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Latest Celiac Disease News & Research:
Everything posted by Mamato2boys
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ARCHIVED We Can't Seem To Get Color/consistency Together !
Mamato2boys replied to 2boysmama's topic in Parents, Friends and Loved Ones of Celiacs
I'm so used to closely scrutinizing what comes out of the kid that I've nominated myself "official poop patrol" lol. I always thought the yellow poops were a bad sign ? -
ARCHIVED Amoxicillin
Mamato2boys posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Poor Aiden has his first ear infection at the tender age of 4.5 months ! He was prescribed amoxicillin. I mentioned his dairy/gluten issues, and the pedi said he's never heard of amoxicillin causing a problem with either issue. Does anybody know anything as far as whether it will be ok for him given his issues ? I don't see that he has much choice -... -
ARCHIVED Nursing Moms Diet
Mamato2boys replied to Jellieh's topic in Parents, Friends and Loved Ones of Celiacs
Hi there - I have a four month old son that I too am breastfeeding. I had read on here (and I believe on another website) that glutens do pass through breastmilk. I know that with my son glutens turn his poop orange, mucusy, watery, and he usually explodes out of his diaper. Like the pp said, dairy can be a major irritant for bf babies (I know it was... -
ARCHIVED Do I Understand This Correctly ?
Mamato2boys replied to Mamato2boys's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My oldest son, who's 3, carries 2 gluten sensitive genes and no celiac genes. By Enterolab's definition, that makes him more sensitive to gluten than someone who only carries one gene. He had "mild" malabsorption (he was just under 3 years old when I had him tested). So obviously gluten was affecting his intestines. Yet genetically he's not celiac. His symptoms... -
ARCHIVED Do I Understand This Correctly ?
Mamato2boys replied to Mamato2boys's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I found this from Dr. Fine's website: What is the difference between celiac sprue and gluten sensitivity? Gluten sensitivity implies that a person's immune system is intolerant of gluten in the diet and is forming antibodies or displaying some other evidence of an inflammatory reaction. When these reactions cause small intestinal damage visible on... -
ARCHIVED Do I Understand This Correctly ?
Mamato2boys replied to Mamato2boys's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yup, that's how I was looking at it - that they're all related, but celiac being the "worst" because it implies intestinal damage, etc. I definitely agree that "only" being sensitive does NOT mean you can go gluten light. I know that all four of us most definitely react to glutens even though we're "only" GS. I was just curious because Enterolab kind... -
ARCHIVED Do I Understand This Correctly ?
Mamato2boys replied to Mamato2boys's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, according to EnteroLab my son has genes for sensitivity, but no genes for celiac disease. I guess that's where I'm confused ? I took that to mean that while he shows a gene for gluten sensitivity and does have some malabsorption, he *probably* doesn't have celiac disease and we could avoid him getting it if we change his diet (which we have). I... -
ARCHIVED If You Shouldn't Be Taking Antibiotics . . .
Mamato2boys replied to Helena's topic in Coping with Celiac Disease
Untreated strep can lead to rheumatic fever, which can do damage to the heart. She needs to see the doctor. This is one infection she doesn't want to mess around with. -
ARCHIVED How To Teach My Family(and Myself) What I Can Eat
Mamato2boys replied to Bronwen's topic in Parents, Friends and Loved Ones of Celiacs
That's a tall order, but not impossible. I myself am avoiding dairy, soy, glutens, and eggs. The simplest thing to do at first is to eat just basic, whole foods. Meats, veggies, fruits. Getting into the habit of reading labels (and decoding them) can be a little overwhelming at first. -
ARCHIVED Do I Understand This Correctly ?
Mamato2boys posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm still trying to wrap my little brain around this concept, lol. I understand that celiac disease is an autoimmune disorder. Does "only" having gluten sensitivity (as per Enterolab testing) fall under the autoimmune disorder list ? I'm under the impression that someone who is GS that continues to eat gluten could do enough damage that they could then... -
I've had canker sores before...I thought those always hurt ?? This wasn't painful at all.
