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Gentleheart

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Latest Celiac Disease News & Research:

Everything posted by Gentleheart

  1. Gentleheart
    I am supposedly allergic to all parts of dairy, not just the lactose. The SCD 24-hour processed yogurt is very good at eliminating the lactose and that's why it works well for those whose dairy intolerance is just lactose and caused from gluten induced damage. That lactose allergy can possibly even go away once the gut heals. But the rest of the offending...
  2. Gentleheart
    A couple of years ago I did a big comprehensive ELISA test of 96 foods. Almonds was one of my highest reactors for some silly reason. So since I'm still not well yet, I'm assuming it still goes. My reactions are not reliable. They are vague, delayed, non-classic and very difficult to use as a barometer. Like I've said before, as BAD as it is, quick...
  3. Gentleheart
    Even more specifically, I believe the transglutaminase test tells you whether or not you are having an actual autoimmune response to gluten, which can lead ultimately to small intestine damage and celiac. So I'm not sure which of the two tests would best stand alone or should be done first since you can only afford one. That's why I would still ask Enterolab...
  4. Gentleheart
    Thanks everyone for the good advice so far. I'm taking note of it all. My next project is to wade my way through the 80+ pages of this thread and get up to speed. I would still like to know about the nut flours. Do most of you make successful baked goods from the SCD recipes using nuts you just grind yourselves or do you buy the commercial ones...
  5. Gentleheart
    There is a place on the Enterolab site that allows you to contact them by email. The words are limited, but adequate to say what you need to. Please email them with your question. They know their tests inside and out and will be able to tell you exactly which one is best for your particular need. They have always been very quick to answer me this way...
  6. Gentleheart
    We have kept bees before. Since acres and acres of wheat would SURELY provide a huge amount of perpetual wheat dust in the air, logic would tell me that this wheat dust would surely deposit itself on the hives and particularly in the sticky honey-laden beeswax trays. When we extracted our honey, we just manually strained off the worst of the debris and...
  7. Gentleheart
    Thanks, Ibd. If I could have one thing added back to my diet, it wouldn't even be gluten. It would be dairy. But I just can't. I seem to be solidly allergic to all aspects of dairy. I ate it for years because I didn't know any better. I think it's one thing I must avoid to get an accurate result out of this experiment. I heard somewhere else too...
  8. Gentleheart
    Well, I guess this is it. I'm going to try a strict version of the SCD for as long as it takes to see if I can finally make some progress. I have several books and think I understand the concept pretty well. But I am hoping that some of you can answer some practical questions for me as I work on my own personal diet and menu plan. What makes this...
  9. Gentleheart
    I have gratefully trusted in the Lord Jesus Christ for my salvation and love Him with all my heart. Welcome to the board!
  10. Gentleheart
    I just ordered that book and was wondering if it was going to be worth the money. Now I'm excited to get it! Thanks!
  11. Gentleheart
    I think what is happening across the industry is that companies who honestly don't understand this complicated disease yet, are still trying to capture this new hot "gluten-free" market. It's just good business and you certainly can't blame them for going our direction. But they are trusting and following broad government guidelines or others like CODEX...
  12. Gentleheart
    This was a group effort, everyone. Without all of you, a single letter from from one of us, no matter how earnest, might have just become one more in a stack of many. Even though we took a risk and were worried at times that our group letter might be misunderstood as aggressive or inappropriate, it fortunately seems to have fallen on good soil and helped...
  13. Gentleheart
    You are all very kind and most welcome.
  14. Gentleheart
    Hello everyone, I called Enterolab to check on the status of our letter. I talked to a very knowledgeable staff member who graciously shared the following information with me, previewed my post and gave me permission to share it with you. Our letter was definitely received and read by Dr. Fine and his staff. As some of us suspected, they wanted...
  15. Gentleheart
    Not to worry. You were not abrupt. I too have read most of what has been shared here about the chocolate issue and SCD and came to the same conclusion. It's just illegal because it is. But seriously, I don't have to eat it. I was just curious since no one really ever had an answer as to why. Thanks!
  16. Gentleheart
    As for chocolate - Elaine says NO. Sugar or not. It's addictive - like a drug. Don't go there if you want to heal. It has no food value.
  17. Gentleheart
    What's the word about chocolate, specifically cocoa powder on the SCD? I know it's an illegal. But is that just because it is nearly universally accompanied by sugar, soy lecithin and even milk? Is chocolate still illegal if you make your own ground up concoction with gluten free unsweetened cocoa, honey or dates and maybe a little extra virgin coconut...
  18. Gentleheart
    I have high regard for Fasano. So without getting into a big discussion about Celiac vs Gluten Intolerance, does this quote indicate that HE, at least, believes them to definitely be two different diseases and not merely more or less advanced manifestations of the same one? And does TRUE CELIAC mean endoscopy proven damaged villi only or can it be just...
  19. Gentleheart
    My intolerances to the major proteins of dairy, eggs, soy and gluten were confirmed by 3 different labs using 3 different testing styles. I was told directly by two of the labs that they were likely permanent genetically-supported intolerances. I haven't been given the impression by them that any of these are reversible. I do, however, also have several...
  20. Gentleheart
    I have toyed with this diet more than once. But can a person who can't have any dairy, eggs, soy or almonds survive on it? It seems like it would be pretty restrictive and hard to follow under these circumstances. P.S. Could someone please give me a quick rundown of the rules of the diet again. I have the book, but it's packed away. Thanks!
  21. Gentleheart
    Hello everyone, It can be really difficult to wait sometimes. Those of us who have not yet figured out our own gluten sensitivity, have a particular interest in Dr. Fine's research and what he might have to say to us. So I fully understand our desire to be first on his "To Do List." But if there's anything I have had to learn on my own quest for health...
  22. Gentleheart
    Oops! Sorry for the accidental double posting.
  23. Gentleheart
    If what you are proposing is true, then does a severe malabsorption level on an Enterolab test more likely point in the celiac direction than the gluten intolerance one? Or is that where possible intestinal infections or infestations might come into play and skew the diagnosis? All the other parts of the comprehensive stool test were decidedly positive...
  24. Gentleheart
    WOW! Can't something be done about this? Lawyers out there? Why can a company continue online like this without some authoritative intervention. I realize that the net has nearly NO rules, but really. If a company is obviously just taking people's money on a regular basis, why aren't there any lawsuits yet? So curious.
  25. Gentleheart
    Could any of you scientists out there please tell us what you might know on this subject? I would really like to know if there is any scientific evidence about the lashes thing or if it's just a fun legend. Has anyone done anything with it at an official level in the science world? Several family members have decidedly longer lashes than usual. Thanks...
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