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rinne

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Everything posted by rinne

  1. rinne
    I'll iron the pillowcases. It does feel odd without Andrea here.
  2. rinne
    Rachel, maybe it's time for a sauna, sorry you are so cold. Laura, that is a beautiful passage and so deeply true. Thank you for posting it.
  3. rinne
    Sure, for a minute but then remember you are in the company of Lunatic Laughing Lyme Ladies and you are going to be just fine. We are fearless, capable of exploring voodoo magic, confronting idiot doctors, investigating and treating ourselves, and very importantly we can laugh at the Lyme Monster. This is not bragging. We are surrounded by friends...
  4. rinne
    Miamia, I am glad that you will pursue this. I'm home from my sauna and I think it is really making a difference. Today my eyes didn't burn at all and they have the past four saunas. We are definitely getting one. Susan, if your work place doesn't appreciate you then it will be their loss, please trust that. As to all their obsessiveness with...
  5. rinne
    Miamia, my idea of wild these days is a cup of coffee. I haven't had any maple syrup for weeks, I stand there and I think Happy Bugs mmmm Healthy Me, so far it seems to work. Donna, that sounds like a nice day. Enjoy. You inspired me to get out my quilt project with the beading on it, I had tucked it away for the summer and I am delighted to find...
  6. rinne
    Miamia, I am so glad you understand. And yes, you are competely right to want to move forward now and given that you have a relationship with this doctor and he is receptive, that is IMPORTANT, then you are wise to not hold any anger. I feel the most important lesson I am learning from this is how vital it is for me to take charge and read my own...
  7. rinne
    I figured we were basically saying the same thing. It is what makes me curious about the salt/c because it is also killing the spirochetes, I had been taking 9 grams of salt per day and 5 grams of Vitamin C for three weeks prior to the Igenex test. My friend suggested calling Nick Harris at Igenex and asking him and I think I will be doing that soon...
  8. rinne
    Miamia, I am sorry if my last post seemed harsh. I am concerned for you, when I look at your photo I see a beautiful young woman who is very ill and it breaks my heart to think that you have been ill for so very long. Yes, why antibiotics? Hoffman said many doctors treat with a short course of antibiotics if the test is Negative and then...
  9. rinne
    Hi Laura, Hoffman told me that there is a particular antibiotic that doesn't treat the Lyme but unmasks it, I cannot remember the name. He knows I am not wanting antibiotics so he suggested staying on the Samento and then being retested. I think the protocol is to do the treatment and then stop it for two weeks before the test but I am not sure, if...
  10. rinne
    Miamia, I am wondering why your doctor did not order these tests for you when he first saw the results? Was that in May? That would be about six months. Is he ordering these tests because you brought this up? If that is what has happened, why is it that those results sat there doing nothing until Rachel and I started posting our results and YOU investigated...
  11. rinne
    Thanks for bookmarking that link Andrea, even as I posted it I thought, "now this would be a good link for Andrea to save". Glad to see you were way ahead of me. I'll be thinking of you and your Dad.
  12. rinne
    Open Original Shared Link I had mono when I was seventeen. I know I brought this up recently.
  13. rinne
    Andrea, I am thinking you must be very organized. When do you leave?
  14. rinne
    Miamia, what Rachel said and said so well. I think the description of the bands and the elephant is brilliant, sadly though it makes it very clear that your doctor, like mine, does not know how to read this test. There is interesting information in that article about Epstein Barr often being the bacteria that the Lyme is hiding behind and that...
  15. rinne
    This article, actually two, is long but well worth reading to try and understand the Western Blot test for Lyme. Open Original Shared Link Miamia, I thought of you when I read this and now I can't remember what page your results are on. I had an email this morning from my friend with Lyme and she says that she is positive I am positive...
  16. rinne
    I love heinous too. So great that Morgan is home, hi Morgan. Pumpkin blondies sound great. Stupid old people. Oops I am getting there myself. Rachel, people just don't get it, best to avoid a "sick war". I feel like part of Hoffman's doubt comes from the fact that he "feels" like I am healthy, I have another friend...
  17. rinne
    That made me laugh out loud, thanks Rachel. And Miamia, for sure you should tell them that, "people want to know".
  18. rinne
    Thank you Miamia, I am glad that your appointment went well and hopefully further testing will clarify this. Hoffman has treated eight other Lyme patients so no he is not a Lyme Literate doctor although he told me it was an interest of his, that he attended Lyme conferences and hung out with Lyme doctors. I think he is just big time into testing...
  19. rinne
    Julie, thank you, but you made me cry..... well just a few tears Big time. Rachel, I sympathize about the bills. I finally admitted to my sweetie that I just couldn't do them, it's like a mental block, every so often I can get organized but it doesn't last. I'm glad you have your mom their to help you.
  20. rinne
    Thank you Patti and Andrea, it helps to know that others get it. I wanted the Igenex test and I spent a lot of money to get it but I also learned something along the way and although a clear postive would have made me happier I can live with the one I have. I know what has happened to my health since that rash, I know I have forty some symptoms. My...
  21. rinne
    I should hope not. I had a long chat with my Lyme friend today about my Hoffman experience. It threw me for a loop and I am not sure yet that I know how to talk about it but I want to try. Before I do though, when I finished talking to her she said, "welcome to the world of Lyme patients". I thought that Hoffman as an Integrative Doctor using...
  22. rinne
    I think this is very good grandmotherly advice. So nice to hear you getting you. I have a virus in my computer and don't even know if this will work, if it does I will post more, if not have a Happy Thanksgiving.
  23. rinne
    I'm so glad to know you are home Evie, rest well.
  24. rinne
    Happy girl, I checked out that site but it didn't strike me that anyone was Lyme Literate although they did talk about treating Lyme. I'm getting foggy but will look a little more, remind me if I forget. Nice to hear from you Susan. Andrea, I hope you and your family have a wonderful week-end with your Dad.
  25. rinne
    Hello Evie, we have missed you.
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