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No, that's the weird thing - it felt plenty moist. The sensation has since gone away - I still have no clue what that was all about. Before it went away though, the underside of my tongue got sore - it kind of felt like the frenulum (the little string that attaches your tongue) felt swollen. I also got kind of a pimple between my right cheek and gum...
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I have NO idea what this is, as I've never experienced it before - but it's VERY annoying !! Last night's dinner was prepared by the other family member that is gluten sensitive. He's not *real* knowledgeable (ex: he thought spelt was a safe grain), but he does pretty darn well. I think I inadvertently got glutened though, despite both of us being careful...
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The list of improvements that DH and I have been noticing seems to be growing longer and longer ! I'm just curious to find out what kind of things you've noticed since going gluten-free. Here's mine: ~ no more bloating - even my hands & feet are slimmer ! ~ no more gas (well, very rarely anyway) ~ brain fog has lifted ~ energy has increased...
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ARCHIVED Soy Milk
Mamato2boys replied to BamBam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My son can't drink soy milk either - it gives him horrible, smelly diarrhea, and distended belly. From what I understand there is about a 30% cross-reaction rate between cow's milk and soy - my son is allergic to both. -
Oh yes ! And shoes to go with the new outfits too !!
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ARCHIVED Family Making Fun Of Us !
Mamato2boys replied to Mamato2boys's topic in Coping with Celiac Disease
You know, I've laughed out loud several times at some of the responses I've gotten here. I think my coworkers officially think I'm nuts now. It's great !! I honestly can say that I've never been to a website where I felt so understood and so welcomed - you guys are the BEST ! I also found it funny (and surprising) that so many of you are also into... -
ARCHIVED Family Making Fun Of Us !
Mamato2boys replied to Mamato2boys's topic in Coping with Celiac Disease
Yup, I like that one too. -
ARCHIVED Family Making Fun Of Us !
Mamato2boys replied to Mamato2boys's topic in Coping with Celiac Disease
I like both of those. I know that you of all people know exactly what I'm talking about. The funny thing is, the one that told us yesterday that we were weird, fessed up in the next breath to "trying" the diet and said she "didn't feel any different" so she figures she isn't "allergic" to glutens. -
ARCHIVED Family Making Fun Of Us !
Mamato2boys replied to Mamato2boys's topic in Coping with Celiac Disease
That's wonderful about the homeschooling. I don't think I have the patience for that one - I definitely admire people that do, though. LOL ewwwww !!! I think my coworkers would probably protest to that one. -
ARCHIVED Family Making Fun Of Us !
Mamato2boys replied to Mamato2boys's topic in Coping with Celiac Disease
LOL Probably too subtle for them. I'm breastfeeding, attachment parenting, babywearing....so they'd probably think it's just par for the course ! Yeesh. That's awful. My SILs think they're being funny and I really don't get the sense that they're TRYING to be hurtful, but they are. My husband thought I was being extreme... -
ARCHIVED Family Making Fun Of Us !
Mamato2boys replied to Mamato2boys's topic in Coping with Celiac Disease
See, I just don't get that kind of attitude. I would think that people would be more like "hey - if you feel better, then more power to ya !" Maybe it's fear ? Maybe people are afraid of being "converted" - we're a bunch of brainwashers, ya know. Any suggestions on a response to the "hippie" or "weird" comments ? I like being sarcastic and want to... -
I just LOVE to shop at Kohl's, so I'm not seriously complaining about "having" to buy more clothes.
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ARCHIVED Family Making Fun Of Us !
Mamato2boys replied to Mamato2boys's topic in Coping with Celiac Disease
Well, THAT'S friendly ! So, are we all to blame you for our troubles, then ?? -
I'm not sure I can attribute it to one specific event, really. I "only" have gluten sensitivity, though, so I'm not sure if that matters to your question. I do remember that at about 15 I started having hypoglycemic episodes. I think it was overall stress from my home life.