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lovegrov

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Latest Celiac Disease News & Research:

Everything posted by lovegrov

  1. lovegrov
    I did not "go postal" or anything of the kind. I pointed out, because you didn't on this thread, that this is not a proven treatment. The researchers at Stanford aren't even sure it will work. But first you posted a link to the lab and then to the Stanford release, making it look like we've got a cure here. Your next post made people think that you've been...
  2. lovegrov
    Of course we're skeptical. Some people having raging celiac with no symptoms at all and some people who used to have symptoms stop having them. We might listen if you used the pressure point method ONLY for months and then came back to tell us blood tests and a biopsy were negative. I was probably just days from dying of undiagnosed celiac. Eating gluten...
  3. lovegrov
    Never heard of cane vinegar but it should come from cane. Do you have a specific problem with white (distilled) vinegar? If not, you can have it. Almost no distilled vinegarr is made from wheat and even when it is, the distillation renders it harmless. Malt vinegar is really the only one we have to watch out for. richard
  4. lovegrov

    ARCHIVED Dapsone

    lovegrov replied to swimmer875's topic in Dermatitis Herpetiformis

    If you're taking dapsone, your doctor should be doing regular blood tests and liver panel. I never had a liver problem but my white cell count was way off at first. If you haven't gone gluten-free you need to. richard
  5. lovegrov
    Bailey's is doing the CYA dance. It's gluten-free. I know a number of people who drink it. Mike's is made with barley malt -- I wouldn't touch it. richard
  6. lovegrov
    This is all I need to see. "We never recommend using enzymes to replace a gluten free diet." And from the company's web site. "These statements have not been evaluated by the Food & Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease." I've been gluten-free for almost four years and went from very...
  7. lovegrov
    Every microwave popcorn I've checked on has been gluten-free, although I think one of the caramel pour-overs isn't. Pop Secret, Jolly Time, Act II, Newman's, Kroger, and Orville -- all gluten-free. richard
  8. lovegrov
    "Yes we know its not proven... I think that was said but the question was... if it was proven would you eat gluten regularly and take the "pill" or would you mostly avoid it and use it occasionally." Ah, but if you go to the first link celiachap posted, you might think these folks have a proven product for celiac. They do not. I should have been clearer...
  9. lovegrov
    I can understand being nervous but it really is that simple -- if it doesn't say wheat, rye or barley in the ingredients, it's gluten-free even if it does have MFS, natural flavor or whatever. richard.
  10. lovegrov
    Folks, this is NOT a proven treatment for celiac. As the Stanford scientists say, a whole lot more study has to be done. They have no idea if this works inside the human body or even if it did work, how much you would have to take. Do NOT buy this stuff thinking you can take it and suddenly eat all the gluten you want. richard
  11. lovegrov
    Have you had antibody tests or a biopsy lately? That's essential. Feeling better is proof of nothing. richard
  12. lovegrov
    Disney is one of the easiest places to eat gluten-free. Call their dining number for help. richard
  13. lovegrov

    ARCHIVED Npr Story

    lovegrov replied to lovegrov's topic in Publications & Publicity

    The headline says allergy and they mention allergy, but in the body of the story they also explain the difference between allergy and celiac. I was fine with it. richard
  14. lovegrov

    ARCHIVED Npr Story

    lovegrov posted a topic in Publications & Publicity

    NPR has a story this morning about celiac and the new ingredient guidelines. Pretty good overall. You can find it at the bottom of this site. If it doesn't work for some reason go to npr.org and then click on Morning Edition. Open Original Shared Link richard
  15. lovegrov
    Biopsy diagnosis is still the gold standard and it can also be used to check for any other possible problems. But most doctors don't think a followup biopsy is necessary unless you continue to have problems. richard
  16. lovegrov
    I would absolutely follow the advice of my CPA or tax person. The fact is that this is a very gray area that's never been completely ruled on. And even if you are taking it as a medical deducation, you MUST be spending more than 7.5 percent of your gross on medical before it counts at all. It can't just come straight off your taxes. The possible problem...
  17. lovegrov
    If Season All is gluten-free you should be all right with that dressing. Virtually all mustards are gluten-free and many BBQ sauces are OK, but not all. I would not eat them, particularly the BBQ sauces, without checking carefully. richard
  18. lovegrov
    Leave the cooler in the car and go out to eat lunch. richard
  19. lovegrov
    Unless there's some sort of contamination problem, peanut butter simply doesn't have gluten. richard
  20. lovegrov
    Raw chicken really is not something we need to fret a lot about. I realize that a grocer repackaging chicken could make an error, but ANY raw meat that has wheat in broth or a solution must by law list it. Every broth I've seen in poultry has basically been water, salt, maybe some spices, and sometimes chicken broth. But in nearly four years I have yet to...
  21. lovegrov

    ARCHIVED Wendy's

    lovegrov replied to BamBam's topic in Gluten-Free Restaurants

    The Mandarin chciken salad is not gluten-free. At leass three ingredients, including the diced chicken, have wheat. In fact, the Wendy's gluten-free menu, which tells you you can eat certain salads without some of the ingredients, doesn't mention this one at all. NO chicken at Wendy's is gluten-free. richard
  22. lovegrov
    Not traumatic at all because I remember nothing. The doctor should give you a sedative that also an amnesiac. richard
  23. lovegrov
    I've never found regular ketchup or mayo with gluten. I THINK there is a flavored ketchup or mayo with gluten. richard
  24. lovegrov
    Some of these lists are now, quite simply, outdated. Even some of Scott's stuff. This is not meant as a jab at Scott, who I think does a good job. One example -- some of the info about maltodextrin comes from a 1997 publication. The reality about maltodextrin in FOOD in the U.S. now is that if it's made from wheat it must clearly say so. No guessing any more...
  25. lovegrov
    If the anesthesia was administered through a gas or IV, gluten would not be a problem, ever. Gases and IV liquids do not have gluten. This is according to the same guy who set up glutenfreedrugs.com and other medical people I've talked to. richard
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