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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could I Have Celiac? A Long List Of Lifelong Symptoms...
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3 posts in this topic

So, I've always had a HUGE fear of doctors. I am now 32 years old, and finally just went in for my first physical in like... 15 years.

 

My doctor discovered that I am severely anemic. He wants to test for Celiac now. After my last appointment my head is spinning and I have been doing research and I am now wondering if some of you think these symptoms could indicate this. I know I could wait for the results, but I am just impatient I guess!

 

Gallbladder disease (I had mine removed due to gallstones when I was 20... very young)

Severe IBS (which I attributed to lack of gallbladder)

Gerd after eating wheat (mostly in the morning)

Mucus in bowel movements

Random abdominal pains

Delayed menarche (first period wasn't until I was almost 15)

Irregular periods

Rapid hair shedding

Weak fingernails

Fatigue

Dizziness/Vertigo

Muscle cramps

Chest pain

Mildly insulin resistant

Slightly elevated C-Peptides from Pancreas

 

When I was 20, just prior to my diagnoses with gallstones, I also was SEVERELY ILL for unexplained reasons. I was extremely fatigued (probably slept 14-16 hours a night), had deep chest pain, etc, and had to drop out of school for a semester. Doctors were flummoxed and told me I might have Chronic fatigue syndrome. My liver enzymes were also high. 

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Hi Manuela and welcome to the forum!

 

To answer your question, yes, yes, and yes on several of your symptoms and ailments.

 

Hopefully you've been through the worst of it now ... and you'll eventually feel much better on a gluten-free diet.

 

In the meantime, in case you aren't aware,  it's important to continue your usual diet until the testing is complete.

 

Wishing you the very best!

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Hi Manuela and welcome to the forum!

 

To answer your question, yes, yes, and yes on several of your symptoms and ailments.

 

Hopefully you've been through the worst of it now ... and you'll eventually feel much better on a gluten-free diet.

 

In the meantime, in case you aren't aware,  it's important to continue your usual diet until the testing is complete.

 

Wishing you the very best!

 

Thank you very much. Unfortunately, I have been on a paleo diet since November, so I am not sure I will get a positive reading. I haven't eaten grains in any form since then. My doctor is aware of this, though. I am not sure how to get diagnosed on my current way of eating...

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
    • 9 year Old going through testing
      Thank you everyone. I have scheduled a second opinion. He last biopsie came back and he is lactose intolerant.     
    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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