Gentleheart
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Latest Celiac Disease News & Research:
Everything posted by Gentleheart
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ARCHIVED Huhot Mongolian Grill- Would You/have You?
Gentleheart replied to maddycat's topic in Gluten-Free Restaurants
Well, hey. If they would honestly take my little uncontaminated bowl of fresh vegetables and raw meat, put some honestly uncontaminated gluten free sauce with it and cook it in a separate wok in the back that has never been used to cook gluten before, then that would be WONDERFUL!! But it's also a whole lot of trouble. It's a healthy and delicious way... -
ARCHIVED Fingerprints And Celiac Disease/gluten Intolerance
Gentleheart replied to Lovelycherry's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Blood tests have never shown me deficient in any nutrient, even B12. And yet at about the same time I was suspected of having gluten issues, my fingernails began to create vertical ridges which worsened and remain to this day. I also have no moons except really small ones on my thumbs. I think I used to have them on the other fingers, but honestly can... -
ARCHIVED I Don't Think I'm Crazy, But I'm Open To The Possibility.
Gentleheart replied to samhill's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Poor thing. I'm sorry you are being treated so badly by your doctors. Shame on them for making you doubt your own sanity. Many of us know exactly how you feel. One day when this disease is fully understood, people who should have been helping us will hopefully look back and realize how unkind they have been. Many celiacs have been accused of being... -
ARCHIVED Huhot Mongolian Grill- Would You/have You?
Gentleheart replied to maddycat's topic in Gluten-Free Restaurants
I ate frequently at a HuHot before my gluten free days. It was delicious and I really miss it. From what I remember, I don't see any way a celiac person could possibly eat there unless they actually had an entirely dedicated grill just for gluten free, which is unlikely. Also, being a buffet, the sauces are very likely cross contaminated by other customers... -
ARCHIVED I Feel Like Im Running Out Of Options!
Gentleheart replied to wilem008's topic in Coping with Celiac Disease
I'm sure there are similar doctors in Australia. But I'm pretty impressed with Dr. Rodney Ford who runs a famous pediatric clinic in New Zealand. Too far away? I've read his books and it sounds like he treats adults too. They sell his books on this site. Just a thought. -
ARCHIVED For Those Not So Sensitive Celiacs
Gentleheart replied to Roda's topic in Coping with Celiac Disease
It is a conclusion I personally came to after reading many gluten books, articles and research papers on the subject. I can't tell you exactly which ones. I read voraciously. But I have enjoyed studying nutrition for several decades and it has always been assumed by most scientists that a powerful immune system was generally an asset and the ultimate key... -
ARCHIVED Need Dish & Hand Soap Urgently!
Gentleheart replied to raisin's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm afraid there is still some misunderstanding. There are hundreds of wonderful handmade soap companies, like even perhaps the Sungold you mentioned here, who make all natural unscented bars of soap. But if I am understanding your situation correctly, the issue with you isn't just lack of scent or the naturalness of a product. You have said you have a... -
ARCHIVED For Those Not So Sensitive Celiacs
Gentleheart replied to Roda's topic in Coping with Celiac Disease
Just a thought. I have concluded after much reading that a person's sensitivity to gluten could be directly related to the strength of his or her individual immune system. And strong immune systems are usually considered the ultimate goal for good health. So one would always hope they didn't have a weak one. I have been told that people who... -
ARCHIVED Being Celiac.. Do I Have To Use gluten-free Shampoo And Soap?...
Gentleheart replied to Jamie's topic in Gluten-Free Foods, Products, Shopping & Medications
This is only my own opinion. Does anyone honestly shower with their mouth tightly shut? Don't most of you eventually know what your shampoo or face soap or lipstick or makeup or lotion "tastes" like whether you intend to get any in your mouth or not? It seems to me that it would always be risky to use any cosmetics that contain something that causes so... -
ARCHIVED Need Dish & Hand Soap Urgently!
Gentleheart replied to raisin's topic in Gluten-Free Foods, Products, Shopping & Medications
I recommend you get a good 'from scratch soapmaking book' from your local library. It is totally possible to hand make a small batch of natural bar soaps for yourself in your own kitchen from 3 simple ingredients: distilled water, pure sodium hydroxide (lye) and extra virgin olive oil. You could go to a health food store and easily buy such bars, but you... -
ARCHIVED Is My Job Killing Me?
Gentleheart replied to alephknot's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here is how it was explained to me by very knowledgeable people. When a person bakes with flour, there is a lot of "poofing" of flour into the air. It's inevitable and nearly impossible to avoid. And because most flour is so fine and lightweight, it can supposedly stay airborne for quite some time. During a normal baking event and depending upon how... -
ARCHIVED Residual Symptoms Or Slip Ups?
