BRUMI1968

i like two things especially. One is I like messing with my rice:

basmati or jasmine rice cooked

lemon squeezed on it

leeks or shallots sauteed until soft stirred in

walnuts or almonds for some crunch

chopped cilantro

salt and pepper

maybe a tiny bit of chopped mint (not too much)

olive oil or ghee or butter

the rice does not have to be hot, either - it is equally good cool. I think I started experimenting with lemon/mint rice.

the other thing I really like to do, is have a huge salad with a protein source right on top of it, for me, salmon, for my hubbie chicken or steak. I put asparagus spears lightly wok'd in there, roasted carrots if those are in season and look good, etc. The whole plate is one huge salad, with the protein on top. Yum.

I ate a cliff nectar the other day and it didn't even dent my hunger...but it was tasty!

I read a really good book by Anne Marie Colbin called "food and healing" where she postulated that eating the reproductive biproducts of other animals (dairy/eggs) adversely affected human women in ways dealing with their reproductive cycles. I don't know about it for sure, but when I quit dairy, my periods got much lighter and easier, and my cramping became completely manageable. Just an idea.

anything I can sub for potato starch?

I don't get PMS too badly, except for a higher propensity for crying, and more bloating than usual - intestinally speaking. But I've only been gluten-free for two weeks; I don't know if it will get better.

I would definitely use all cotton tampons (my periods are really too light to use tampons at all and I use all natural pads), not because of gluten, but because those things have a lot of lint, and I'd hate to think of all that nasty lint hanging around being from chemicals and whanot. I tend to stick to what God/Nature made.

Good luck.

I like the cashew cookie ones, but the apple pie and the pecan pie are my favorites. Has anyone tried the new Cinnamon Roll ones?

Yes, good taste, different texture. Not sure I can get over the texture.

I like the cashew cookie ones, but the apple pie and the pecan pie are my favorites. Has anyone tried the new Cinnamon Roll ones?

Yes, good taste, different texture. Not sure I can get over the texture.

You should definitely get a CBC done (complete blood count), especially if you also have bruising or bleeding gums or any other signs of thinned blood. You could have ITP, which is when your platelets are killed by your immune system (mostly the spleen). I have had that for some years, though go untreated. Hopefully it is not that, but you would be smart to rule it out since it is serious and eventually you can bleed into your brain or spinal cord and die.

I only use glass containers to store food in, since plastic is most probably toxic to humans (give them a few more years - they're already admitting it with the teflon). Plus, they don't stain, don't harbor taste/odors, and clean in the dishwasher to a pristine state.

I posted the gluten-free list from McNeil, you can find it here--post #6

Open Original Shared Link

Note the the Rapid Release is *not* gluten-free.

Yeah, it's the rapid release I just took a few days ago. Thanks for the link.

I'm waiting a call from the nutritionist myself; but then my doctor's PA told me that she had sent someone else to see this same person, and didn't learn anything she hadn't learned on the Internet.

Thus, if my insurance ins't going to cover it, I'm going to research it out myself. My questions, though, if I do go:

1. where is hidden gluten

2. are we talking molecular levels - do I need my own toaster/cutting board/etc.

3. if I'm not one of those folks who instantly reacts to gluten, how can I be sure I'm safe

4. do I need a biopsy?

5. how do I get myself a bone density scan, and how often do they need to be checked up (though this might be more for your regular doc)

6. how can I be sure I'm getting enough fiber?

7. if I'm unable to absorb nutrients through my intestines right now, how can I get some vitamins/minerals into my system?

8. are there ways s/he knows of to help convince my family to get tested (Mom and sister)

9. what are support groups in my area

10. are there any studies that need my info right now?

11. are there any physicians s/he knows of who are experts in celiac that I might consider seeing?

i don't know...those are just some ideas. I think the hidden gluten, especially in non-food items, is important. Every time I use my shampoo and stuff I wonder what is in it, and since I don't read industrial gobbledy-goop, I can't tell myself.

Good luck.

I've always had cold hands and feet too, but wonder if it gets worse when I'm anemic. I'm anemic right now pretty badly, and I'm all over cold, even though it might be 70 outside. Okay, we're not really having spring this year, so it is not 70 outside, it's 60. But still....

maybe anemia?

Because I also have ITP (a potential bleeding disorder), Tylenol is the only pain killer I am allowed to have (it doesn't thin the blood). However, I've read Tylenol contains gluten.

Any ideas?

Also, can I have some acetomenephin (sp?) made by the phramacy that is gluten free?

White Stripes

Beth Orton

Niko Case

Johnny Cash

Black Sabbath

Nick Drake

new Neil Young

I have been going to an acupunctureist for about 4 months now and have seen amazing results. She has all but cured my allergies (usually by this time of year I would be a hay fever mess). When i get an accidental glutening she is able to get rid of the d and minimalize my reaction. I started seeing her originally because when I got glutened the reactions were getting severly worse. I would end up in the hospital within hours with severe dehydration, etc. Now even if I get a cold or the flu, she is able to minimize how sick I have gotten. She is working on building my immune system up etc. I see her once a week, it cost $30 but it is worth it. She also uses herbs. She is a caucasion american women (in other words no language barrier), who has a background in nutrition. She studied in China.

If any one in the Seattle area is interested in trying this, send me a message I will get you her contact info.

