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Gentleheart

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Latest Celiac Disease News & Research:

Everything posted by Gentleheart

  1. Gentleheart
    I had the opposite experience. I have only gone to our one-day state celiac convention once. But I paid $40 which was supposed to include a meal, got up at 4 AM and traveled 200 miles just to get there. Naive me assumed that of all places it would surely be safe to eat there, so I didn't bring much of my own food. Big mistake. They covered gluten...
  2. Gentleheart
    I see so much evidence of undiagnosed celiac and gluten intolerance in my ancestry that I would like to try to research it and put it down in a family tree form. I'm not sure what it will accomplish, but I admit to being very curious about what it will look like and what I will find. Maybe researching it in this way will make it a little easier for me and...
  3. Gentleheart
    Thanks! I think I will just leave the yeast out. As long as it won't effect the flavor too much, it's probably safer. It would be a good source of B vitamins, however. Where do you buy your raw cashews? My store only has them in bulk bins, which I definitely don't trust not to be cross contaminated. Since I've become so sensitive, I am probably going...
  4. Gentleheart
    Jars of pimentos have citric acid from corn in them. Any substitute for pimentos? Are they in these recipes mainly for the color? Could I maybe use cooked red bell peppers in that case? Also...can some of you who are allergic to baker's yeast, use nutritional yeast without trouble? I officially test allergic to the baker's kind, but not the other....
  5. Gentleheart
    I'm eating way too much rice. I can't have yeast, soy, almonds, dairy, legumes, corn or eggs. So breadmaking is a big challenge. I've been sticking to the plain brown rice-tapioca recipes. It's not especially good. I can't use any of the prepackaged breads except EnerG's Yeast Free Brown Rice one. No offense, but it's REALLY bad in my opinion. Can most...
  6. Gentleheart
    I tried to read most of the former posts on the subject. It didn't sound like all celiacs were at risk taking it. It just sounded like it was a problem for those with neurological issues because it acted as a brain excitotoxin. I brought it up again because I was just wondering if someone knew a little more about the specifics of it and whether a person...
  7. Gentleheart
    I have been gluten free for 3 months. Unfortunately I feel no better, actually even worse. My symptoms are all neurological. At the same time I have been taking some high quality gluten free supplements. Among them is L-glutamine powder. Today I was made aware that in spite of its use in leaky gut, l-glutamine might be a BIG problem for celiacs with neurological...
  8. Gentleheart
    That's what I was actually wondering about. I definitely have good insurance now and it would cover any procedures for diagnosing, I'm sure. But what I wanted to know was if insurance rates would likely go up with "celiac" on the record and if I would end up nearly as uninsurable as my husband if we ever were dropped or just wanted to change companies for...
  9. Gentleheart
    Will an official CELIAC diagnosis effect one's insurance in any way? My husband is a cancer survivor and we are slaves to our current insurance (and it's premiums) whether we like it or not as a result. If that were the case with celiac, I would think it would be MUCH better to stay well under the radar and not get that official diagnosis on paper anyway...
  10. Gentleheart
    Thanks!
  11. Gentleheart
    All I want is to be alone most of the time. I always chalked it up to depression or just a weird family trait. Several of my other family members are that way too. I don't WANT to be antisocial. It's just how I feel. On the outside looking in. It will be really interesting if that ends up being because of celiac.
  12. Gentleheart
    I'm in Iowa. Any Iowans out there??
  13. Gentleheart
    Thanks for all the input! I have already begun my clean diet. It makes sense to just clear everything out first, rest awhile and then start adding back those things you don't think you can live without to see how each one flies. Otherwise the healing process can take a lot longer it looks like to me. I'm an author and I've been trying to write a...
  14. Gentleheart
    Would it ruin it to just add brown rice? Anybody out there especially sensitive to that?
  15. Gentleheart
    I have felt odd all my life. As an infant I was weaned from the breast at 6 days old and threw up every single bottle feeding thereafter. No one investigated it in those days. They just fed me more. As an adolescent I was a model student, super nice, a perfectionist, anxious, on guard and worried all the time. Bewildered would be another good word. ...
  16. Gentleheart
    If I have been gluten free for 3 mos and staying away from other allergens I KNOW I'm allergic to, but still not feeling well, would it be an idea to just whittle out a diet for awhile that is REALLY strict and clean just to see if that works? I'm new, so I realize this is probably not a new idea for all of you. But I wonder if maybe I am trying to eat...
  17. Gentleheart
    Thank you so much for that encouragement! Being completely out would probably be the only way I could do it. Your experience doesn't sound so threatening. Does anyone have an opinion about whether it would be worth it now to do a scope after 3 mos gluten free? I haven't felt any relief at all in the 3 mos, so maybe I'm still getting gluten somewhere...
  18. Gentleheart
    I'm sure there are some great ones out there. But how do you find a really knowledgeable celiac doctor who is up on all the latest research, within your own state or in a certain mile radius? I have so many physical complications probably due to my newly stool-diagnosed celiac, that I really think I need some serious help. It's obvious to me after spending...
  19. Gentleheart
    I've wondered about that too. I'm very allergic to corn. I was concerned when I heard the corn connection with xanthan gum, but have used it in a few recipes. I'm still new enough at this that I can't exactly tell if it bothers me or not. I don't get diarrhea or anything with my celiac. I get big time anxiety. It does kind of makes my mouth feel funny...
  20. Gentleheart
    It's really hard for me to get this personal, but here goes. How bad is the scoping process? Since I'm a longtime panic disorder person, I'm irrationally scared spitless of most everything. It's a real handicap. Way more than the average person. This procedure sounds just awful to me. I honestly don't know if I could do it. I've never done a colonoscopy...
  21. Gentleheart
    Hi Ursula, May I interject a question because of what you said? If a person has a celiac gene And a gluten intolerant gene and Enterolab also says they have active antibodies and mild malabsorption, is it just assumed that they have actual celiac? At that point is a biopsy the only way to know or do you pretty much know from that kind of stool result...
  22. Gentleheart
    Hi Judy, No, I haven't had any scopes done yet. I just got my stool test back. It was pretty definite so I probably do have celiac. As I said in my opening post, I tested positive for everything tested, including dairy and genetically have both a celiac gene and a gluten intolerant gene. I really don't want to go any further with tests, but will have...
  23. Gentleheart
    Thanks for the encouragement, Evie! I admit that talking to all of you is very comforting. I actually had gluten and dairy allergy symptoms as a baby, adolescent and teenager. The symptoms changed some with each decade, but were always there, nevertheless. But because people didn't know much about it in those "ancient" days , I was never diagnosed. ...
  24. Gentleheart
    This might be a long shot, but does anybody know of a doctor anywhere in Iowa who accepts the Enterolab stool test for gluten intolerance/celiac without insisting on more conventional methods?
  25. Gentleheart
    I'm actually sailing with Royal Caribbean in September to Alaska too. Could you possibly share that list of foods to bring??? I just got diagnosed and was worried the cruise would be ruined for me. Thanks!
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