Gentleheart replied to Beloved's topic in Coping with Celiac Disease
Some folks can live the reasonable gluten free lifestyle you have just described and do just fine. But if you are still having all these suspicious and uncomfortable symptoms, it would indicate to me that you might be a little too sensitive to be quite that free. Many of us can't eat out at all, which is certainly disappointing. You may not be that bad... -
ARCHIVED "Super Sensitive" Celiacs.....
Gentleheart replied to jerseyangel's topic in Super Sensitive People
Thanks, Mike. You're very nice. I will consider doing that when I get done with the SCD I'm currently trying. -
ARCHIVED Super Sensitives Food Question
Gentleheart replied to Gentleheart's topic in Gluten-Free Foods, Products, Shopping & Medications
Perhaps there are some naturally occuring msg issues in pure nutritional yeast that I haven't heard about. But from my studies and experience with health food stores, nutritional yeast has been used as a nutritional supplement for decades. The use of it to make foods taste good is a secondary use, to the best of my knowledge. The recipes I have are for... -
ARCHIVED Super Sensitives Food Question
Gentleheart posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I have some good recipes calling for nutritional yeast. I realize that brewers yeast is a byproduct of the brewing industry and would obviously be off limits. So I don't mean brewer's yeast. But I am talking about nutritional yeast that is separately grown on a legal medium and should be gluten free, theoretically. I do not test sensitive to yeast. So... -
ARCHIVED "Super Sensitive" Celiacs.....
Gentleheart replied to jerseyangel's topic in Super Sensitive People
Having read all the posts on how good this product is, I sure hate that they had to use cornstarch. I would love to be able to look forward to using this mix someday. I wonder why such careful companies like this make those kinds of executive decisions. I realize that a few people are also allergic to tapioca starch or arrowroot starch or potato starch... -
ARCHIVED Looking For Allergy Specialist In Australia Or Nz. Help!
Gentleheart replied to webbydu's topic in Introduce Yourself / Share Stuff
I'm about as far from Australia as you can get. But what about Dr. Rodney Ford? He's written several great books sold on this site and you can see him in person on a couple of U Tube entries. Maybe he's gotten too famous to still be taking patients. But from what I've read in his books, he seems to really know about allergies in children and especially... -
ARCHIVED Specific Carbohydrate Diet (SCD)
Gentleheart replied to AliB's topic in Food Intolerance & Leaky Gut
Not to worry. I've been a health food nut for my entire adult life. I never eat processed foods. I am allergic to 4 out of the 8 foods you mentioned. But I am eating the rest. -
ARCHIVED Specific Carbohydrate Diet (SCD)
Gentleheart replied to AliB's topic in Food Intolerance & Leaky Gut
Thanks, AliB. I really appreciate your quick reply. After being ill for years and having consulted with many doctors, I finally took several lab tests on my own, including Enterolab, that all said the same thing. Gluten, casein, eggs and soy - all major proteins. I also have both genes and severe malabsorption. Not realizing how it all worked, I... -
ARCHIVED Multiple Food Allergies--how To Determine If I Have Celiac?
Gentleheart replied to Lady TS's topic in Related Issues & Disorders
All of this to ask.....Since I have been essentially off of all grains with the exception of my trials of oats and of wheat, is there a test to tell with any accuracy whether I have Celiac disease? And if so, what is the name of it and how much does it cost(ballpark figure--I don't have insurance and would like an idea). Thanks for reading this far... -
ARCHIVED Specific Carbohydrate Diet (SCD)
Gentleheart replied to AliB's topic in Food Intolerance & Leaky Gut
I could really use some opinions. I do not have many gastro symptoms to speak of. I can't guarantee that nothing is going on inside, but I don't particularly feel it outside at least. My symptoms are more neurological and so delayed that it is nearly impossible to do elimination experiments or tell which specific food did what to me when. So I fly... -
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ARCHIVED Attention Sensitive Celiacs
Gentleheart replied to dilettantesteph's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you for your thoughtful response. It is well noted. For me personally, I took several tests for other foods and faithfully avoid them as well. I have also investigated many potential look-alike diseases suggested on this site, in books and by my physician. But after going in circles for 2 years, I have arrived back to gluten. I have repeatedly... -
ARCHIVED Attention Sensitive Celiacs
Gentleheart replied to dilettantesteph's topic in Gluten-Free Foods, Products, Shopping & Medications
You know, I've been paying closer attention lately to everyone's postings and also re-reading my stacks of accumulated gluten books and cookbooks, while going to bookstores to see what's new on the subject. I'm noticing that nearly everything being written and said out there applies to those fortunate folks who are certainly gluten intolerant/celiac, but...