I'm in Bellingham and would love to get the info. I see an Ayurvedic Doctor....actually, I'm of to the doc right now to get a B12, so will post later. But if you can send me this woman's info, that would be great. Thanks.

Here's a breathing exercise that is supposed to tone the thyroid. It takes a while to start making a difference, but it is supposed to help. I was given this exercise by my Ayurvedic doc from India who has done so much to cure me of other ailments. (I've never done this one long enough to see if it works, and I'm only subclinical hypothyroid.)

Put your chin to your chest

Inhale through your nose

Stretch your neck all the way back so you're facing the sky

Exhale through your mouth

Repeat several times.

Repeat twice or so a day.

I don't know if it will help, but it is an idea from a different medical tradition, one thousands of years old.

Good luck!

Oh yeah, also not a teen, but definitely a NEAR vegan (I eat salmon and eggs, but not salmon eggs). There's lots to eat, and I don't eat soy, potato, nightshades, etc. Good thing I like my veggies, eh?

And to the tired. I was diagnosed a week ago after asking for the test due to fatigue mostly, and itching. I have felt MORE tired and MORE brain-foggy since then. I've had 1 b12 shot and am going in tomorrow and then once a week for more...they should help. Are you taking Vitamin B12, either shots or sublingual pills (dissolve under your tongue)? That should help.

Good luck!

I like "Food For Life" brand Raisin pecan, but it is a sweet bread; also very dense, can give you heartburn if you're not careful. I am glad to hear the recommendations for regular bread - I miss having some toast to soak up my poached eggs!

www.foodforlife.com

I just heard back from ShiKai, a healthy brand, and they say all but their oatmeal shower gels/soaps are gluten free.

Does anyone know about hair dye? I have been "washing the gray right out of my hair" for a few years...can I continue?

I emailed ShiKai the other day to ask about gluten in their products. I just got a reply saying that all their products are gluten free except for their shower gels containing oatmeal.

Just thought I'd pass it on. I like their fragrance sandalwood/amber.

Is this magnesum going to be absorbed through the intestines, or do I need to be searching for a sublingual version?

-Sherri

I just got dx'd and I've had a bizarre off and on sore throat for a few years. It literally comes on and goes away within an hour. Weird. Obviously better than having it all the time...but it's never been explained. Maybe it's aliens.

Well, I thought that I had already replied to this, but I can't find my post

Anyways, I recently found out some new info on my ethnic origin, so I'll just post everything again, with the new info.

Dad's side: French-Canadian, Irish, Jewish, Native American (just a little of the last 2).

My dad's family has a long history of autoimmune diseases. His dad is the only one in a family of 8 to not have an autoimmune disease. And I'm sure if they were to be tested for celiac, most of them would test positive.

Mom's side:Italian, German, and Native American. There also might be some Irish, but right now, no one knows for sure.

My grandpa has had colon cancer, and his mom had the "celiac stomach". She also suffered from severe osteoperosis (her head looked like it was coming out of her chest).

I am tall, about 5'8 3/4". I have fair skin (I don't tan; I burn and freckle), and I have blond hair and light eyes.

What is "celiac stomach"?

Sarah's platelet count takes a dive whenever she gets an infection, like strep. We had her on Predinsone for a short while but it gave her gastritis. We quickly discontinued it for fear she might develop a GI bleed. It really had a beneficial effect on her platelet count, however, and seemed to be the beginning of the upward trend.

Have you read of any connection between Celiac disease and ITP?

I have developed mild scoliosis. Is there evidence that there is a connection between Celiac disease and scoliosis? I also have kaiphosis but that runs on my mother's side of the family in both males and females. I am 54 and was diagnosed with Celiac disease about 2 1/2 years ago, the "silent", subclincial form.

Steve

I think I read that Celiac contributes to all other autoimmune diseases - if in no other way than in making the body suceptible. ITP is not genetic - they don't know what causes it. My doc thought maybe vaccinations or being on antibiotics a lot as a kid (I had lots of bladder infections).

The reason prednison works is because it shuts down your immune system, so it can't kill you. The problem is, then you can catch all sorts of things. In the case of prednisone, the cure is really quite harmful. When I went off it, I had to have an adrenal gland check to be sure it had started working again; while on it, your adrenal glands shut down, which is why you get stone cold tired at 3pm or so.

It was through diet change that I got over my ITP, or at least that it is in remission. At least so it would seem, since that is all I changed. I guess I also got out of a stressful job and lived for a year w/o working near the sea in Port Townsend, WA...that was great too.

I wish you all the luck with Sarah. I didn't go for the removal of the spleen option, which they pushed on me quite a bit, but it works for many. I just didn't feel it was right to be twenty-something and have folks taking bits of me out for the trash bin. Plus, you become more susceptible to pneumonia and other ickies that are gel-coated. I don't think I ran into any natural ideas for ITP other than low protein diet and avoidance of allergin foods. Oh yeah, vitamin C in large doses seemed to work for some folks I recall.

Anyway, best of luck.

Great information! Thanks. I know I'm lacking all the other vitamins/minerals, so I'll start finding some good magneseum and trying that. I'm already better today, but can still feel the process is pretty slow moving through the system. I also appreicate you spelling out hard/impacted stool vs. constipation - because that is definitely more my problem - not that I can't go for long periods of time, but that it is extremely difficult to get out. Thanks, again.