's dinner I ate........I was going with the whole "last meal hoorah" angle. Applebee's is always good at the moment but makes... -
ARCHIVED Toddler Sleeping Issues
wonkabar replied to AmyTopolski's topic in Parents, Friends and Loved Ones of Celiacs
Hi Amy! I can tell you from our experience that once we removed gluten from our son's diet he miraculously began sleeping through the night. He was just about 3 when we started the gluten-free diet. Before this, he consistently woke up on the average 3-4 nights . He would cry and yell and usually be up anywhere from 1-3 hours and often wanted something... -
ARCHIVED Biopsy On Wednesday
wonkabar replied to wonkabar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's an absolute riot!!! It's probably the most peace and quiet I'll get all day...my kids are 3 1/2 and 21 months. It's amazing what one does for a little bit of solitude, isn't it??!! -
ARCHIVED Biopsy On Wednesday
wonkabar replied to wonkabar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks! I'm sure it'll be over before I know it. If my throat hurts it'll give me a reason to eat icecream...gluten-free of course! -
ARCHIVED Biopsy On Wednesday
wonkabar posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm scheduled for my biopsy Wednesday morning. I'm not sure why, but I'm actually a little nervous. Maybe it's because I've had time to think about it. I'm also starting to go through my cabinets to rid my house of whatever gluten is left in it! Even if the biopsy comes back negative, we're going to make the entire house gluten free. My son... -
I saw a dramatic change in my son's behavior and some attenional changes within two days. That being said, while gluten can cause certain types of behaviors in children, ADD is still a very real issue and Dx. Yes, we did see improvement in his ability to attend and level of distractability however, he is still extremely distractable and has a great deal...
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ARCHIVED St. Thomas/st. John
wonkabar replied to sunshine264's topic in Traveling with Celiac Disease
We were just on St. John in March with the kids...literally the week we put our son on a gluten-free diet. It's absolutely beautiful there. We had one suitcase filled with diapers, wipes and gluten-free foods. We hit the Starfish Market a couple of times. Boy is it expensive!! I don't think they had any gluten-free brands per se. (ie, Gluten Free Pantry... -
ARCHIVED How Much Juice Does Your Toddler Drink?
wonkabar replied to Fiddle-Faddle's topic in Parents, Friends and Loved Ones of Celiacs
Thanks!! Just as a funny side note...the very first time I met my husband he shared with me what he did...network manager at a university. I nicely replied with, "I hate computers!" After we started dating, he told me that, although stunned by my candor, I presented him with a challenge in a cute way. We've been married six years. He's now the...